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13 pointsHi everyone. I just came across one of those fear articles that we see too often that can trigger those of us with HA. I found this author's email address and sent this email to her today. If she responds I'll share it, but I'm sure none of us will be holding our breath: Hello Alyssa; You might not be aware of this, but you are amongst a growing number of what I call “health scaremongers” online today. One of your photo slide articles was just featured on MSN about cancer symptoms that men often ignore. I could pick it apart one by one but let me just give you one example; brain tumors. Persistent headaches, watch out, could be a brain tumor! The reality of the situation is that, according to renown neurologists from the most prestigious of universities, it is highly, highly unlikely that a headache will be the first symptom one gets when suffering from a BT. Briefly, here is the reason. The brain feels no pain. When a tumor grows large enough to impact the skull/nerves adjacent to the skull, that is when pain will be felt. However, by the time a tumor has grown to the point where it can cause such pain it has undoubtedly caused havoc during its growth, resulting in other symptoms first, such as seizures, vision loss, and a host of other presenting symptoms. Your article equates persistent non-migraine headaches as potentially being a BT. In fact, between migraine and daily tension headache, you account for the vast majority of causes. Then, there are numerous other headache types, such as ice pick, cluster and many others that occur. Articles like yours scare people. They cause vulnerable people to march to their doctors demanding scans, some with damaging radiation involved. I guess that’s your aim; it generates more “clicks” and hence more advertising revenue. But at what human cost? If you’re going to write about health issues, write intelligent well thought out articles that show you researched and were serious about your work and not just out to grab the last buck for your employer. Bob - Canada
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11 pointsIn 2014 my father passed away, a couple months shy of his 98th birthday. Other than the final few years, he was alert, happy, always joking and sharing his so called wisdoms. Even in the last years, most of the time he just suffered from normal memory issues. So, what helped him make it well into his 90's? It sure wasn't his genes. His father died at age 46 and his mother at 60. For a good part of his life he was slightly overweight; not obese but say 10-20 pounds above his norm for height. He had an awful 1st marriage; his wife actually lied to the War Department in 1944 saying he was not supporting his kids. It worked and they drafted him. He served in Okinawa just before the end of the war in the Pacific. He did have, for a while, strained relations with his kids from that marriage. Lots of stress. Oh, and he worked in a chemical plant knee deep in God knows what concoction of crap, until he was drafted. So, why was he a happy guy who lived a long healthy life? One word more than anything summed it up: positivity in life and in himself. After returning from overseas, he seemed to adopt a new outlook. Shortly afterwards he got a low level position with the Veterans Administration. 30 years later he retired as a GS 15, the highest grade in government not appointed by the President. He met and married my mom. Theirs was a true love story. His attitude towards health was simple. He went to the doctor for his regular checkups, but otherwise you had to drag him to go to a doctor. He had 2 health events in his life; an enlarged prostate that got to where he couldn't urinate. He had surgery and that was that (his next room over neighbor was Ted Knight of Mary Tyler Moore fame). Then at age 82 he had a heart attack. The doctor told me it was a bad one and he'd likely live another 5-7 years. I have no idea what he told my dad, but he wasnt phased by his heart attack. He thrived in rehab, and in months was back to doing everything as before. He lasted another 15+ years. He was told in his late 80's to have his carotid Artery cleaned out. He refused. It never mattered. So what does this all add up to? Well, for him it seems being positive, being a jokester, being content with his life did the trick for him. It's true he didn't smoke cigarettes or abuse booze, but he did love his cigars. Me? I'm 180 degrees opposite of him when it comes to being content, being positive and happy. That makes me really sad. He had personality quirks, and we didn't always have the best relationship, but his attitude towards life was one thing he did right. That's one way I'm still trying to emulate him, and I'll keep trying to the end. Maybe I'll succeed one day. Thanks for reading this long post. We all want to live a long healthy life. He had the recipe and played it out to perfection. Are any of us willing to try to change our outlook on life like he did?
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7 pointsWhy is it in anxiety that so many have it over and over and never seem to resolve why. They try all sorts of remedies and take all sorts of actions and get some respite but back it comes. This is not always the case obviously. Some do recover completely and seem to have few setbacks, but so many don't. In fact the vast majority don't. Anxiety, or a neurosis, because that is the technical term for it, is always the result of inner conflict. It has to be. The outer manifestations, GAD, OCD, PTSD are all the result of an unresolved inner conflict. This may not be conscious, in fact it's usually unconscious, but either way it needs resolution for inner peace. Inner peace is the lack of conflict. When you are at peace with yourself, (what a wonderful thought!), then you are at peace with the world. The inner manifestation is reflected in the outer. You care more; are no longer self centred. This is why talking things out through counselling or therapy is so important. There may be hidden reasons for the anxiety that can be easily resolved by seeing them in a different light, from someone who can be objective; who is not caught up in the emotional turmoil. Prescribed drugs suppress the feelings, but perhaps in doing so we lose the lesson that the pain may be teaching us. 'Hey there, there's something wrong in your life, let's put it right'. The surface pain is what it is. A warning that something is wrong; unresolved. Unless this is dealt with we become in danger of 'getting used to' how we feel. Of accepting that we may always be like this and that medication is the only way to obtain relief. If your anxiety keeps recurring ask yourself if there is a deeper underlying problem that you may have overlooked or felt was not important. Anxiety never stands alone. It has to have support from fear and the source of that fear needs to be investigated. I appreciate the difficulties in getting the sort of help I suggest. But if you are ready for it it is often surprising how it appears. Jon.
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6 pointsHi all. I went to my second therapy session today. Wow love my therapist. I wish I could take her home with me lol.. how nice would that be. But anyway she had me fill out a few questions/tests today.. one was rating where I'm at with anxiety and an entire page was anxiety symptoms.. ex: do you have chest pains, chest tightness, lump in throat, jelly legs, muscle fatigue/weakness, diarrhea, constipation, nausea, dizziness, light headed I wish that I had seen that sheet back in Feb when I had jelly legs, weak and fatigue muscles.. Bec I thought ALS not anxiety!!!!! Wow y'all.. I know we see it here there is a list on the forum but actually seeing it today as part of a test by a Dr it made me realize anxiety symptoms are really real!!! I hope this post brings some comfort to people that have some of these symptoms and have a hard time seeing it for what they really are.... anxiety ❤️♥️❤️♥️❤️♥️❤️♥️❤️♥️❤️♥️❤️♥️
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6 pointsI ran across this on Pinterest and it hit me like a ton of bricks. It sums up HA so well We drink the poison Our minds pour For us And wonder Why we feel sick -Atticus. So so so true. Can't believe everything our minds tell us.
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5 pointsWhat about: Mongolian Swamp Fever. Mississippi lurgy. New York Acne. Trumpitis! Brexit phobia. (Found in the UK only. Very nasty.(Can drive you mad if not treated!). Inflammation of the wallet. (I get this badly!). Not making enough money. (moneyitis). Inflammation of the workplace. Miserable sods disorder.( MSD. People that make you miserable) Weatherphobia. Asking too many questions disorder. (ATMQD. Nasty complaint!). Temperitis. (Losing your temper unnecessarily). And so on. I'm sure you could find some more fictitious ones. That's what most of our problems are, fictitious!!!!!!
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5 pointsI Just wanted to give everyone an update on how things are going. Sorry this is long, but if you give this a chance and read it through, I think this will help a lot of people with some things I learned along the way. So after almost 3 months of random symptoms, I'm finally on the mending path from this wicked bout of health anxiety. I had my MRI last Thursday of full Brain and Spine and the results came back exceptionally normal. Here is the list of things I've learned through this process that may help some other people out. 1. Symptoms feel real and it's normal to be afraid, but don't get too invested and pay attention to the likeliness of what your fearing actually happening. Sometimes just by thinking about something we assume that it's more likely to happen because we're thinking about it. This is called Thought-Action-Fusion. It's the same reason why when we imagine what we could do with millions of dollars we go out and buy a lottery ticket, but our chances of winning are no greater than if we never had that thought at all. It takes an incredible amount of stress and mental power to create and amplify symptoms, and an even greater power to stop them. Through the last month, I've had: pins/needles/numbness in my hands and feet, sore lower legs, dizziness, vertigo, trouble concentrating, night sweats, extremely dry mouth, palpitations, hyperventilating and not even realizing it. Sore muscles, feeling like I have pinched nerves, cold feet and hands, sucky memory, twitches, jerks before falling asleep, random tingles, burning skin, insomnia and weight loss. Now I'm just left with a bit of numbness in my hands (worse on the right) and my legs are sore but significantly better. (Tongue gets a little sore when my mouth is dry at night too, but that's pretty normal in winter dryness). I went from a lot of symptoms to very few in a short time by simply not thinking about them anymore. It is actually shocking how powerful the mind can be. 2. Listen to your doctors. They've perfected their crafts through rigorous studies and practical application. They know what to look for, and they wouldn't let anyone go through something terrible if they truly thought anything was wrong. When I was in my spiral, I wouldn't believe a word that anyone told me. I was so convinced that I was dying, I was the most bull-headed human being on the planet, and my anxiety monster wasn't letting anyone tell me any different. Now that I'm on the other side of this Tornado, I just feel like an ass. I let myself get to a place where rational thoughts and actions were simply broken, and going forward through therapy and CBT I'm not letting myself get back to that place. I actually have a follow up appointment with my doctor tomorrow and I plan on apologizing because he was right 2 and half months ago. 3. Seek reassurance, but know when to quit. When you are asking questions about what you're going through, remember that typically people who have been through similar experiences are quite honest. If someone is telling you that your fine, and 20 more people also tell you that you are fine, you are probably fine. There's no bets taking place around who can keep you from seeking proper medical care the longest. People have just been there and don't want you to spiral down as hard as they did when they might not have had the same reassurance resources. 4. Seek professional mental health resources. When your doctors, friends (or group of people in a forum) tell you that your anxiety is getting the best of you, don't wait while your having physical tests to start the help seeking process. Do it in parallel, it's never too early to start seeing someone who can help you with what you're going through on an emotional and mindful level, regardless of the situation. It's a big factor in feeling better. 5. When it comes to health anxiety just pretend that Google doesn't exist. Feeling better? Want to get sucked in to a black hole and repeat the same process you just fought tooth and nail to get out of? Just type in your newest symptom into that oh so familiar search bar and watch as your mental health is thrusted into a blender and set to purify. Unless you're having a heart attack, try out the three week rule. If something is bugging you, give it three weeks, and then go to the doctors. Don't ever Google a symptom ever. PERIOD. Like I said, sorry for the length of this post. But I learned quite a bit in this particular battle with HA (worst it's ever been since I was diagnosed with anxiety over 10 years ago). Hopefully you will use some of the advice above and remember that you are never alone. -Matt
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5 pointsYou have dropped into the old anxiety cycle. As soon as one symptom is explained, another crops up. This happens to so many anxiety sufferers. It's because of the mindset you're in. It's introspective, it's analytical and it's source is planted in fearful anticipation. As soon as you feel a new symptom, anxiety launches and jumps on it, the first thought is a catastrophised statement, the worst case scenario which a negative mindset instantly creates a belief of. The searching for answers then starts. It runs like clockwork. The thinking errors occur around the reaction to the symptom and the self diagnostics you give yourself. You then need this belief to be disproved by someone but if you look back to the beginning, nothing has been diagnosed, you create your own traction based on a normal everyday sensation. The pain in your inner thigh will certainly be a tweaked muscle but your mind has diagnosed cancer (that's the usual conclusion) You need to work on the initial reaction to the symptom as thats where this all stems from.
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5 pointsI'm sorry but there is no need to be condescending. This is a place to help ease one another's fears not to make someone who is obviously dealing with something feel like they're crazy or acting in a stupid way. Not to put words in anyone's mouth but by saying "of course I've been reading stories" I don't think she's actively trying to make herself upset. Anyone with health anxiety knows how it can affect your mind/body/actions. Sometimes by googling symptoms we're hoping against all hope that we find something on there that will in fact ease our minds. In fact, it was because I was googling my symptoms that I found this website and I couldn't be happier that I did. If you don't suffer with HA than I know you couldn't possibly know how our minds work but please when leaving comments to people take into consideration what they might already be going through. They don't need to read negative comments towards them when they're only feeling scared.
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5 pointsMost of the time when we post, we are struggling with anxiety. Today I wanted to post when I am not in the midst of it, to describe it and more importantly describe what led up to feeling better. Like sleep, it just happens,. Anxiety just ends on its own. This sounds silly right. How can it just end on its own? Well, the fact is when anxiety ends it always happens just that way, on its own, with no involvement from me. In fact the lack of involvement is the key to it. When we just step back and allow it to end, it just does. The opposite of trying to make something happen is to be stoic, to just let things happen and ignore it for a period of time. It begins with reducing worry. Worry is so bad, when we worry about something, we are engaged in an activity that hurts rather than helps. To stop worrying about how I feel, to stop reacting to it, is what we call acceptance. This involves actions in the present. We engage in the hear and now. Our mind is not lost in the past with regret or obsessed with the future with worry. It is dealing with what is happening right now. It is not regretting or worrying, focusing on the very instant of time we are living pushes out regrets and worry and is calming. For example, let's say I am stuck in my car in a traffic jam. What am I thinking about. Am I just listening to music, focusing on the moment, chilling out, or am I lost in worry. Worried I am trapped. What if something happens, worried about being late. Worried about getting sick in a public space. Worried about losing control,. It's all worry worry worry. This example pertains to many other things, if I feel dizzy, I worry do I have a disease , is going to get worse. what's next, what's next, worry worry worry. If am unconcerned with what is next, I am calmer. When I am calmer I sleep better, and live better. I enjoy the day, the sunshine,the air I breathe, the work I do. Calmness is the absence of worry, it is acceptance of my circumstances, it is not fighting it, not trying to change it. Change is always a proactive exercise . It is not reactive to my circumstances, reactive actions are anxious actions and are the result of worrying. Anxiety ends when I cease to worry. But I do not try to not worry. It has to just happen. Negative thoughts are simply replaced but positive ones. The fear that is worry is a reaction. The lack of this second fear eliminates the first trigger entirely. It simply goes away on its own. Acceptance is the absence of reacting . It is the elimination of worry. The way it works is that the sensization goes away. The nerves calm down, the internal mind impulsive that trigger physical sensations calm down,. The cycle breaks, and life calms down and all is good. This is how anxiety ends. I wanted to write during a good period to describe how this happened to remember it and share it, to show the way. The way is the absence of trying to step off the thread mill and let the calmness happen on its own, because trying and trying is the same as worrying and worrying, it is feeding the very thing that triggered it, it is keeping it alive. when it ends. And yes it does end. It is because I have ceased to try to make it end, and thus allowed,it to end.
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5 pointsI've been here before but I thought I would come back and see how much mayhem I have caused and what attempts you are making to get rid of me. You have a fight on your hands and I don't give up easily. I know I have problems too. I am a liar, a trickster and a fraud but I can't help it. In fact I rather enjoy making people suffer; it gives me a boost. I notice there are some silly articles on here about control, acceptance and such nonsense. Now this worries me a bit because if sufferers stop trying to control me I suffer. It is the fact that as they attempt to get rid of me by fighting and struggling that gives me more power. If they accept me it derives me of my drug, adrenaline, which keeps me going. I get severe withdrawal symptoms if I don't get enough. Another thing that worries me is that a lot of you seem to be doing well and diminishing my power over you. By getting together and swapping tales about me, (which are not true of course), you increase the knowledge of what I am and that is not good for me. I like to work in the dark and the less you know about me the better. Ignorance is my best friend and we work well together. Our arch enemy, Understanding, keeps popping up now and the and we do our best to counter his nonsenses but some of you still listen to him which is a pity from my point of view. My advice to you is to give up trying to get rid of me; go on fighting and struggling and trying to control me. Boy, you should feel the power I get from such action. I have another good friend, Ignorance. He has a son, Lackofunderstanding and we are training him along so that he can cause some real problems in the future. We have a club. The founder members are myself as Chairman, Panic, Fear, Dread, Ignorance and despair. We get along fine together and have regular meetings to see what further chaos we can cause. So my advice is this. Go on struggling and fighting. Don't get any medication and for goodness sake never seek medical help. In fact never seek help at all. It hurts us deeply when that rogue CBT appears on the scene. Nasty piece of work. Does so many people so much good he is a real menace. I am sure you would not want any of my committee members to suffer so keep up the good work and keep fighting. All the best. Anxiety.
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4 pointsThanks @Iugrad91 Als worries are hard to break. The ALS forum is toxic. I promise. You think it will help but it hurts. You really have to stop going there. If the people on the ALS forum says no and to go away.. listen!!!!!!!!!!! They know what they are talking about. You have zero symptoms. I had a sweet yet firm man on the ALS forum tell me he wished Google wouldn't put twitching as a listed symptom he said it should be paralysis only. You have to get your mind on something else. It's hard but that's how I recovered. My husband actually took WiFi off my phone so I couldn't Google and boy did that help! I read books I enjoyed to keep my mind busy and I walked twice a day and rode bikes to keep my mind clear. Try a week cleanse from Google. Hugs. This worry will ease. But you have to work at it.
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4 pointsHello everyone, just came back from my pcp appointment and let me tell y’all. Note: IVE BEEN FEELING ALOT BETTER ON MY OWN THINKING RATIONALLY, TRUST ME IVE BEEN THERE WHERE I FELT LIKE I COULDNT USE MY HANDS, LEGS. FELT LIKE I COULDNT WALK OR DRIVE, EVEN TEXT. LOST ALMOST 20 POUNDS DUE TO THIS HA. IVE ONLY GOTTEN 30 HOURS OF SLEEP IN A MONTH, SEEN MULTIPLE DOCTORS. I WAS 140, NOW IM 160 I FEEL LIKE I OVER SLEEP NOW HAHA AND ITS GETTING BETTER EVERYDAY. She was getting mad at me because I wasn’t focusing on the things I need to focus on haha. (I go to a university hospital and If you read my past post I’ve seen a lot of pcp just wasn’t mine cause she was on medical leave but she knows about my information since it was noted” Well to sum it up, she knows that I’ve been going through many ALS fear for some months now and she knows about my fasciculation's in my left calve (my hotspot) and all over. she said, “you don’t have ALS, we don’t look for twitching in ALS, we look for real clinical weakness.” She also said “you’re 25 years old, your muscles are probably telling you... hey I need to move.” I told her I haven’t been exercising or anything at all just labor work. She also explained, if you’re working out and you can barely curl a 5 pound weight come see me. She then asked me if I wanted to see a neurologist and I was kinda caught off guard, I told her “I do but I feel like I’ll be feeding into my anxiety. You don’t think i have ALS right?” She looked at me like I was crazy cause she just explained everything about ALS to me haha she said “NO.” she said “well I’m going to put the referral in and it takes months to see one anyways so if you feel like you don’t need to then don’t.” its funny because the doctor was telling me I should be worried more about diabetes and heart diseases because of my family. My parents also see my pcp so she’s very familiar with my family and she knows that diabetes runs in my family. So now she wants me to eat more healthier and work out more. i actually have an appointment with a neurologist on Monday cause someone canceled, I was kinda happy. so next Monday I have an appointment with a neurologist and I’ll keep y’all updated but just wanted to share my follow up.
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4 pointsStop liking online period. Let the doctors, who know what to look for, handle that. It will only make you stay in the anxiety spiral which will make your symptoms worse.
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4 pointsYou Google, saying "what's the other alternative"? How about seeing your doctor? Let her/him hear all of your ailments and let them decide if any tests are necessary. Then, put your trust in your doctor's acumen, medical experience and knowledge and choose to accept what you are toid, not what a money-driven advertising based computer scheme spurts out as your problems. Dr. Google never met you as he/it doesn't exist. It's a computer program. Your doctor knows you as a person and you need to build a relationship with that doctor and trust them.
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4 pointsSo to sum it up, this week I’ve survived...breast cancer, oral cancer, 2 blood clots, and currently am in the middle of a brain aneurysm. I’m one tough cookie.
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4 pointsI wonder if we realise how much we value the body and pay little attention to the Mind? When we are sick it's the Mind that's sick which is projected onto the body. Oh YEAH!! I hear you say! OK, so it's very controversial, but if you have the patience to listen on, well, who knows! All the world and all the institutions in regard to health are related to bodies. In the UK we have the NHS which is all about bodies. In the USA you have people making millions of dollars out of sick bodies. Right? Let me ask you a question. How much time effort and money is poured into the Mind? In the UK we have to fight to get the barest minimum of money from the government for mental health, when so much physical sickness could be avoided should more was put in. On this site you find that the majority of people complain of bodily symptoms. OK, so it happens and that fine, because that's what we are here for; to help each other, compare notes and, where at all possible, to give comfort and reassurance. You guys all do that and bless you for it. But maybe a different approach is needed. The realisation that what we think and believe in becomes our reality. We create 'idols' to worship. Yes, our bodies we do indeed worship or why would we pay them so much attention? If you idolise something you place great reliance on it. Religion in the orthodox sense is such a reliance. People kill in the name of their religion. They believe in it as much as we believe in ill health. Now OK, you may say, so what do I do about that? You begin by realising the problem does not lie in the body but the Mind. So you need to retrain the mind. Therefore, the physical ailments that are associated with the body begin in the Mind. The very realisation of that fact can help. SOME self help books and SOME therapies can help here, but caution is needed because many of the authors have no idea what anxiety is and talk from theory alone. Meditation can help but many find it difficult. An untrained mind will go off in all directions. The Buddhists say it's like a 'mad monkey, swinging from branch to branch, sampling the fruits but abiding nowhere'. The 'monkey' has to be calmed down and taught how to behave. Now what is it that is going to do all this? You? But you are in an anxiety state so how can you? 'The blind leading the blind' comes to mind. But fortunately we all have a Higher Mind, a force way beyond any understanding, but which can be harnessed to bring us good because that is its purpose. When you say, OK, I will sort out my mind, it's what is doing it. Something beyond your normal thought levels. We have all surely felt that something is there to give relief if only we could find it. That 'something is your real self, buried beneath layers of wrong and negative thinking. It's like a blazing light in an attic covered by all the rubbish thrown up there over the years. We need to remove the rubbish and let the light shine because it never went out. The Higher Self; the real YOU is hardly ever given a chance to express itself because we block the way with negativity and our total attachment to our body. The next time you panic or have symptoms sit down take deep breaths and think about it. Give it some thought and try and allow reason to enter, because reason is a message from your Higher Mind. Your primitive mind is telling you that you are ill. Your Higher mind refutes that suggestion and tells you you are not. It's your choice who you believe.
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4 pointsI've got you all beat. About 15 years ago, I got my first cell phone. I was driving home one night and started hearing this brief, odd beeping sound. I'd never heard such an odd sound. It sounded like it was coming from inside my car but I wasn't certain. A search of my car found nothing. i started to panic. After all, I read on Google that people with brain tumors (acoustic neuromas) have reported hearing sounds that aren't really there. I drove the rest of the way home in a panic. I seriously thought of going to the ER asking for a scan. Got home, told my wife. After she stopped laughing, we went to my car. She found my cell phone in between the crease of the seat. The battery was low and the sound was telling me that. she still mentions tat just to needle me every so often
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4 pointsTo give you another example, I have grabbed my mug of tea/coffee before in a hurry. Because I did not grab it properly/at a weird angle, I felt compelled to put it down, feeling like it was going to drop. You can be sure that, at the time, it caused me great clammy, light-headed panic However, had no subsequent problems picking up the mug, and if I look at it logically, it had happened many times in the past when I did not grip it properly. When you are in ALS anxiety, everything, all the minute things, are analyzed and interpreted as a possible ALS symptom. The only way to break the cycle is to let it go gently and focus your attention elsewhere. My neurologist told me to stop strength testing and being on the lookout for ALS symptoms. She said ALS patients don't need to go looking for them; they are wacked over the head when they cannot do a basic daily activity that they could do before. Translated to your hypothetical: I would only be worried if you could not pick up the stack of papers , and find yourself repeatedly unable to do so (and that is ASSUMING that it is really a reasonable amount of papers to pick up, and not some type of ridiculous strength exercise devised by an anxiety sufferer ).
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4 pointsCowboy, cut out the coffee if you can, there is a direct link between caffeine and heart rate as it's a stimulant. You have a belief that your heart will not be able to cope with exercise, anxiety has placed this belief on you. I had the same belief last year, i wouldn't do much for fear of it causing heart issues. During my therapy, i learnt how misconceptions turn into beliefs. You think that exercise is bad for the heart. This is a misconception, the heart NEEDS exercise yet that belief you now have is your safeplace.. "if i don't do anything, it won't beat harder and i will be ok". This is a belief trap and is entirely erroneous. When i came to this conclusion via the help of a therapist, i was told to get up, get outside and go for a walk and test this belief.. lets see how much truth is really in it. I walked and i walked and my heart rate raised......but i'm still here, the belief was nonsense, just a fearful response to possibility. I would suggest getting up one morning Cowboy and go to the gym! Why let a false belief dictate what you do?
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4 pointsJust wanted to hop in and say what an incredible thread this is. Lots of beautiful, honest emotion, communicated in such an intelligent and caring manner. Hugs to all.
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4 pointsEvery intrusive thought it ' the worst'. We think this is 'stronger than before' so that makes us think something really IS going on this time, even though it never did before. I also think the more time we get away from intrusive thoughts the more they seem stronger when they come up becuase we haven't had them in so long. Imagine being somewhere it never rains and when it does , it seems like a LOT of rain because it has not rained in a year. That doesn't mean it's more rain than anywhere else on earth but it only ' FEELS" that way to the person who hasn't seen rain in a long while.
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4 pointsHi Camilla Your therapist was dead wrong in saying stop seeking reassurance or relying on others. I really questions his or her qualifications but that is besides the point. Your hubby is the one you should be able to seek reassurance and support from. I have had my health anxieties in the past and thankfully the hubby would be able to comfort me . When I was younger I suffered greatly with health anxiety. I was not married at the time but I relied a lot on my friends and my family doctor. Never once did she come hard on me. She always took my concerns seriously. Yes you are going through a setback but you will get through this. Have you tried to relax yourself on a regular basis. Maybe once you are calmer you can start to challenge your thoughts by writing them and asking yourself what is the evidence I have c****r? Keep writing them out if you have too and counter them till it gets ingrained in your brain. Go back to your doctor and if he is a good doctor than he will hear you out otherwise find a more sympathetic one. You have kids just like I do all the more reason to say I will get through this. I will be happy and anxiety free for them one day ...BELIEVE in yourself. Lastly you are not a failure !!! I have had many setbacks lost track... I am still in one piece for the most part Take it one day at a time ... You can do this and you can see so many here care. So keep coming back if you have too whatever you feel will help you get through this. I read your post and felt I had to respond. Take care and ((hugs)) amber
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4 pointsNot at all Amber. I know Mark feels as I do, that the suffering has to have some purpose painful as it is. If that purpose is to help someone over a problem then OK. This is a fantastic site. I have experience of many others and this is the tops. So many are badly managed and allow all sorts of nonsense to be posted. It's good to see the Mods on here keep an eye on things. It struck me when going to the other anxiety sites that more harm was being done than good. So many got upset by what others had said. I don't remember one incident like that here. Well, not on the Forum anyway. So folks, give yourselves a pat on the back, and a personal thanks to you all for helping me at times too. Jon.
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4 pointshi there i agree with JJ and Mark, last year my specialist said i should go on a cholestrol pill since my mother died at the young age of 47 from a massive heart attack, but there were underlying issues that trigged that... " the dumb specialist" said don't you want to see your kids grow up".... that one thought set me off into a tailspin... and i kept obessessing about it. he has been after me to take it for the last 2 years and i refuse to take it because i have been checked out my GP and she said my cholestrol is fine... sometimes I feel these doctors just want to make more money by writing a prescription and than feeding your body with unecessary drugs. maybe more doctors need to be also trained how to be show more compassion to their patients and this doctor knew i was taking anxiety meds !!! just my 2 cents
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4 pointsHi. Siobhin. One doctor gives you a pill and the other tells you it will make it worse. No wonder you are confused and frustrated! There is no doubt that anxiety can make a migraine worse. I suggest you tackle the anxiety. If you do the migraines will rectify themselves. You know the procedure. Acceptance. Now not only migraine can make you dizzy and sick, so can anxiety. The combination of the two could make you feel bad and that's what's happening. Calm down as much as you can. Getting in a tiz won't help. If you have to rely on others then do so. It won't always be this way. Accept help willingly. Don't feel you are putting people out. A lot of good genuine folk like to help out so let them. Try not to stay in bed too much. It gives you too much time to think and that is a real problem in anxiety. We overthink. We go round in circles. Distraction is helpful but I know you may not feel like 'doing something'. Give it time. You came out before and can do it again. This is a setback so treat it as such. It WILL pass. Jon.
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4 pointsI've had the very same fear before. How I got over it was with a bit of logic. Everyone is afraid of having a heart attack. Everyone. No one wants one and everyone would be scared if they thought they were having one. I balanced the liklihood of me actually having one vs me just having anxiety. Its more likely, like 99.9% likely that it's anxiety. Next I decided it could happen one day or it might not. I don't know and neither does the next guy. Worrying will not stop it happening. I can worry until my teeth fall out but if I'm going to have a heart attack, I just will, whether I worry or not. It's up to fate. I gave myself permission to worry when it is actually happening. When I'm in the back of an ambulance strapped to the machines. When I feel the pain. When it is actually happening and not before. Sometimes anxiety would give me heart palpitations and chest pain. So I'd wonder 'is it time to worry?' I'd then way up the liklihood that it is anxiety related palpitations and pain or an actually heart attack. It's very much more likely it's anxiety. I'd then promise myself if it got worse or didn't end in a set amount of time, I'd get it checked out, but until things got worse, there's still no point worrying or even paying it attention. Try to live in the moment. Accept it is up to fate as it is with every single human alive. Worry when it is actually happening, not before. I hope this helps. It takes practice but it can be done.
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4 pointsMany stress & anxiety sufferers report this symtom. Indeed I myself found this to be one of the most unsettling of tools used by stress to undermine its victims. One cause is that hunched shoulders confuse your brain into thinking its a few millimetres away from the position in space that it thought it was. The Brain and its balance centres are accutely aware of movement and spatial positoning. It relies on muscle tension, sight and the inner ear to compute its whereabouts like a GPS sytem. If muscles in your neck conflict with information from your eyes and ears then you will feel dizzy and weak at the knees. Another cause is the tendency for anxiety sufferers to hyper-ventialate and screw up oxygen levels in their blood. Yet another reason is a sensitivity of the brain to cell-phone and associated HUBS and antenna towers. Hospitals do not like these transmission and nor do airlines like customers using phones on planes as sensitive electronic devices can be effected by them . Your brain is a sensitive electronic device and it can be effected in the same way. Fear of becoming dizzy itself causes tension in the neck which in turn does make feeel you dizzy. I used to dread attending stand-up functions at work and would have to find a wall to prop myself up against to avoid falling over. Relax your shoulders and let them fall. Take a deep breath using your diaphragm to inhale. Hold it for 7 seconds and breath out slowly whilst thinking the word R-E-L-A-X. Do this 3 times and then continue breathing in a shallow manor again from the diaphragm. As for avoiding electro-smog..........none of us can I'm afraid but you could buy a professional signal strength monitor and try to avoid hot spots.
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3 pointsOk, update. Went to my Dr she said it's either a cyst or lipoma. Either way she's not worried and before I even mentioned soft tissue sarcoma , she said and it's not sarcoma like I know your mind is telling you 😆lol. She so gets me..we also talked about anxiety meds Bec I'm tired. I'm tired of the set backs. She prescribed me a benzo free anxiety medication low low dose. I'm going to probably make another thread to see if anyone is familiar with what she gave me. I'm relieved to maybe get some help. I tried but I can't do this on my own. And as much as I love my therapist the talk therapy doesn't go far with me. Thanks everyone for helping me get through this fear.
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3 pointsYou can’t be serious. You really, really need to get some help and fast. You would question the sky is blue right now. Your anxiety is consuming you and you are not thinking rationally about anything at the moment.
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3 pointsLouise, Of course I agree with the others if only for your peace of mind. Pediatric melanoma is sooo rare. Stats are your friend here. Your daughter is 7. In those aged 1-4, the incidence is 1.1 per million. That's basically 1 in a million. In those 15-19 it's 10.4/million which is roughly 1 in 100,000. Being 7, the incidence at that age is much closer to the 1-1,000,000 than the 1-100,000. Both those incidence rates are way, way rare. The chance that your daughter is say 1 in 750,000 is incredibly unlikely to say the least. Many of us w/HA of course say well yes, but in MY case it's that "1". That's called magical thinking. Your daughter being the "1" is no more likely than any other 7 year old. Also, my educated guess is that in those unfortunate young ones who are afflicted, they for some reason literally bake in the sun, day after day after day, likely in warm climates. Please bug them for the results just so you can relax. After you receive the negative result, please also realize the affect our HA has on our families. I'm always nervous that my HA will affect my children. I've seen some evidence of that, and my wife has to counteract the damage I've done, simply by them watching and listening to me, even when I'm not aware they are (because I'm in a panic state). Bob
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3 pointsDom, If you had initial symptoms of ALS 6 months ago, they would have progressed very notoiceably by now. Typically, a burning feeling is caused by either a nerve or anxiety. My guess is anxiety. You mention weakness but what you have is actually "perceived" weakness. This was proven by your neuro exam. If you had ALS you would not be able to pass a neuro exam. Also, pain is not a symptom of ALS; in fact really the sole blessing poor ALS sufferers have, is that they are not bothered by pain. They are bothered by progressive inability to use their muscles. Actual weakness; such as, inability to turn a key in a lock; continual tripping and falling due to actual muscle weakness and wasting in a foot or leg. You don't state your age, but ALS when it strikes typically does so after age 50. Even then, the numbers are like 1 in every 20-30,000 per year. What you do clearly have is anxiety; health anxiety and perhaps other forms. Have you thought of trying therapy/counseling? CBT is said to be the go to treatment given in counseling. Anti-depressants are always a possibility if your doctor and therapist feel it makes sense for you. The stock market is going down. i wish i could invest gobs of money in a stock that pays me if you don't have ALS. It would be like having a license to print money. Bob
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3 pointsI'd like to chime in with another resource...the "calm" app is available on mobile devices and it's free....there are paid elements to it, but a lot is free...and it helps. There are guided meditations and breathing exercises and "sleep stories" which are bed time stories for adults. It's the best app ever. I love it...it does help. I have no affiliation with the app...It's just helped me. I know it's available on the apple app store, I suspect it's available for android as well.
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3 pointsYour husband is probably wrong about counseling not helping. People who don't have these issues tend to not really "get" them. (And these disorders are hard on our loved ones, too!) I would at least meet with someone and see what they have to say - what's the worst that could happen? (Uh...wait...don't answer that...that's not a question you should ask an anxious person ) This place is great for support when you're trying to get your legs back under you.
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3 pointsThank you everyone! This does seem like good topic for discussion and everyone has some very helpful info/ideas! i agree with everyone! And totally understand it's all in the mind and the problems need fixing rather than just masking them. Although I also think some of the things that may be seen as just bandaids could be the problem to start with, reducing stress for example, stress could be a big cause to start with so reducing it is definitely a positive. Thanks everyone! I won't stop trying to be healthy and improving, I just need to keep in mind it's all normal
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3 pointsHello All! I've been missing in action for some months now, but I have returned with wonderfully magical news to share with each and every person here! I'll start off by telling you my diagnoses: Major Depressive Disorder, Treatment Resistant, Moderate Degree, Recurring Episodes; Panic Disorder with Agoraphobia; Anxiety Disorder, and Trichotillomania. I have tried about 85% of the SSRIs on the market, various Antipsychotics, Benzos, Mood Stabilizers, and Homeopathic remedies; EMDR Therapy, Cognitive Behavioral Therapy, Hypnotherapy, Meditation, Breathing Techniques, Visualization, Self Talk, Self Hypnosis, Soul Retrieval Ceremony (a Shamanic Ceremony), Massage Therapy, Exercise, Heliotherapy, Adjusting my Diet, and Reiki Therapy...I think that covers it. Last month, I was preparing to elect Electroconvulsive Therapy as a treatment resort to help with my disorders. In the nick of time, my Psychiatrist mentioned Ketamine. I'd never heard of it, and so I did research on the method of this treatment. Ketamine is FDA approved for Anesthesia in surgical procedures. There are also studies on Ketamine being a successful treatment for Chronic Pain. In addition, Ketamine is a street drug, Special K, that has a hallucinogenic quality. Finally, as of recent years, there are studies for using low doses of Ketamine to treat Major Depression (although it is not FDA approved to treat MDD). It wasn't long before I felt the strongest sense of hope and desire to undergo this treatment; just thinking to myself, "This sounds too good to be true!" To make my hope grow even brighter, there just happened to be a Psychiatrist about 60 miles away that offered the treatment! The following week, I told my Psychiatrist about my findings, and he gave me the thumbs up to contact the Psychiatrist that offered Ketamine Infusion Treatments. My first consultation was set, I ended up being a suitable candidate, and had my appointment for my first Infusion scheduled!! BAM! I don't have the words to share with you to express adequately how I've responded to this treatment that is available. My very first Infusion..I was freed from the weight, that heavy, dark, lonely, cloud that followed me for so long. I could breath!! And it only continued to get better as the days passed. Thus far, I have had 4 Infusions, and I have one remaining. I found myself again, because of Ketamine; I feel again, because of Ketamine; I laugh now, because of Ketamine; I have more understanding of what I've been struggling with, because of Ketamine; I see things I've never seen before, because of Ketamine; I hear things that I've never heard in my life, because of Ketamine; I'm as goofy as ever (and not afraid to show it), because of Ketamine; I want to LIVE, because of Ketamine Infusion Treatments!! In closing, I must stress that I am NOT recommending anyone to make any attempt, whatsoever, to treat themselves with Ketamine in an uncontrolled, unmonitored environment!!! You want to live, not die!!! Also, there is not such thing as a "Silver Bullet" in treating everyone. I just wanted to share my success story, because if this story help even a single person, then I would be so, so happy!
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3 pointsI also worry so much about leaving my family. My ha got worse after the birth of my last child 28 years ago. She and I are so close I can't imagine being apart from her. I really truly feel everyone with health anxiety fear death. If we could get past that fear our health anxiety would end. Maybe I'm wrong but that's what I think.
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3 pointsIt's strange isn't it. You KNOW yet it still happens. The issue arises when the thought is interacted with and consistently validated as being an actual threat by your limbic system. So that KNOWING turns into "I KNOW BUT..WHAT IF". Relief for you will arise when you learn to let these thoughts be, let them fly about but just observe, DONT' react. To lose the fear that these thoughts are there and take away their validation. You habituate to the thoughts which disarms them and turns them into just thoughts, harmless thoughts.
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3 pointsGreat advice from someone who takes a very special interest in skin. Hehe. Thanks for sharing, Jae.
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3 pointsIt is self help therapy. If you are feeling better after talking it out on here, imagine how much better you'd feel by seeing a Psychotherapist on a weekly basis. You'd be amazed. Our minds are so powerful, it can make us truly believe that something is wrong, but therapists can help rewire our minds to think rationally and reasonably!!!
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3 pointsFor me its The Vicar of Dibley, Keeping Up Appearances, The IT Crowd and Black Books.
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3 pointsHi Ben that was a very nice post especially the part about what religion we may practice. Because at the end of they day we are all human beings treading on the same path called Life.. and I agree if it wasn't for Gilly and her original helpers I would never have met some pretty awesome people on this site and in the chat room. They all know who they are So thanks again Gilly... even though I don't celebrate Xmas I will be thinking of all you who do and hope it is a memorable one you can look back on fondly in the years to come. Amber xoxo
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3 pointsHey Kylie!! Way to go girl! Taking that first one is the biggest step! I dont know if it will help you or not, but its worth a try Zoloft was bad for me, but I know a couple of friends who it has helped a lot. One of my best friends has been taking it for about 15 years and she managed to get so much better once it kicked in for her. Try tapering onto the dose slowly if you feel sick (like half a tablet to start and build up the dose), stick it out as long as you can and see if it helps. Even if it ends up not working, at least you know you tried. Take care and i'm here for you!! xoxo
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3 pointsyes i love your idea Gilly ...... we are a cool gang i must admit..... we could play beach volleyball... some of us could just laze around on the beach... some of us could be daring enough to go in the OCEAN... i am afraid of water LOL ... I could finally bring Cubmanben his cookies that he has been waiting for....LOL but you have to share. You all are awesome.. and who knows maybe one day some of us might really meet each other in real life... NOW THAT WOULD BE TOTALLY AWESOME !!! Lots of love out today, kinda having an emotional day but i will be okay because there are good people on this site to pour my heart too. Love Amber
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3 pointsHey Amber. I really think the time of year has a lot to do with it (especially since I'm not able to speak to the time of the month bit). I know I myself have been in a bit of a rut, several others have as well. But as lone pointed out, you are at work. You did take some time to vent. Those are both in the long run really healthy things. It's important to get things out and not dwell on things too much or let your mind run wild. I think sharing your experiences is actually a great and really healthy way to combat it, especially in acute cases like this. I've said it before elsewhere and I'll repeat it again because I think it bears mentioning in situations like this... but there is no backwards in progress. It may feel like it, but you're still well ahead. You're self aware enough to know it's an off day. You're courageous enough to come talk about it. So in spite of the feelings that you're having, these are just feelings that carry no real weight or meaning in your overall recovery. Things are still very positive for you and you will get there Amber!!
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3 pointsAnxiety and stress can do a real number on your hormones! When my anx was at it's worst, I was about to turn 40. I had so much crazy hormone related anxiety, as well as spotting I though I was in perimenopause! Peri can start up to 10 years or so before meno does. It made sense given my age but having kept track of my cycles over the past few years with an app on my phone, it was ALL anxiety related. I saw how my anx got worse mid cycle, for about 3 days then died down. Then it would flare again either just before or towards the end of my period. (it flipped back and forth, some months it was at the beginning, some at the end) But it was like clockwork, after a while I knew to expect it. It really did drive me potty trying to figure it out. My cycles settled back to normal once my anxiety improved and now I don't get the cycle anxiety much anymore. I'm 44 now though and my cycles have shortened a little, just by a day or 2, which I do think is down to my age. But rest assured, anxiety and the stress that comes with it really can affect your hormones pretty badly, and visa versa, vicious cycle! Right now I'm on day 19 of my cycle and have some spotting, why? I've had a very rough few days, stress triggered anxiety. Isn't it fun being a woman? Nope! Sign me up for binning this uterus!! I did take agnus castus for a couple of years which did help, trouble was I had issues with it upsetting my stomach. I take evening primrose oil, folic acid and starflower oil. All recommended by my doctor. I'm not sure if they helped settle things down or if my anxiety improving did the trick alone, but it might be worth it to try them. You're certainly not alone hun!
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3 pointsHi owly. Oh no!! Not preparing for the worst. Not by any means. Acceptance is preparing for eventual relief. There are many on this site who believe management is a better word than cure and I go along with that. We have a nervous temperament. Now there's not a lot you can do about that. BUT, you can learn to manage it so that when symptoms occur they NO LONGER MATTER. It's like a headache. You don't get in a tiz but take a couple of aspirin and it goes. Management, acceptance, is like the aspirin. We begin to understand that the feelings are just that, feelings. I have talked about this sequence before but it's worth repeating. The brain is an organ. The mind, although part of the brain is master of it. When you get a twinge, or you feel you need worry about something, (like your wife), the mind sends a signal to the brain. DANGER!! The brain, being a loyal servant of the mind does its thing. It sends a message to the adrenal glands to secrete the hormone adrenaline which it does. Now this action is a direct descendant from our ancient ancestors who, when faced with a Sabre Toothed Tiger, had to run fast. The fight/flight mechanism comes into play. To fight the Tiger would not be wise, (!!) so they ran. You can't fight or run so the adrenaline has nowhere to go except into your body where it's not dissipated by running away. It's internalised and plays merry hell with you. See the cycle. Worry/fear/adrenaline/fear..............It's said that the front part of the brain, the reasoning part, gets lost and the primitive back part comes into play. We have a lot to thank our ancient cave man ancestors for. Don't we just.. Keep at it owly. The only way is UP!! Jon.
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3 pointsThanks guys for all your great advice and tips, really appreciate all your kindness. Everything you have all said makes great sense and I know you're all right. It's just so scary when you're going through it. My head got so bad in a shop today and all I wanted to do was run out but I stopped myself and just kept shopping, told myself well if I'm going to pass out walking away won't stop it happening. That actually seemed to ease my head slightly, so going to kept reassuring myself as much as I need to. Thanks again.
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3 pointsJM, that help is within yourself. I know I have said it before, but rushing to us for reassurance is counter productive. You know 99.9% it's anxiety, how about 100% Remove that doubt! Positive affirmations, keep a diary and reassure yourself with facts. This happens every time, so there is 1 fact, it's habitual. Your mind is used to it happening when your husband leaves, so it follows the same pattern. For you to truly beat this you have to take charge and challenge those doubts and let anxiety know who is boss!
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3 pointsI think I am getting the hang of the practice of "acceptance". I want to explain it here in the hopes it will help someone else - or in case I forget again and need to remind myself how to get it back! It has been several weeks since I got worked up with worrying about "what if?" and "how will I?". It's not that the worries and fears are gone - they are all still there - but my attitude towards them has shifted. Last night a few worries popped into my head about the upcoming Christmas season, the things I need to do, traveling, finances etc. but instead of worrying about "how I will handle it all?" or "what if I get anxious?" I simply noted the thoughts and then reminded myself that I only deal with the here and now. No sense running all that stuff through my brain when I am laying in bed at 10pm. I told my husband it's like I have made a compartment in my brain where those fears and thoughts go. If I catch one I send it to that compartment. I might have to go and retrieve something from there at some point but more likely stuff will just sit there and eventually go away of it's own accord. The compartment is there in my head but it's just set off to the side. Oftentimes I am aware of the compartment and I realize there are things in there but they just sit and make a bit of background noise while I get on with the task at hand. I don't pull them out to examine them. Sometimes I feel anxious but I just tell myself that those feelings should just live in the compartment too. So I'm aware of the anxious feeling - and I don't really like the way it feels - but it just has to stay in the compartment out of the way of the real things that occupy my life. But I don't let the anxious feeling worry me because I remember that worries and fears go into that compartment too. I only deal with the here and now and not "what if's". So the anxiety hasn't really gone away. But I have put it in it's own compartment. And the best I can explain is that it doesn't sting as bad from there. I am still aware of it but it's just a discomfort instead of an all-consuming, horrible feeling. It is taking time and practice and some days it happens more easily than others but I know that with more time and practice the act of compartmentalizing will become more and more automatic and I will likely become less and less aware of the dim noise coming from it.
