Gilly

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Everything posted by Gilly

  1. I'm living in the twilight zone tbh lol My husband died in 2016, since then I just take it one day at a time but things are starting to look up.
  2. I agree with Bobnnat, no surprise there angrry You know I have no colon anymore but I know that pain, have it now. You know the power of the mind... We've talked about this many times, you're a pro at this! That pain will vanish when you get a clean scope! I know you know this, keep hanging in there as always!
  3. Sorry for the downtime everyone! It is all in a really good cause for the site, all will be revealed pretty soon but don't worry (yeah right) 😉 A change and a lot of improvements, we are not going anywhere!
  4. Yep, all the time. I'm a twitcher and have been for several years. Random whole limbs, areas, odd places you don't think you can twitch. No ALS, still alive and kicking (and twitching) ☺️
  5. That is really, really great to hear Diane. I am very happy for you! Thank you for coming back to update us. We need more of these types of posts as we all know factually, there are millions of people who are living happy, healthy lives and Dr Google failed
  6. Does the thought of actually vomiting when you are out even more anxiety inducing? Emetophobia I became agoraphobic over a constant feeling of nausea which was a continuous vicious cycle. I'm 'complicated' it was all related to PTSD but yes this is quite common
  7. Hi Thrufaith As someone who has an autoimmune disease and is also a 46 year old women I will tell you HORMONES! They only need to be a little out of whack to cause so much distress. Oh boy have my legs throbbed and hurt at times, knees, thighs, shins, you name it... and I know 100% it’s not autoimmune because my last flare was in 2005! Pregnancy and being a new Mum is huge on your mind and body, go easy on yourself. Try epsom salt baths !
  8. Far too many times to mention. In my experience you handle it, you don't have time or energy to be anxious. If you are going to suffer psychological effects, it will come later. Again in my experience
  9. Hey hun, yes oh my yes I used to have this every day too. 100% stress and tension. Keep at the massage and relaxation tapes, have you got any epsom salts? I'm certain having epsom salt baths is what helped with my tension and burning sensations, it would start to come back if I ran out of salts. Might be worth a try? Magnesium spray can help too
  10. That's great Holls! Have you not seen this beast of a list?
  11. Hey Zippo, good to see you. Welcome back
  12. Very common, and it can get super crazy the older you get, oy! I'll be 46 at the end of the month and I just got my period, on day 18 of my cycle. It happened once last year, and it happened in January. In between it goes back to normal. I had to go running into town for some 'products' because I wasn't prepared. Fun times, NOT!
  13. The wax like substance is definitely the suppository, 100% Before I had my colon removed I had anal stretches and I had to insert metronidazole suppositories every night. I hated it, mainly because of the greasy, waxy icky stuff that would come out when I went for a BM The blood is explainable by a hemmy and also a fissure, those peksy things can really bleed and constipation and straining can open a healing one up quite easy. Trust your doctors
  14. I'm so very sorry to hear you are going through this but I absolutely LOVE your attitude towards it! I'm a survivor of a few major surgeries myself, they came before the anxiety for me, for the most part but they definitely still motivate me forward. The very best of luck, I have great admiration and trust in surgeons I'm sure it will all go well and then you can recuperate and thrive.
  15. It was a crazy time intro! I remember chatting and seeing you about on AZ. GG banned any talk of anyone who was banned, my name for some reason was censored, as was Teeps. I literally did nothing wrong at all but was just cut off along with others. I went to bed a member, woke up banned and Teeps had created a new site and put it in my name. I never wanted, or intended to leave AZ. I think it's ridiculous to be honest, how he didn't allow use of other sites or talk of them. Like the internet isn't HUGE. It became evident what was going on when about 30 members were banned annually, and they would trickle in and explain what happened, all too familiar. He was controlling the flow of membership for cost purposes. Not the worst thing in the world, just when your members suffer anxiety and can rely on it, it seems a bit sucky.
  16. I have just had/having a bout too which is very unlike me. Must be something in the air, maybe the weather changes or the unrest going on in the world. We're sensitive souls us anxiety sufferers, I think logically it's perfectly understandable but oh don't we have to jump to some drastic scenario? Yup! lol
  17. Trust them Maddy, believe them, they did not miss a tumour or anything. Don't underestimate what muscle tension can cause, the pain, tingling, numbness and burning, twitching and more. It can all be tension/posture which anxiety can really cause. Blood tests wouldn't miss bone cancer either. If you can't get a massage try soaking in epsom salt baths. I've been there, I had awful upper back pain, twitching and burning and all kinds of crazy. Epsom salt baths, and swimming helped me a lot.
  18. Yes an ultrasound can confirm a fatty liver. I have had 2 ultrasounds, both showed nothing to worry about but the first time, when the ultrasound was ordered my ALT's were so high the doctor freaked me out talking biopsies and transplants. I think in hindsight he was thinking out loud but lordy! By the time I had the ultrasound my liver looked better, reducing my meds had resolved the issue and it stated mild fatty liver. I think that was around 2006. I have blood tests every 12 weeks to monitor, because I have Crohns and take immunosuppressants that are processed in the liver and it doesn't like them. It's funny but last summer they were elevated a little more and I said to the doc, oh that will be the mozza sticks I have been addicted to LOL I ate better and they went down again.
  19. Talk to medicinal MJ experts. To avoid the panic you want a strain high in CBD and low in THC. CBD is what chills you out, THC is what gives you the high and psychological trips that can make the panic bad. Its also one of those things that if you expect to freak out you will freak out.
  20. Hi Helen, welcome to AC! I know it is easier said than done but listen to your doctor and try not to worry. So many things can do this and it is almost always minor, many many people experience changes in liver function, just without tests they don't know it. Medications, diet etc can affect them and as they are minor fluctuations that sounds like it is all it is. By all means discuss with your doctor. I have the same issue and it has gone on for years for me. Mild fatty liver, exasperated by medication. It's very, very common to have a mild fatty liver. I cut out a lot of junk food, and as well as drinking more water and Blueberry juice, that helped a lot for me
  21. I saw, after! It's good advice though, and I have flush envy lol (I have to see mine.. I poop in a bag)
  22. Welcome sscmack! That is not a bad contingency plan, rather than going to the ER, hang around the hospital and calm your mind in safe proximity. I'm one of those weird ones lol The hospital freaks me out! I'd rather sit in a state of sheer panic and think I'm dying for 2 hours than go to the ER. I have too many bad memories associated with the hospital. I have had crohns since I was a kid, the doctors there saved my life on more than one occasion but you still won't catch me anywhere near the place unless I really have to be there.....
  23. oceanlover I wanted to say this yesterday but I didn't want to freak you out or sound insensitive because I know all too well how powerful anxiety can be. I'm so glad you have decided to give it a go!! I lost my husband last year suddenly, after a very short illness. I'm living with the regrets. Over a decade of regrets that my anxiety and agoraphobia stole from us, stole from HIM. When he was in the hospital and we thought he was going to be ok he said "lets live!" I was so pumped and excited but it wasn't to be. Now I am trying to do it for the both of us and I've done great at times but it's not the same without him. Go enjoy and have a good time with your hubby, that is what life is all about It doesn't matter if you are anxious, you will still make great memories!
  24. Yep this, keep proving and in time the nagging fears will pass. I still twitch sometimes but not all the time and now I don't think I have a nasty disease anymore, not even that nagging fear.