Lolo95 1 Posted April 21, 2019 Hello, I need your help even if I know it's a little out of place. I am French so sorry for mistakes.Here is my story, I went to the Caribbean in July 2017 and I went back in August 2017. When I returned to Paris, I had a fever for no reason and she left in a week. I started having burns in the body and I thought I had a sclerosis in the plate. I went on the internet read articles and read all about als. it was September 2017, since I was reading this on google, I have fasciculations all over the body in a random manner (foot, calf, hand, face, stomach, back, shoulder, arm ...) they are 24/7 on my calves and arches. I saw a doctor in September 2017, November 2017, January 2018 and nothing appeared on the blood test. I decided to go see a neurologist in May 2018 and he did tests of strength and reflex, he told me that it was anxiety and gave me antidepressants. I took xanax, magnesium, multivitamins and I still have fasciculations all over the body every day. 20 months of twitching and I'm afraid this is a warning sign of ALS. I do not think I'm weak. What do you think ? I'm 35 years old Quote Share this post Link to post Share on other sites
Mark G 1187 Posted April 21, 2019 Hello @Lolo95 Rule of thumb. No clinical weakness first = No chance of ALS. You have had multiple tests which show nothing so the likelihood is that these are benign fasciculations intensified by your fear of them. Your mind can either accept that the twitching is happening and be ok with it (which usually calms the twitching down) or it can react fearfully and prolong and create further twitching. So it's definitely not ALS and is most likely anxiety. 1 Quote Share this post Link to post Share on other sites
jonathan123 2368 Posted April 21, 2019 Once again we come upon a post where they have Googled. After all the posts on here about the dangers of Googling symptoms we just don't seem to learn. SELF DIAGNOSIS IN ANXIETY IS DANGEROUS!!! With HA we want reassurance! We look for something that tells us we are OK in spite of being told we are by doctors, who we so often distrust. We are so open to suggestion. A child could lead us. Also, the impact of negative thoughts after Googling can cause major problems. In anxiety, and this is something else most find difficult, the body will mimic any symptom that enters your mind. Not always but most of the time. Part of us wants to run away from the feelings and emotions, and part knows it's all smoke and mirrors. All part of the magician's tricks he, Mr. Anxiety, plays on us. The more we allow him to trick us the more anxious we get. LET HIM DO WHAT HE WANTS. OK, so not easy, but by accepting all the feelings you stop adding fear to fear and thus perpetuating anxiety. Anxiety and fear are soulmates. Fear can exist without anxiety. You can be very afraid of something, and Nature will allow that fear to protect you from harm. But anxiety cannot exist without fear. No fear no anxiety. The fear in anxiety is not normal fear. It may begin that way but instead of dying down when the danger passes it goes on and on until we can say we are suffering from an anxiety disorder. Let it all come and stop fighting and struggling with 'IT'. You can't win that battle because fighting creates more fear and more anxiety. 1 Quote Share this post Link to post Share on other sites
Bobnnat 496 Posted April 21, 2019 In addition to the above wisdoms, if this were ALS you’d be severely disabled or worse at 20 months. Let’s see; neuro with years of experience and thousands of patients vrs. Google.and self-diagnosis. Let’s leave it at that. Quote Share this post Link to post Share on other sites
Lolo95 1 Posted April 21, 2019 thank you for your messages. do you think it's possible to have fasciculation every day and randomly since 20 just because of anxiety. I am so afraid of ALS. I am 35 years old and I have always been anxious and hypochondriac. Quote Share this post Link to post Share on other sites
Bobnnat 496 Posted April 21, 2019 Absolutely! As long as you are anxious, especially about health, the fasiculations will continue.; a week, a month, a year or indefinitely. Most of us on this forum have been there. If you’re able to calm your anxiety, then everything else will fall into place. Keep concentrating on that. Quote Share this post Link to post Share on other sites
Lolo95 1 Posted April 21, 2019 thank you for everything. I feel that my body vibrates, is it a symptom of anxiety or a more serious pathology? the weird thing is that I vibrate and have fasciculations only at rest. I have nothing when I am active. I also have shoulder blade pain 😞 Quote Share this post Link to post Share on other sites
Mark G 1187 Posted April 21, 2019 It's all anxiety created. Anxiety provides the symptoms your suggestible mind fears Quote Share this post Link to post Share on other sites
Heal 13 Posted April 22, 2019 19 hours ago, Lolo95 said: thank you for everything. I feel that my body vibrates, is it a symptom of anxiety or a more serious pathology? the weird thing is that I vibrate and have fasciculations only at rest. I have nothing when I am active. I also have shoulder blade pain 😞 I have the same thing. I have the vibration feeling when I am lying down breastfeeding my child Quote Share this post Link to post Share on other sites
ZenCube 59 Posted May 2, 2019 I have them for three years now. No weakness, no ALS. Les fasiculations sans faiblesse clinique valent que dalle. Pense à autre chose lolo. Quote Share this post Link to post Share on other sites
Lolo95 1 Posted May 5, 2019 thank you for your answer, do you think that the weakness is recognizable easily? 21 months of twitching all over the body and every day and a monstrous fear of als 😞 Quote Share this post Link to post Share on other sites
Iugrad91 501 Posted May 6, 2019 If you had a neuromuscular disease after 20 months of twitching you’d be extremely ill with many other symptoms. Quote Share this post Link to post Share on other sites
clearhead 129 Posted May 6, 2019 @Lolo95 twitching with ALS always comes after clinical weakness and atrophy. Also, ALS twitching is so fine, most patients don’t even notice it. Quote Share this post Link to post Share on other sites
dcamc4 8 Posted May 10, 2019 I don't know if this is correct thread for this. I apologize if not. SO I have the occasional ALS fear flare up. Long story short about two months ago I hurt back and had numbness in surface portion of left quad (upper part). Slowly feeling is coming back. My muscles have always been slightly smaller on left leg bc of two ACL surgeries. Ive been getting this feeling in small area of upper quad like a small spasm or maybe a twitch its kind of odd. its like a faint squeeze an release. It happens throughout day. IS that what people mean by twitting and fasciations? I could be wrong but I think I read that ALS almost never starts in proximal muscled it starts in distal muscles, feet/hands...Is this accurate? Thanks Quote Share this post Link to post Share on other sites
Alex 8 Posted May 17, 2019 On 5/10/2019 at 4:55 PM, dcamc4 said: I don't know if this is correct thread for this. I apologize if not. SO I have the occasional ALS fear flare up. Long story short about two months ago I hurt back and had numbness in surface portion of left quad (upper part). Slowly feeling is coming back. My muscles have always been slightly smaller on left leg bc of two ACL surgeries. Ive been getting this feeling in small area of upper quad like a small spasm or maybe a twitch its kind of odd. its like a faint squeeze an release. It happens throughout day. IS that what people mean by twitting and fasciations? I could be wrong but I think I read that ALS almost never starts in proximal muscled it starts in distal muscles, feet/hands...Is this accurate? Thanks I have virtually the same symptom in my quad and calf sometimes. It feels like it wants to cramp but doesn’t. I also have twitches on my calves as well. So scared of ALS. I went to my neurologist twice and she said 100% I don’t have ALS and I’m making bad use of my time worrying about it. I’m debating and EMG test but have done so many tests already I feel pretty embarrassed. Do you run or are you active in any way? I am and I’m just wondering if I pulled or over exerted some muscles... Quote Share this post Link to post Share on other sites