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  1. Today
  2. Welcome to the forum. I would go to a dermatologist as it may just be a skin irritation or something similar. Stress can also cause skin breakouts. I would not jump to conclusions and speculation. I once went to my GI physician and had myself diagnosed with an illness. He told me to stick with being a CPA and let him do the diagnosing.
  3. Hello, Tonight I discovered these red marks on my breast, and Im worried that it might be inflammatory breast cancer. At first I thought i had a new freckle on my chest after tanning, but it looks more like a bruise. I am going through a stressful time in me life now, but have done nothing unusual behavior. Everything else feels normal with the breast, except from the marks. For the past days I have experienced fatigue and breathing problems, but I thought it might be because of stress or anxiety. I have no history of breast cancer in my family, but i have struggled with health anxiety for several years . Since Im currently not at home, I wont be able to visit the doctors until a few weeks. Does this look like inflammatory breast cancer, or could it be something else? Picture:
  4. Yesterday
  5. Our son got me the oil for back spasms and it seems to be working. It's a low dose/ mild and I've been using it for 3 weeks. Not sure how they differ for different needs.
  6. I'm 71 and completed menopause at 54. Yesterday I noticed a small bit of sticky stuff on my pad (urinary leaks). This morning, about an hour after I was up, I went potty and when I wiped had a good amount of clear STICKY discharge from my vagina. My health anxiety has been increasing after almost 2 years of being locked in the house and alone almost all day. This is causing me to shake all over even with my anxiety meds. I tried searching but find articles on young women.
  7. No side effects from Losartan and my cough is gone!
  8. True that. I have this bad feeling like they're not even going to run the swab. I woke up thinking about that. It probably doesn't matter. Even if I have an infection... what's that gonna do, right? I don't really care if it goes up and wrecks shit (genuinely dgaf about my reproductive organs... have one kid, don't want a second). In the meantime, I'm bleeding again for no reason. Suppose I should be grateful it's not much and it probably won't last long, but it's the third time in the last month and... just... that's not normal pretty sure. Doesn't help that I'm also stressed out about work and wanna quit my job. Obviously not doing a good job at taking my meds. I feel like everyone hates me. I feel like I'm a failure, an embarrassment. I feel like the only safe course of action is to hide from the world. I wish I could erase the entirety of the last two weeks.
  9. Last week
  10. That is good news, so at least you know the diagnosis is correct.
  11. Well the only good news on that front is two surgeons looked over the reports and both shared the same sentiment.
  12. Any health issues are not fun and I have had some persistent ones myself and it can be very stressful at times.
  13. Unfortunately for a person with my anatomy and LS in the area I do (which is where it usually likes to be), a gynecologist is the correct doctor, though I have spoken with my dermatologist about it (another doctor that said it's not that bad - then at the time we didn't know what it was). Nevermind that I had some very grey (I mean like really really grey) discharge and apparently have some kind of anxiety brewing about topical steroids and vaginal infections... so I asked for a swab for BV which the gal tried to suggest would clear up from estrogen that she's been trying to push on me through the nurse that did the biopsy but isn't really found to be terribly helpful in LS (it's an adjunctive with really anecdotal evidence behind it that practitioners continue to grab anyways - the hormone that has weight behind it for LS is testosterone because of it's local effect on skin, but it's not used as often because most people with LS are women (it's like 10:1 women:men) and steroids work a hell of a lot better). Estrogen promotes epithelial growth, and can break up fusing (which I don't have, and can be prevented with plain ointment) and increases lubrication (the later of which isn't a problem for me esp when the LS builds blisters that pop (hence the ulcers), testosterone strengthens the tissue so it's more resistant to tearing. The damn thing is caused by T cells and antibodies to ECM-1 (ie autoimmune) and reduced testosterone receptors in the basement layers of the skin. Hormones did jack shit and she wants me to use them for longer than the initial coarse. Guess I should be grateful she gave me more steroids. Hopefully with some creativity (cut the damn things down with more petroleum for a lower dose) and a slower taper I'll finally be out of this nightmare. Which is like... why I don't even feel like it's worth it to go to another doctor about it who's gonna have to do an exam and I'm gonna through this bs again. As long as I have the tools, I've read both the US and Europe's gold standard guidelines for treatment, I know acutely the risks of steroid use (and how this condition effects some of those risks), and I know how my body responds to steroids and withdrawal. I'm gonna be able to better guide myself through that than any doctor. I mean... I'm gonna go. But fuck I don't even need this, but I need someone to oversee and prescribe treatment for the foreseeable future cus LS is lifelong when it occurs in adulthood (kids can have spontaneous remissions but don't always). I fucking hate this. I don't need blood tests or anything, I just need an appropriate amount of steroids for an appropriate amount of time (a little past the point that the inflammation is all down) and an appropriate taper (slow, step down) and management strategy (steroid-sparing agents like Tacrolimus, which I have from my derm and have been given some instruction on how to use with the steroids to keep the steroid dose as low as possible). Easy peasy, lemon squeezey... you'd think they'd like it when a patient does their work for them. *Shrugs*
  14. I would see a dermatologist as they are tbe experts in skin issues and would know what are your best options. When I had a skin infection and basal cell carcinoma, that is who I saw. Studies have shown that is who should diagnose skin issues.
  15. I think you need to rely on the surgeon. Another option is to get a second opinion.
  16. Met with the surgeon today. He stated that I am an odd presentation. He said that with how long I have had it and will no severity like true acute appendicitis, he wants to treat it with antibiotics first to calm it down, and then remove it. My main concern however, is that it's not very enlarged on the CT scan, and the CT scan did not include the pelvis, so he couldn't get a good look at it and I guess the lower bowel. So now I'm worried that maybe this is cancer. The surgeon really didn't seem to think so, but my blood work was all normal (including white count which would indicate an infection). I'm spiraling a bit.
  17. I don't know where else to say this. Medical shit is not what anyone wants to hear about... not that you want to hear about my shit. *** May be triggering if you have anxiety around skin junk or genital stuff. *** Last year I was diagnosed with Lichen Sclerosus - an inflammatory skin condition that has a predilection for genital skin. This was diagnosed via biopsy by a nurse practitioner. I've most definitely had this for 5 years. It showed up when I got pregnant, and was only on a tiny area but has since spread to my groin and thighs in the last year. I get ulcers on occasion and tested positive for HSV-1 ("cold sores") not HSV-2. I had an occurrence of one and tried to get into the gyno to have it swabbed. I've been tapering off the steroids, which resulted in a rebound flare (hence why I am looking at the area)... couldn't get in for a week, ulcer disappeared, ofc. The nurse looked at me, I got a look like I'm absolutely insane. She had to be reassured that this was diagnosed by biopsy (ie, yes this is definitive)... and came back into the room and told me it doesn't even look like I have Lichen, the area looks fine. It's ludicrous. I know I'm swollen. She'd know that too if she'd try to insert a speculum (which is not necessary and I don't want anyways cus OUCH... but just like when I came in I doubt she could find my cervix cus everything's too swollen to visualize). I think they think I'm crazy. I'm scared they think I came in aroused and that's why everything's swollen, like some kind of creep cus I'm queer. I hate this. I hate being me. I hate this body. I hate that apparently it's INVISIBLE - whenever anything is wrong with my body, it's just fucking INVISIBLE. It took me FIVE FUCKING YEARS to get someone to care enough to figure out what this is and now I'm told it doesn't look like anything's wrong WHILE IT'S FLARING? The skin is fucking white under the redness. Apparently that makes it look like nothing? Like some ridiculous mimic disease that pretends to be normal... or a fungal infection (I got three of those that aren't effected by even systemic anti-fungals, shocking!). I just want to be like "Yeah, sure, I'm not sick at all, I'll just stop taking all of my medication that I've struggled to get and let's watch me crash and burn". I tell my therapist I'm tempted to SI and quit my meds... she's concerned about me SIing even though like... isn't quitting my meds worse? Cus that would lead further to delusion and depression and pain? But hey, that's all invisible too so maybe that's not real either... eh? Ehhh??? I wanna bang my head on the wall like a child. I don't want this. I don't want to be like this. I don't want it to be like this. Nothing matters. None of it matters, right? If an infection doesn't matter, inflammation for no reason definitely doesn't matter. It's not destructive... yet... so who cares? I fucking care. It's my fucking body and I have to live here! Two different clinicians look and say it's not that bad. I needed a full month to reach ONE DAY of clearance. ONE FUCKING DAY is all I got! The area felt better than it has in YEARS. I didn't even apply the steroids over the groin and that cleared up too (and came back in force, bright, angry red rash). I'm going to another doctor in March. I'm TERRIFIED I'm going to be told again that it doesn't matter and it looks fine and have someone look at me like I'm completely insane. I'm terrified that I'm stuck with this... I'm never getting this part of my life back. Another point for my immune system, another thing for it to take away, another way for it to strip me of any shred of dignity... as if I ever had that at all. I want to recoil, to hide... to never see another doctor ever again... but I need them to write me prescriptions... because for the thousandth fucking time "I can't keep living like this". I just fucking can't. I would rather fucking die but that's not going to happen so... I'm just stuck. It hurts so bad sometimes I just want to cry. I've had clinicians explain it as the worst yeast infection they've ever seen. I know I'm not the only one with this condition and it isn't even that rare (1/300), but I feel totally and utterly alone with this. No one around me understands. No one wants to talk about someone's genitals (understandably so). I know I'll just keep moving forward but goddamn I don't know how to except through the general monotony of the day... floating around not even really here half the time because I'm just dissociating from my body to cope. It's not fake. I'm not making it up. I'm not lying. They might think I'm crazy... and fuck I wish that's all it were... I really, really fucking do.
  18. Hello folks, new to the site and also feeling flashbacks as this is the first time on a site like this since I was building cars as a teenager! I would like to describe my story from the past two months in hoping that I can receive advise and potentially be another source for someone else with similarities. I am a mid 30’s male, married, and have a few children (once you’re outnumbered, it’s just getting them there in one piece) (btw, I tend to make fun of myself), and have a little more than five years left before retiring from the military. I initially found hope from a site called BFS forums, but that one won’t let me register and I have found very similar, if not the same information here. Two days before thanksgiving was a normal work day for me, as well as at home. Went to bed at our normal time (I’m used to getting about 4-5 hours of sleep a night), but this night I had maybe the worst experience with the restroom of my life. It kept me up for hours so I think I got about an hour of sleep. I went to work like normal, this day being Wednesday and my duty day. Duty is duty so we’re used to being up long hours / getting woke up throughout the night. I think I got about four hours of sleep, maybe five. Thanksgiving day was a full day of activities, and ended with card games that lasted till about 0100 Friday morning. I had a couple alcoholic drinks and lots of food. Woke up at 0600 to send my in-laws back home. That’s when my right upper eye lid started twitching. We’ve all had twitches occasionally and I thought nothing of it, thinking I haven’t had any sleep and that’s probably why. The twitch lasted for a week, non stop. Then my forearms started feeling weird and progressed from that weird feeling to twitches. Like what I have seen in many stories over the past couple months, I googled “why is my body twitching?” I read about ALS and went into a panic. My whole body was twitching: inner ear, scalp, lips, arms, all the leg muscles, feet, and the ones that worried me the most were the neck, shoulder blades, and male parts. I noticed a weird throat pain, pressure feeling in my neck. I’ve never known what anxiety is, never felt it, and before this, I didn’t really know what stress was. I am a pretty fluid person with any situation and I tend to stay calm, that is until I experienced these feelings. I don’t drink coffee, or take any medication. I don’t drink energy drinks, just water and the occasional Gatorade. I was terrified (and still am) of the potential of leaving my family behind, and also realizing that I might not be as close to God as I thought I was (I’ve committed myself to this). I went to my doctor after many sleepless nights and he did a basic exam and referred me to a neurologist. He also sent me to get a culture swab because I appeared to have strep. I want to say that this is over a couple week period where I was in a very awful place mentally. I was in the present physically, but I could think of nothing else but my body. I know my family was being effected (they were walking on egg shells around me), and my normal desire to be as good as I can be at work was non existent. I didn’t care about anything else except for my family because it might be all over soon. During that terrible time, I felt weak, really weak. I was fumbling cooking utensils, felt the side of my face get numb and I swore it felt like drool was coming out (it wasn’t). I cried a couple times and thought that was because the disease has people randomly laughing and crying (so far that was due to my worry, because it hasn’t happened since). The strep test came back positive and I was put on an antibiotic. The following statement is one of the reasons I am very thankful for whatever guided me to join the service. I was able to schedule with the neurologist about a month out. I don’t know what the wait time is during a pandemic in the real world, but I thought that was pretty good. The problem was even though I knew that wasn’t a long wait, it was too long for me mentally. I was freaking out. The neurologist personably called me about a week and a half after scheduling and told me that she was making herself available for me the next week. What a relief! I went to the neuro and she was as professional as they come. She listened to my story and took massive notes on the computer. Then she did a full neuro exam. She said she saw no signs of a body effected by a nasty disease, but was very curious about the strep throat. She told me that she has seen several people in her office that simply twitch. As assuring as that should have been, it was very hard for me to accept for some reason. She said she wanted to see me again in a month, which I’m all about. I called her exactly a week after the appointment to describe how some of my symptoms changed. She still seemed not concerned but asked if an EMG would help me relax. I jumped at that proposition and scheduled right away. I am now in the present with my second neurology exam next week and an EMG the week after. I completed my antibiotics and the next culture swab was negative. After doing a ton of searching, I feel I’m at a calmer state. Still thinking about it but I’m able to eat a real meal without having the pit in my stomach. I’m still climbing roughly 30 some flights of stairs everyday, able to do the required amount of push-ups, can do a solid amount of pull-ups, and clock a little over 8 minute mile run. I’m constantly testing myself, mimicking everything I can remember from the first neuro exam, and I am throwing (playing) my kids around the room as normal (but still feel weak). All that seems to be pointing in the right direction from what I’m seeing on the forums. I feel my twitching has calmed down quite a bit, but still happens everyday. The thing that is worrying me, (and I know I’ll be asking the neurologist this next week too, I apologize in advance to anyone reading this and thinking why can’t he just wait till the appointment) is my throat still has this very weird feeling. For weeks it has felt tight, and there would be a lump feeling. Some days were more noticeable than others but the past few days has been pretty consistent. There is a noticeable pain with it as well, similar to strangling feeling? I’m trying to find the words as best I can. I’ve noticed I’ll belch a decent amount more than I ever remembered. When I’m talking, I can feel that lump thing doing odd things inside, somewhat effects how I feel it’ll sound. Everyone says I’m sounding normal, and I’m still able to put food down. I was able to schedule an ENT appointment for mid FEB. And the last thing that is on my mind is this left shoulder feeling like it has been through a massive workout when I haven’t done anything out of what I normally do. I’m hoping in a couple days it’ll feel not as weak and the burning sensation subsides. Im feeling more like my original self today except for the throat, which really hasn’t been awful today, just noticeable. I’m hoping this is BFS, as I’ll be glad to live with it if it means I can see my kids grow. Thank you to all the people who have posted anything on any site for people to receive hope with. If anyone’s interested, I’ll post the results of the exams as they come.
  19. Sub acute appendicitis. Meet with the surgeon tomorrow.
  20. If the first rule for anxiety is "how you think determines how you feel"......your issue is..... "what you eat determines what you poop!"
  21. First time I went on Tuesday it looked the same and that freaked me out, but went again and everything looked normal. Same with today. I think it was (knock on wood) from what I ate on Sunday.
  22. I’m copying below a post from the ALS forum, written by an ALS patient. He wanted people like yourself to read this before posting on the site. It is long, but very necessary for you to read this, especially towards the bottom about twitching. Pay particular attention to the ALS doctor who said “I have NEVER had a patient with BFS who progressed in MND. And I had a lots of MND (and BFS) patients in my clinical practice”. YOU DO NOT HAVE ALS SymptomsThe major initial symptoms of ALS are clinical weakness, inability to perform certain functions (failure), atrophy detected by a physician, and upper motor signs detected on clinical exam by a neurologist. Some people may have slurred speech. If you don’t have any of these, why are you here? Also there are other reasons for these findings so even if you have one or all it could be something elseClinical Weakness—ALS is about failing, not feeling. ALS is about failure—falling down, being unable to stand on your toes or heels, being unable to button your shirt, being unable to lift your hand, being unable to open a ziplock bag, etc. It is not about these things becoming more difficult. It is about these things being impossible… no matter how hard you try. If you can do normal things, but it is more difficult, you do not have ALS. If you used to be able to do 100 curls and now one arm can only do 50; that is not ALS. If you used to run 2 miles and now you can only run 1; that is not ALS. If you used to run 2 miles and now you can’t lift up one of your feet, you may have clinical weakness.It really does happen that something stops working all of a sudden. It is generally one muscle so it will not be a whole limb, but the movement done by that muscle is suddenly gone. An example is a calf raise. It won't happen. Think of it like your wifi signal. You are surfing the net, then signal is lost and you can't do anything online no matter how hard you try or how long you wait for a page to load. This is what happens to a muscle in beginning ALS it has lost the signal from the nervous system that tells it to work. First it is one muscle, then another ,then another so the things you can’t do increase. This is why you see progressive weakness mentionedSee also EMG, weakness and atrophyAtrophyAtrophy, or muscle wasting, is a symptom of ALS, but it is best judged by your PCP (primary care physician) or neurologist. If you are trying to judge it yourself, the atrophy must show a measurable difference between left and right sides, or between today and past measurements taken in the same manner (and hopefully by the same person). But remember, no human body is perfectly symmetrical and small differences are normal. Dents, dimples and other indentations in a muscle surface are common and generally meaningless. Also, atrophy generally follows clinical weakness / failureHyperreflexiaHyperreflexia, or overactive reflexes, cannot be judged by you. This determination must be made by your PCP or neurologist. Hyperreflexia is not uncommon and, especially if it is bilateral, is often meaningless. Speaking of reflexes, Hoffman’s sign is found in a number of healthy people so is not necessarily worrisome either. Speech and swallowing issuesMany visitors fear bulbar onset. Generally speaking the first symptom of bulbar is slurred speech that others notice because the tongue does not work correctly. Sore throat, scratchy voice, food getting stuck are not bulbar symptoms and should be addressed by your doctor as they may indicate another issue but are NOT ALS. Saliva issues occur late in bulbar disease and noting excess saliva is NOT a sign of bulbar onset. The slurred speech of bulbar onset is persistent not a one- time or rare occurrence and will be noticed by others. If you are not being asked "are you drunk?" it is a good sign!Complaints of difficulty swallowing and or a lump/ something in the throat are very common among our undiagnosed visitors. Please look up “globus” and learn that it is a very common complaint especially among the stressed.Special note of tongue twitches. First if you stick out your tongue it will twitch. Neurologists examine our tongues at rest if they are looking for tongue fasciculations and those fasciculations are persistent not an occasional twitch. If you have been trying to examine your tongue, stop! There is also a commonly repeated belief that tongue twitches are never benign. This is NOT true- they usually are benign. The source of this information appears to be an out of context quote by an ALS specialist. He had said that tongue twitches were never benign in his experience. He has since clarified he was speaking of tongue twitching in a patient already diagnosed with ALS. In his clarification he added that in the general non- ALS patient tongue twitching was most likely benignOther “Symptoms”—TwitchingIf you have muscle twitching and the internet says that is a symptom of ALS, pay attention. Twitching (fasciculations) is sometimes a symptom of ongoing ALS. It is seldom, if ever, a first symptom of ALS (especially if it is all over your body). Twitching is very common and is frequently caused by too much caffeine, Rx meds, fatigue, over-exertion, anxiety, stress, and many other common causes. If you have twitching without clinical weakness, atrophy or an abnormal neurological exam, your twitching is probably not from ALS, which is a very, very rare disease..This is taken from the post of a member who saw Dr Orla Hardiman a leading ALS specialist. "I asked her about contradictory information about fasics being a precursor of MND. Here is her answer 1. As you know, fasics are common in patients with MND. But we don't look for fascics to suspect MND, we look for weakness, atrophy or change in reflexes.2. Fasics themselves are no real indicator of MND or any other disease.3. In most cases, fasics are of benign origin.4. I have NEVER had a patient with BFS who progressed in MND. And I had a lots of MND (and BFS) patients in my clinical practice.5. In most cases PALS don't even notice fasics by themselves. Usually their spouse, or someone else is the first one who notices them."Check out Benign Fasciculation Syndrome (BFS) for the FAQ. Please note the forum administrator is no longer active so new members can not join. appears to be nonfunctional unfortunately.Also, see Twitching, false alarmPainIf you have pain, aches, tingling, soreness, etc., these point away from ALS. ALS is a disease of the motor nerves, not the sensory nerves. There can be pain in ALS, but it is almost always well into the disease process, when the muscles can no longer hold the joints together or when immobility has caused frozen joints, bedsores, etc.Other Issues - AnxietyAnxiety can be a real problem that can endanger your physical health. It is what leads many folks to this forum, but it is a self-fueling fire—the more anxious you become, the more twitches you will have, the more you obsess with perceived weakness in your arm or leg or hand, the more dents you will find… and the more you will become convinced you have atrophy. If you can’t stop using the internet to diagnose your problems, or if you cannot stay away from this forum, that should tell you something important about your mental health.AGEFor those of you who are under 30:The incidence of ALS is roughly 2 in every 100,000 . . . and of that . . . only 5% are diagnosed prior to the age of 30 . . . and the further away from 30 you are, the more diminished your chances.So let's do some numbers:2/100,000 is 0.002% chance (which is about the same chances of getting hit by lightning according to the Red Cross).Now let's take your age into consideration. Again, only 5% are diagnosed prior to age 30, so to get that percentage, simply take 0.002% and multiply it by 5% (i.e. 0.05). That gives a percentage of 0.0001% or a 1 in million chance . . . and that's at best. Again, the further away from 30 you are, the more diminished your chances".Please also take into account that a high proportion of young onset ALS is familial so if you do not have at least 2 blood relatives with ALS your chances are even less than above statistics suggest.FAMILY HISTORYHaving one relative with ALS does not significantly raise your risk of getting it. For more information read the sticky in the FALS subforum.EMGsDoes a dirty (abnormal) EMG mean I have ALS?EMG, properly done, is the gold standard test for ALS. But an abnormal EMG can indicate hundreds of other, non-fatal, diseases. So listen to your doctor.My EMG was done “too early”EMGs cannot be done too early. 70% of a nerves fibers die before you feel weakness. An EMG will detect that process long before you can feel it.Here is a simplified summary:1. ALS causes nerves to die.2. EMG detects effects of nerves dying.3. For ALS, muscles get weak and atrophy when they lose their nerves (no pun intended).4. Therefore a weak or atrophied muscle due to ALS will absolutely, positively show up on EMG. Clean EMG = No ALSSpecial note on assessing bulbar function: The most common areas EMG'd to assess bulbar function are under the chin or the sternocleidomastoid, and sometimes the tongue. If any of these sites were assessed , yes, you have been tested properly.However, an abnormal EMG does not necessarily mean ALS so a so- called dirty EMG needs to be interpreted by your doctor. There are many other more common things that will cause EMG changes and some of those findings will be PART of what is seen in ALS. Listen to your doctor and do not try to second-guess him/her.Why do I see people saying their EMGs were normal when their ALS started? For those people who are accurately reporting their diagnosis the answer probably is that their ALS started in their Upper Motor Neurons and then progressed to the Lower Motor Neurons. Upper Motor Neuron disease is found on clinical exam so these people were not told they were fine. They had an abnormal exam and the neurologist knew there was something seriously wrong. If your exam was fine ( or just some brisk reflexes which are normal in many cases) this is NOT you.Another EMG question that is frequently asked is if I have ALS in one location but the EMG was done elsewhere in my body would it still show? The answer is maybe, however if you are having symptoms in several areas and the neurologist only tests one if that is negative that is sufficient. There is no need to EMG every muscle that is symptomatic.You must also realize the doctors know their anatomy. Just because you see/ feel something in one specific location does not mean that is exactly where the needle goes. It may be above below or surrounding. If you have symptoms only in your left hand it is possible that an EMG of your right foot would miss something. But if it is your left hand and they examine that extremity don't worry.
  23. I have seen a reddish type color in my stools when I ate beets.
  24. Welcome to the forum. I have known 2 people who have had ALS in the last 5 years. One woman was 62 and passed away in December 2020. The other was a man who was 72 and passed away in late 2017. Both of their initial symptoms were slurred speech, and they had no twitching. Try to also remember ALS is an extremely rare disease with only 5,000 new cases per year diagnosed. Compare that with heart disease and cancer and there is no comparison. I would not worry.
  25. Hi, I’m a male, I’m 40yo., since October, I’ve been having fasciculations in my body. Some cramping and tingling as well. In early December, I went to a neurologist for nerve testing, EMG and a clinical assessment. The neurologist was a professor and the associate Dean at the University of Vermont. So he wasn’t some slob. The paper work he sent me was normal. There was no sign of anything wrong. He diagnosed me with BFS exacerbated by anxiety. I do have underlying anxiety. I still get twitching, tingling and cramps. It has not gotten worse. I still have no weakness or atrophy that I know of. The twitching occurs in my calves, toes, hands, stomach, back, shoulders, buttocks, neck, jaw, eye, thighs, and feet. It happens when I’m at rest mostly. However, I have read 3-4 studies where people who’ve been diagnosed with BFS develop ALS like year later. In some cases, even two years. And several sources I’ve read state that doctors should wait to diagnose 2 to even 5 years for BFS due to the lack of understanding of the condition. There seems to be two schools of thought here. The first says that the twitching in ALS is a result of the dying of nerves having already occurred. This is NOT the consensus though. And some experts believe that twitching can be a precursor to weakness and atrophy for an extended period. In your opinion, what is my risk level here and what do you think about the information I’ve provided. Obviously, I will follow up.
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