Mamaisanxious3 14 Posted August 3 Hi all! Some of you know I’ve been twitching for over a year now. I was sick with stress most of the year with ALS fear. I had an EMG and NCS back in April and it was clean. I still have the twitching all over even in tongue sometimes. Was the test done too early? I was feeling good for a while but I was dropping things the other day and it started again. Is dropping things normal? I feel like everyone says that it a sign. I’m trying to get out of this pond quick before it becomes an ocean thanks friends ❤️ Quote Share this post Link to post Share on other sites
AriaRen 18 Posted August 3 Hey! I have major fears relating to this aswell, but something that helps really is rationalising what you're thinking. Like, when you say you're dropping things, do you mean you dropped one thing, became hyperaware, and suddenly started dropping more because you were over thinking your actions? I'm terrible for that, distraction is the best thing for me. Lots of YouTube videos, PC games, phone calls to friends and family, roping my partner into walks against his will 😂 keep your mind busy and you'll get through this x Quote Share this post Link to post Share on other sites
Fishbomb 2 Posted August 4 The type of twitching you are worried about is a very specific kind caused by the disconnect between the lower motor neurons (neurons in the spine) and the muscle. By the time this type of twitching happens, the connection is already seriously damaged/non-existent and the EMG can not miss it. That specific type of damage is frequently picked up on during emg exams before there are noticeable issues. You simply can not get it "too soon". If the emg does not detect an issue, the twitching is caused by something else that is NOT what you fear. A reminder that the vast majority of people in the world twitch. The trouble for the people worried about it here is that they notice it more, focus on it more and assign a sinister reason for an entirely normal thing that happens to everyone. Anxiety amplifies twitching, which is just such a bummer of a response to a thing already causing anxiety! 1 1 Quote Share this post Link to post Share on other sites
jonathan123 2359 Posted August 4 Hi. Fishbomb. Welcome to AC. Absolutely spot on. I have said before, there are no medical machines that can detect anxiety. Many people get anxious and worry, but that is not real anxiety. It usually passes. Anxiety is when the fear and worry becomes chronic and interferes with our life. Your heart rate may well climb and you may experience all the classic anxiety symptoms, but there is nothing physically wrong with you to cause this. Anxiety can mimic any known disease, and even some we make up ourselves. If it's in your mind it can be experienced, and the more you read about it (Googling!!) the worse it becomes. Suppose I tell you that your symptoms are those of Mississippi swamp fever. (Don't look it up, it's not there). It's been planted in your mind and in anxiety we can become convinced it's that and the fun begins. You can't stop thinking about it. It can become an obsessive thought and be with you 24/7. That's chronic anxiety!! You have been checked out so accept what they tell you and try and accept that for the moment you will feel this way. It will NOT become an ocean if you ACCEPT what it is. Everyone drops things. I do often but that's me!! Have you noticed how slippery everything is. Even paper objects are so slippery these days. It seems everything has to be plasticised. Quote Share this post Link to post Share on other sites
MARC 368 Posted August 4 My friends wife passed away from ALS at age 62 in December 2020. Her first symptom was a very noticeable hand movement. It was like her hand was waving goodbye. She had no twitching. Quote Share this post Link to post Share on other sites
Doug97 5 Posted September 9 Look at how many threads there are from people worrying about twitching. Twitching is obviously normal. Quote Share this post Link to post Share on other sites
