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Showing content with the highest reputation on 01/08/19 in all areas

  1. 2 points
    I know we shouldn’t google but I found this to help calm some nerves, even mine: https://scarysymptoms.com/2016/09/top-10-muscle-twitching-reassurance-rules/ https://scarysymptoms.com/2015/07/twitching-muscles-als-and-beating-fear/ https://scarysymptoms.com/2015/06/muscle-twitching-is-it-als-anxiety-or/ https://scarysymptoms.com/2012/01/overcome-perceived-weakness-with-these/ https://scarysymptoms.com/2012/09/perceived-weakness-vs-als-weakness/ https://scarysymptoms.com/2012/01/twitching-muscles-als-panic-great-tests/
  2. 2 points
    I went to my PCP today, told him I was still suffering from anxiety of thinking I had A^* of course he knows my history of being a hypochondriac. For the first time and I’ve known my doctor for quite some time he had told me his father had passed from ALS. So right off the bat I knew that he knew what to look for as far as symptoms. He said anxiety is very powerful and can make you feel awful and make you feel like your sick when you aren’t. The twitching all over body like @Holls said is caused from anxiety, he said the twitching and other symptoms in A*^ doesn’t just stop one day and come back to stop again. He told me once the thought of A^* is completely out of my head the twitching will gradually go away. He put me on Zoloft to take for a month to help me with the anxiety and once I’m more at ease I can come off. This forum really did a lot for me as far as accepting my HA and trying to help myself for it. Yes I’m still twitching and I know it’s caused from my HA I’m not going to beat myself up over it anymore. Again thank you to those who reached out to me and gave me the best advice they can during my struggle. Probably going to stay off for awhile to help ease my mind and I wish you all the best 🤙🏼🙏🏼😉
  3. 1 point
    How to Walk Yourself Through a Panic Attack Is there anything you can do this very minute to control panic? Anything you can do on your own that can offer rapid relief from the agony of pain and anxiety? Yes, there is! The "quick tips" in this article are based on proven principals from the field of anxiety management and can be surprisingly effective, offering temporary relief to "tide you over" till you can seek out a more systematic attack on your anxiety. Use them the instant you sense the first curling sensation that says "panic" and you may even be able to stop your panic before it starts. First and foremost, be aware that a panic attack can't hurt you. It isn't dangerous, and it doesn't mean you're crazy, no matter how it feels! In fact, panic attacks make biological sense--even though they may feel completely senseless. You might think of your body's reaction to a minor threat as though it's a major emergency - the result of an exquisitely sensitive nervous system, possibly combined with early life experiences that may have taught you to overestimate the likelihood of danger in different situations. During a panic attack, your body reacts as though you're in danger, releasing adrenaline and noradrenaline to prepare you to fight an unknown enemy--or to run for your life. This in turn produces a host of alarming sensations--a pounding heart, an urge to flee, difficulty thinking straight and feelings of impending doom. The problem, of course, is that during a panic attack, the body's alarm system kicks in when it's not needed--not when you're facing an attacker, or a natural disaster, but when you're giving a talk in a course you're taking, or sitting quietly in the classroom. And though you may feel as though you will, you won't faint; you won't have a heart attack; you won't do something crazy or out of control. And you won't die. Reminding yourself of those facts can reduce the frightening sensations of panic. More at the link here http://www.exitsupportnetwork.com/recovery/panic.htm Thank you Jason for sharing! This post has been promoted to an article
  4. 1 point
    I’ve been reading a lot of health anxiety stories on here especially about ALS and I felt like maybe mine could be helpful to someone so I thought I’d share. This is a long story so to sum up if you don’t feel like reading: Symptoms: -heavy legs -foot cramping -twitching -perceived weakness forearms, wrists, hands, ankles -tongue twitching, perceived slurring -maybe some coordination issues -possible thenar and calf atrophy (disproven) None of these happened at the same time, kind of episodic. Saw 3 doctors. None thought als. Had emg and NCS. This is over a period of about two months. Spoiler alert: I do not have ALS. I have anxiety. Full story: I’m a 33 year old happily married mom of one, and I did not have a history of Health Anxiety before this event unfolded. I’ve always been type A, a worrier, and probably have always had some degree of General Anxiety Disorder. However, it never really affected my life in a negative way - well maybe it affected others in a negative way lol. Probably the worst case example would be my fear of others driving, which could be explained by past car accidents in which I’ve been a passenger. On Halloween day (2018) I had a fibroadenoma removed. We knew it was benign, but it hurt and I wanted it gone. It’s a simple surgery, but you have to go under. No problem, I’ve never reacted to anesthesia before and as a mom I’m looking forward to a solid nap. When I woke up, I felt this strange heavy sensation all over. Not alarmingly heavy, just a new sensation I’ve never experienced. It was like I was wearing lead around my legs. I freaked for a second but I walked out of there, so I thought “how bad could it be?”. As the days go on I notice my legs are still experiencing the same heavy sensation (to a lesser more manageable degree) especially when I run or get out of a hot bath or shower. Five days post op - I start to google. Go on, enter “heavy legs” into google. There’s some benign things and then there’s MS, guillan barre (which I knew it wasn’t), and some other more serious, attention grabbing things like myasthenia gravis. I don’t freak out though, my follow up with my surgeon is the next day so I just resolve to bring it up then. The next day I bring it up with the surgeon and she just kind of shrugs her shoulders and is like you’re fine. She didn’t examine me or ask me any other questions. Okay cool lady, but still not cured. I wait a few more days to see what happens and maybe it’s subsiding, maybe it’s not, but I decide (based on hours of relentless google research) that I need to see a neurologist so I could either let it go, or do something about it. I don’t have a GP at the time so I go see an urgent care doctor to start the process. She’s not very helpful. She can refer me to a gp who can refer me to a neurologist. Okay, fine. I ask her “do you think this could be MS?” I expect her to tell me how rare MS is and that it probably isn’t the case. She doesn’t. She says that MS, for some reason, is more common in this area and that maybe it could be - but that “MS is weird, and ALS is weird.” I swear I feel my eyes getting wider like I’m in 1950’s cartoon. My heart beats faster and I start to sound hoarse. “What?” I ask. She just shrugs. Did she just suggest ALS? Suddenly I forget my MS concerns completely. I know about ALS. I know about the destruction and the eventuality. But I don’t know about onset exactly, or what presentation looks like in the beginning. Of course I leave the office in tears. I have a son, she mentioned a terminal disease. Why would she say that? I’m not weak? Am I? Did she think I was? Maybe I am weak and that’s what this is. I go to the GP that day, the PA sees me immediately. I love them. She does reflex tests, looks me over. She says confidently this is neither MS or ALS. Probably a reaction to anesthesia but nothing neurological. But it’s too late for her reassurance. I’m internally panicking. It’s like nothing she is says is really going to matter. A few days pass and my heavy legs symptoms and the perceived coordination issues have mostly subsided. But I’m down the rabbit hole. I’ve been on als forums, als sites, googling peoples first symptoms and digging up their stories. I’m not tripping, dropping things, I can do cartwheels and pushups and run 5 miles. The worst part about this specific anxiety is all the testing. I find sites that tell me to walk down stairs on my toes backwards and all kinds of other strength tests. I do this over and over and over. I run, I jump, I climb. Over and over. Stand on one leg and do it again. Seeing if I fail at anything even once. My close and very fit friend comes over and I make her compare how many push-ups she can do to how many I can do. She sees I’m at the end of my rope and she obliges me even though she’s in her “I have a respectable banking job” clothes. We do about equal reps. None of this has any effect on how I feel. I still feel like something HAS to be wrong. At this point I can’t even narrow down the symptoms, some part of me is weaker than the rest but it jumps around. I try and tell myself I cannot possibly have this extremely rare disease - I’m too young, too active. Then I find the stories of young, active athletes. Their symptoms were so subtle. They were blindsided. I read and read and read. This has never happened to me before and I don’t realize I’m out of control. It’s like every piece of information I find will finally be the evidence I need that I’m fine. But I just can’t find it. Suddenly, I develop muscle twitching. It’s like the Fourth of July inside my calves after something as simple as walking up the stairs. My arms twitch after holding my baby. The muscles around my knees explode after squats. This is all really unsettling. I’m trying to keep control of my mind because I feel like this is taking over my life. Later, I realize I can do more calf raises on my left than my right, I imagine my words start to slur, are my ankles weak? I notice dents in my thenar muscle on my left hand. Is that atrophy? I’m studying my body and testing it relentlessly. It’s fatigued in its entirety. My arms are burning all the time, my calves hate me. And then, came the depression. I’ve never been depressed before, I know that now. I think I always thought depression would mean I was sad, and something that with determination, I could just shake out of. But it’s not. I was consumed. I would cry all the time when I was alone, yeah. But worse, I wasn’t being a present mother, wife or human. I’m already like the worlds okayest mom and stuff, but I was quiet and kind of on my phone a lot looking up more ALS Information. The feeling was just that it was so hard to want to do anything, to get off the couch, to train for the half marathon I’ll probably not be running now because I just can’t even get up to do anything. I would watch my son play with his books and just couldn’t make myself get up to read them to him. I have to do something about this I decide. My GP wouldn’t refer me to a neurologist (because she felt like I wasn’t sick!) so I decide to see if I can find one that doesn’t require a referral. Guys, this is rare. But I found one in Austin. She doesn’t accept insurance which is how she probably keeps her schedule more available, but even with that it would still be a little over a week before I could see her. She’s popular and for good reason. Okay, no problem. I can be patient. But I’m lying to myself. I cannot be patient. I make the appointment but I also google for neurologists online that I could speak to, right now, this instant. I found a pretty cool page called “just answer”- this is not a plug for their site, but I want you to know the resource in case you ever get in the same position as me. I talk to a doctor almost immediately. I pay the extra fee for him to break it down for me. He is amazing. He never makes me feel like I have health anxiety, though he tells me that I do have anxiety. He explains to me about ALS, in great detail, and why I do not have ALS. I wish this guy could be my doctor for everything. He is so kind. I tell him my symptoms again and again and he maintains - this is anxiety. Because of his help I start to mildly relax. My twitching reduces, I have more strength than I realized and I don’t seem to have any issues completing tasks. It’s going to be okay. I’m not going to lie to you, I ask this guy several more questions highlighting other perceived ALS symptoms I may or may not actually have (I can’t even tell what’s real and what I’m projecting on myself at this point) and he has to reassure me several times. I spend a lot of money doing this but I don’t really care. He knows me by name at this point. A week passes and my in-person neurology appointment is coming up. The fatigue hasn’t really gone away. And I still worry that maybe something is going on that hasn’t been detected. So I go to the appointment. Guys, this is also expensive to do but worth it. So worth it. She’s epic. Her diplomas are on the wall, and one says something from the Mayo Clinic. Homegal has seen ALS a lot -I’m sure of it because you don’t train or work at the Mayo and not see it as a clinician. She’s sweet and doesn’t make me feel stupid. She listens to me for an hour. I cry a few times too. During the exam she checks my reflexes and examines me with a sort of patience I’ll never possess using a flashlight for fasciculations. I pass all the reflex tests and she explains to me what MS and ALS are actually like. Like we all know - failure. Progressive failure. It feels good in person to see this gal, to have her test me and not find anything, and then she offers to schedule an EMG at our ALS clinic just to chill me out. I take the offer, even though she thinks I don’t really need it and the soonest I could get in is January. I see her at thanksgiving so it’s a while away. But her insistence that this is not ALS soothes me. Temporarily. I know that sounds crazy. It is crazy. I’ve had a GP, online neuro and this very experienced and attentive neuro tell me I’m fine. Like not even a 1% suspicion. Why can’t I let this go. Because anxiety is a mental health issue. That’s really the bottom line. December passes really slow for me. I’m in the anxiety groups posting about little things I feel, asking about bulbar onset, trying to get more and more information to rule things out. I talk to the online neurologist again. He’s sweet and patient still. You do not have ALS, he says. Again and again in different ways. By the end of December I’m actually starting to feel better INSIDE. I’m running again, the twitching has stopped and any weakness I seem to have had has gone away. I consider canceling the emg but I don’t. Because I’m me. January 7th came and I go to the Neuromuscular clinic. This guy sees ALL the ALS patients in the central texas area. That’s millions of people. I later ask his assistant how many ALS patients they see. Maybe 100 a year. Maybe a few more or less than that. That’s literally out of MILLIONS of people. Texas is the largest state and central Texas is one of the largest regions. I think there are 28 million people in Texas alone and central Texas is more than a fourth of that. West Texas is small. A very very large region with a sparse population so ignore that on a map and most of the population is Dallas, Austin, Houston, San Antonio. I read a study once that put the ALS population in Texas around 1800 people give or take. That makes me feel better, selfishly. Before they start the NCS the doctor does another examination of me and asks me to go through my symptoms. I’m wasting this guys time and I know it now. But I tell him about the weakness and heaviness and the twitching but that it’s all kind of episodic now. He also doesn’t look at me like I’m stupid or crazy. Which is nice since I feel both of those things. But he does already know I do not have als. I can tell this because he has watched me untie my running shoes while standing on one foot to remove them and he nods and says “good, that’s very good”. He looks at the asymmetries I point out in my hands and calf and doesn’t even blink. Totally normal. His assistant, who is also a physician and is a very pleasant human in general does the NCS. The NCS isn’t exactly painful. It’s weird. My muscles jump around under his shock tool and there’s some hmming and ahhh’s happening. But at the end of the test, which I will remind you was uncomfortable but not painful, he’s very pleased with the response from my nerves and it relaxes me. The emg was actually less unsettling. There no shocking but I don’t really have an aversion to needles like some do. I mean I get Botox every three months people! Also, I had Kylie lips before she could drive a car ok? Lol. It was all totally normal. Come back if I experience any more weakness he says. And heads out the door. This guy is sure nothing is wrong with me. And this is the guy who sees people with stuff very wrong with them. Do I feel better? Maybe. Not really. Kind of. Sort of. Sure. I think we all feel like it could have missed something. I think we all feel like we know our bodies better than anyone. That’s anxiety. All this stemmed from what was probably a reaction to anesthesia, remember? Because I had a hard time remembering that. But I am learning to accept that this was just a hard few months of anxiety and many others in that clinic do not leave with that kind of result. They leave with a diagnosis. Maybe the worst kind of diagnosis. I hope me sharing this helps and at the least makes you feel not alone. Health anxiety is awful. I’m such a giving, loving person and I feel like during the time I was experiencing this I was selfish and tuned out. It changes you. The next step I’m going to take is to work on techniques to control my anxiety and realize when it’s getting out of control. I’m not making any resolutions about it. I’m just taking it one day at a time, which is all what anyone really can do. Xoxo.
  5. 1 point
    Did your dr diagnose you with that? If not, how do you even know what it is?
  6. 1 point
    Spazmom....thank you for that wonderful post and for sharing your experience and mental processes...I’m sure almost all of us here can relate one hundred percent to your thoughts and feelings throughout your “ordeal”’. I’m currently in a state of twitching and am trying my best not to fall the ALS worry hole...your post certainly helped! And if it makes you feel better, I absolutey LOVE the JustAnswer service and I’m embarrassed to think about how much money I have paid...but you can’t put a price tag on peace of mind! (PS...there is also an online service based in India called “Healthcare Magic” which I have used numerous times and you can consult unlimited specialists for $35.00 for a month....I’m not advocating consulting online docs necessarily, but for me they have been priceless to “fill in the gaps” between my doctor appointments!)
  7. 1 point
    It could be from your asthma, especially if you were exposed to a known allergen, but it also could just be a simple muscle ache. I have asthma, too. My asthma is both exercise and allergy induced.
  8. 1 point
    @Holls I feel like I’m not out of the woods on the als Anxiety, even if I’m out of the woods clinically. Which is insane. You should see the way I look at my left thumb every day, several times a day and that doctor was just like, this is nothing. Sigh. It’s so silly when you think about it, but it’s dibilitating sometimes.
  9. 1 point
    I had perceived weakness. Which is kinda how I ended up there to begin with. Specifically my right calf which he did not see any weakness in the exam. He also didn’t see any in my right forearm. He said come back if I have any other weakness - meaning come back if I thought I had weakness. After pregnancy and all that my body is really different anyway and I wasn’t exactly that great at working out. So maybe any perceived weakness I do/did have is related to that. That I like to sit and eat!! I can be pretty lazy.
  10. 1 point
    What type of symtons do you get with fibromyalgia? I am asking because I wonder at times if that's what I have.
  11. 1 point
    https://www.anxietycentre.com/anxiety-symptoms/chronic-pain.shtml Please read this article. And yes its perfectly normal just really annoying. Trust me I know. I have experienced what you are feeling, but my pain-ache is usually to the bottom lower side of my arms almost at the arm pits. Almost like a dull sting pain. With your muscles during anxiety being under "tension" your muscles feel weaker, or over-strained quicker - if I can put it that way. Tired painful muscles and joint some of the most common anxiety symptoms, not only in people with anxiety but people who is under allot of stress. Hope this helps. And once again its not ALS it's just your stress reaction working in weird body sensations. It's just intrusive thoughts triggered my anxiety sensations leading to irrational thoughts of ALS. I really hope you are feeling better today and always there to help.
  12. 1 point
    Whenever I go for a cleaning at the dentist my jaw will start shaking...like I cannot control it at all. My hygienist says it's normal and that hers does it as well. She said it was due to tight muscles and then having the jaw open for an extended period for the cleaning and the muscles get tired. I think I clench my jaw at night so that definitely does not help. So perhaps muscle tiredness is what you are experiencing?
  13. 1 point
    I got something similar once and was like "Um...what?" My gf, who has PCOS, looked at me like I was weird and said "I get that every month before my period; you don't?" So at least for some folks with PCOS, it's normal.
  14. 1 point
    Talk to your doc. But it sounds like you've basically been cleared. If so, seek help for anxiety.
  15. 1 point
    My daughters is like an ache. A lot of times in her shin. I had growing pains when I was a kid but remember them in both legs so maybe that's why it freaks me out... 🙂
  16. 1 point
    That's awesome news! I hate to hear that about his dad but he did know it up close and personal. Agree.. twitches might not leave for a good week or so.. so don't get worried if they aren't gone tomorrow or the next day. It takes time..hugs.
  17. 1 point
    @Spazmom congrats. I’m happy for you, and yes I think you should. It will give more people of ease of mind honestly and instead of checking “A” forums they can come here and learn. Do it
  18. 1 point
    Hi JD, Youve had all the testing and expert evaluations to rule out serious problems, yet it appears you haven't treated the diagnosis you did received..anxiety. In 17 months you'd be dead or terribly disabled, so you have to put that thought away. Lots of similar posts over the past few months. Might want to read them instead of Google. Everything that needs to be said to you will be found in those posts. Please invest in therapy, for the sake of your wife and darling baby, if not for yourself. Bob
  19. 1 point
    She was adamant that what I have is benign fasciculation syndrome but is going to do an emg next Monday so I can have peace of mind. Said young people come to her office once or twice a year with the same symptoms freaking out that it’s something bad.
  20. 1 point
    Thanks guys ❤️ I meet with the surgeon in about two weeks, so I'm hoping he has good news for me and agrees with my endocrinologist that it likely only needs surgery, potentially radioactive iodine, and then I'm done with it for the rest of my life. The testing done on it said the chances of recurrence in this particular tumor (they did some kind of genetic test or something? I don't really know what, but the results I can comprehend seemed encouraging) is extremely low, so hopefully I just need to get rid of it once and then I'm done with it. It's probably the follicular variant, I think (again, a lot of these tests are in medical language I don't speak!) which has a pretty high cure rate in younger people (<45). It's not the one people usually think of as "the good cancer" (that's papillary, the most common; I WOULD get a weird one!) but it's better than the other possibilities by a mile. I feel like I should be more anxious about this but unless they're wrong about which type of cancer this is and it turns out to be lymphoma, medullary thyroid cancer or another rare but serious one, I believe my doctor that it's probably not going to be that bad. With all my wacky estrogen levels, I'm still more worried about other cancers I may get down the line!
  21. 1 point
    I get this all. the. time. It’s unnerving, even though I’ve been to the dentist a thousand times and he’s said nothing about loose teeth. I know I’m fine, but the sensation always makes me jump. I don’t grind my teeth, but I do clench my jaw, which is similar. Maybe that has something to do with it.
  22. 1 point
    ADHD and autism are so similar it can be hard to differentiate - eventually I think they'll end up being classified as different forms of the same thing. (ADHD people fixate on certain things or topics just like autistic people, which a lot of people seem surprised by! @enidoreilley Your son sounds awesome though - of all the things to be fascinated by, the deep sea and bioluminescence sound way more interesting than boring school stuff. Have you ever seen flashlight fish in an aquarium? They don't seem like they should exist on the same planet as us! There is or recently was - not sure if it's still open - a terrific exhibit on biofluorescence at the American Museum of Natural History here in NYC, and there's some great video tour footage of it on their facebook page, hosted by a marine biologist who answered viewer questions. If you go to their facebook page and find the videos section, it should be there, if you think it's something he'd enjoy watching!)
  23. 1 point
    The thing is...You can't trick your mind. Your mind knows what you are doing. If you tell yourself that it is anxiety and expect it to instantly go away it won't happen. Most of our issues are from tension. Tightening up our muscles in our problem area of choice. Be it chest if you have heart worries or stomach if you have digestive worries or head and neck if you have brain worries. If you try to just trick yourself into being okay it will not work. Even if you loosen your muscles up, they still need time to go back to normal. Which could take anywhere from a day to a month to a couple months. Depending on how bad you are. When you don't see instant results you will get worried and tense back up and the pains will come back, if they ever leave at all. You have to heal your mind before you heal your body. Trust me on that one.