Allison 0 Posted November 26, 2020 anyone sufferd Quote Share this post Link to post Share on other sites
MARC 431 Posted January 16, 2021 Try to remember ALS is an extremely rare disease with only around 5,000 cases diagnosed each year in the USA. Quote Share this post Link to post Share on other sites
Doug97 19 Posted September 15, 2021 If you have no objective signs of weakness (sensations of weakness don't count), then you don't have ALS. Quote Share this post Link to post Share on other sites
ZenCube 59 Posted November 15, 2021 I can relate, it has been my adversary for 5 years now and I fought it with all I got. It's a tight and deep rabbit hole, that obsession is a fucking bitch that's second to none when it comes to eat your life away. Don't feed it. Quote Share this post Link to post Share on other sites
jonathan123 2368 Posted November 15, 2021 3 hours ago, ZenCube said: "I can relate, it has been my adversary for 5 years now and I fought it with all I got. It's a tight and deep rabbit hole, that obsession is a fucking bitch that's second to none when it comes to eat your life away. Don't feed it". And where has the 'fighting' this adversary got you? When in a hole stop digging! The very fact that you fight and call 'IT' an adversary prolongs the anxiety and just allows it to go on and on. You are already in the 'fight/flight mode and all you do in fighting is to allow more adrenaline to flow through your body with all the accompanying symptoms. Calm acceptance! It's not easy, and no one can say it is, and it takes time, and patience is not something we have a lot of. You have created a battleground in your mind with two adversaries, You and 'IT'. No one can ever win that kind of fight. Quote Share this post Link to post Share on other sites
ZenCube 59 Posted November 15, 2021 It's a fight alright. One has force himself not to look up symptoms, not to double, triple check his strength, not to compare limbs against each other or in the mirror looking for 'atrophies' or 'dents' or whatnot. Plus, one has to force himself to maintain contact with family members, all that while still meeting the challenges of work, socialisation, parenthood, despite a constant state of almost pure terror that turns your brain into a slow, confused and scared thing... Rest assured it's a fight. Besides acceptance as you state it cannot come when there's no diagnosis. You just can't accept something which you fear but which hasn't been confirmed. Quote Share this post Link to post Share on other sites
ZenCube 59 Posted November 15, 2021 6 minutes ago, ZenCube said: double post Quote Share this post Link to post Share on other sites
davide.h 26 Posted November 15, 2021 43 minutes ago, ZenCube said: Hello. I am off of clonozepam Quote Share this post Link to post Share on other sites
Ironman 198 Posted November 15, 2021 2 hours ago, davide.h said: Hello. I am off of clonozepam Does your doctor know about this? Quote Share this post Link to post Share on other sites
davide.h 26 Posted November 16, 2021 1 hour ago, Ironman said: Does your doctor know about this? yes Quote Share this post Link to post Share on other sites
Ironman 198 Posted November 16, 2021 2 hours ago, davide.h said: yes I just wanted to make sure :) Quote Share this post Link to post Share on other sites
