Lolo95

20 months twitching als ?

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Hello,

I need your help even if I know it's a little out of place. I am French so sorry for mistakes.
Here is my story, I went to the Caribbean in July 2017 and I went back in August 2017. When I returned to Paris, I had a fever for no reason and she left in a week. I started having burns in the body and I thought I had a sclerosis in the plate. I went on the internet read articles and read all about als. it was September 2017, since I was reading this on google, I have fasciculations all over the body in a random manner (foot, calf, hand, face, stomach, back, shoulder, arm ...) they are 24/7 on my calves and arches. 

I saw a doctor in September 2017, November 2017, January 2018 and nothing appeared on the blood test. I decided to go see a neurologist in May 2018 and he did tests of strength and reflex, he told me that it was anxiety and gave me antidepressants. I took xanax, magnesium, multivitamins and I still have fasciculations all over the body every day. 20 months of twitching and I'm afraid this is a warning sign of ALS. I do not think I'm weak. What do you think ? I'm 35 years old

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Hello @Lolo95

Rule of thumb.  No clinical weakness first = No chance of ALS.  You have had multiple tests which show nothing so the likelihood is that these are benign fasciculations intensified by your fear of them.  Your mind can either accept that the twitching is happening and be ok with it (which usually calms the twitching down) or it can react fearfully and prolong and create further twitching.  So it's definitely not ALS and is most likely anxiety.

 

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Once again we come upon a post where they have Googled. After all the posts on here about the dangers of Googling symptoms we just don't seem to learn. SELF DIAGNOSIS IN ANXIETY IS DANGEROUS!!! With HA we want reassurance! We look for something that tells us we are OK in spite of being told we are by doctors, who we so often distrust. We are so open to suggestion. A child could lead us. Also, the impact of negative thoughts after Googling can cause major problems. In anxiety, and this is something else most find difficult, the body will mimic any symptom that enters your mind. Not always but most of the time. Part of us wants to run away from the feelings and emotions, and part knows it's all smoke and mirrors. All part of the magician's tricks he, Mr. Anxiety, plays on us. The more we allow him to trick us the more anxious we get. LET HIM DO WHAT HE WANTS.

OK, so not easy, but by accepting all the feelings you stop adding fear to fear and thus perpetuating anxiety. Anxiety and fear are soulmates. Fear can exist without anxiety. You can be very afraid of something, and Nature will allow that fear to protect you from harm. But anxiety cannot exist without fear. No fear no anxiety.  The fear in anxiety is not normal fear. It may begin that way but instead of dying down when the danger passes it goes on and on until we can say we are suffering from an anxiety disorder. Let it all come and stop fighting and struggling with 'IT'. You can't win that battle because fighting creates more fear and more anxiety.

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In addition to the above wisdoms, if this were ALS you’d be severely disabled or worse at 20 months. Let’s see; neuro with years of experience and thousands of patients vrs. Google.and self-diagnosis. Let’s leave it at that.

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thank you for your messages. do you think it's possible to have fasciculation every day and randomly since 20 just because of anxiety. I am so afraid of ALS. I am 35 years old and I have always been anxious and hypochondriac.

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Absolutely!  As long as you are anxious, especially about health, the fasiculations will continue.; a week, a month, a year or indefinitely. Most of us on this forum have been there.  If you’re able to calm your anxiety, then everything else will fall into place. Keep concentrating on that.

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thank you for everything. I feel that my body vibrates, is it a symptom of anxiety or a more serious pathology? the weird thing is that I vibrate and have fasciculations only at rest. I have nothing when I am active. I also have shoulder blade pain 😞

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It's all anxiety created.  Anxiety provides the symptoms your suggestible mind fears

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19 hours ago, Lolo95 said:

thank you for everything. I feel that my body vibrates, is it a symptom of anxiety or a more serious pathology? the weird thing is that I vibrate and have fasciculations only at rest. I have nothing when I am active. I also have shoulder blade pain 😞

I have the same thing. I have the vibration feeling when I am lying down breastfeeding my child

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I have them for three years now. No weakness, no ALS.

Les fasiculations sans faiblesse clinique valent que dalle. Pense à autre chose lolo.

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thank you for your answer, do you think that the weakness is recognizable easily? 21 months of twitching all over the body and every day and a monstrous fear of als 😞

 

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If you had a neuromuscular disease after 20 months of twitching you’d be extremely ill with many other symptoms.

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  • I don't know if this is correct thread for this. I apologize if not. SO I have the occasional ALS fear flare up. Long story short about two months ago I hurt back and had numbness in surface portion of left quad (upper part). Slowly feeling is coming back. My muscles have always been slightly smaller on left leg bc of two ACL surgeries. Ive been getting this feeling in small area of upper quad like a small spasm or maybe a twitch its kind of odd. its like a faint squeeze an release. It happens throughout day. IS that what people mean by twitting and fasciations? I could be wrong but I think I read that ALS almost never starts in proximal muscled it starts in distal muscles, feet/hands...Is this accurate? Thanks 

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On 5/10/2019 at 4:55 PM, dcamc4 said:
  • I don't know if this is correct thread for this. I apologize if not. SO I have the occasional ALS fear flare up. Long story short about two months ago I hurt back and had numbness in surface portion of left quad (upper part). Slowly feeling is coming back. My muscles have always been slightly smaller on left leg bc of two ACL surgeries. Ive been getting this feeling in small area of upper quad like a small spasm or maybe a twitch its kind of odd. its like a faint squeeze an release. It happens throughout day. IS that what people mean by twitting and fasciations? I could be wrong but I think I read that ALS almost never starts in proximal muscled it starts in distal muscles, feet/hands...Is this accurate? Thanks 

I have virtually the same symptom in my quad and calf sometimes. It feels like it wants to cramp but doesn’t. I also have twitches on my calves as well. So scared of ALS. I went to my neurologist twice and she said 100% I don’t have ALS and I’m making bad use of my time worrying about it. I’m debating and EMG test but have done so many tests already I feel pretty embarrassed. 

Do you run or are you active in any way? I am and I’m just wondering if I pulled or over exerted some muscles...

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