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Found 2 results

  1. *first post* So in September I was hospitalized for high internal cranial pressure with a diagnosis of p-acne menegitis. I lost my eyesight and had an EVD tube placed in my head for drainage while I waited in the neuroICU for 8 days. my eyesight came back except for blind spots and peripheral damage in my right eye. Keep in mind I had several tests done. Two spinal taps 4 CT scans, 3 MRIs bloodwork done everymorning. The works. Since then I have suffered severely from HA. It’s almost constant. I pray a lot and I give all my thanks to God for me being alive and well enough to be a stay at home mom to my 9, 2 and 4 year old. I’m 23 and I have my two kids to raise and a step daughter. The thought of not being able to care for them is devastating. It all started with being terrified of MS, my hands contract and when this happens my thumb and usually my pointer finger will bend into the palm of my hand while remaining moveable but it’s more labored, also my thumb pad will twitch vigorously. It doesn’t last for more than a couple hours but will happen 3-4 times a week. My eyes twitch almost constantly. I see a neuro ophthalmologist and he said it was stress and that my eyes don’t look like those of someone with MS. HOWEVER, with the muscle aches, muscle twitching and my hands being strange I couldn’t help but worry. I eventually moved on from that and stopped worrying about anything all together. But then I started googling and landed on the ALS speculation. That troubled me for about a week then after reading threads and learning more about it I stopped worrying about that. But while driving and watching tv with subtitles I started noticing “double vision” mildly and now I’m back on the MS kick. I can’t shake this stuff. It’s so hard to move on from fear off illnesses now. Help!!
  2. I've noticed that sometimes when I'm talking to people for a while, especially if I'm in a group after a while everything starts to seem weird. Like I get this feeling that there's something off with my sight and my head feels a little cloudy. I then start to feel a little overwhelmed and feel the need to leave the conversation and go somewhere else because usually when I leave or get somewhere else for a little while the feelings go away and I feel normal again. Has this happened to anyone else before? And is this general anxiety or something else?