Mamaisanxious3

Bright Phoenix thank you. I will take a listen. Yes the neuron did a clinical exam, nerve conduction and EMG and even wrote in a message to me” NO EVIDENCE OF ALS” in all caps. Also my primary has told me three times. But, health anxiety sucks. Thank you for your time 💓💓💓💓💓 have a beautiful holiday.

I just love you holls 😭 thank you.

I have a compressed lumbar disc also that I am seeing a chiro for. I wish I would have ever googled this damn disease. Biggest mistake of my life. Honestly guys.

Do y’all think I can really trust the clean EMG? I’m worried that calling the neurologist will feel my fear more. I would be in bad shape after 18 months right? Y’all I’m ready to cry. This is killing me. I can’t even enjoy my family. I just want to cry guys 😢😢😢😢

Thank you Marc. I’m 31 and healthy- just not mentally obviously. My mistake was reading something on this forum that was probably said without research and it sent me into a tailspin. I know logically that back pain is common and not related to the “thing” especially if I have zero weakness. My physical state hasn’t changed in 18months- just my mental anxiety. It so hard I wish I had never googled this.

I do have a compressed disc at l/4 l5 that I am seeing a chiro for. I just got scared because abuse of someone here saying there is a connection me knees don’t buckle it’s more of lose ligaments from years of playing catching I can still work out rock climb play volley ball run, ect please I just need some encouragement, I hate this 😖

Should I be encouraged about the clean report from the neurologist? Should I put this fear away with no weakness? the words a bit of a stretch scare me badly

I’ve posted here before—- sorry. I’ve been doing pretty good with my anxiety. Been twitching for 18 months. Back pain for a year. Still living normal life ( do experience odd twinges and tingles) will also feel like sometimes my knees will slide forward when I walk on occasion( no one can notice this but me , I’ve never fallen, ect) also just had a Massage and the the therapist starts venting to me about her dad who just passed away from als……. I couldn’t believe it. Is this a sign?!?! i logged in after a long break and saw someone say they have read about als patients presenting with back pain. I’m gutted and freaking out big time. Can someone please help and reassure me ? Please? I had a clean EMG 8 months ago

can someone offer some encouragement? Since when do patients with als present with lower back pain as initial symptom???! ive had back for a year, twitching for 18 months and a clean EMG 8 months ago. im freaking out. Absolutely freaking out.

Hi all! Some of you know I’ve been twitching for over a year now. I was sick with stress most of the year with ALS fear. I had an EMG and NCS back in April and it was clean. I still have the twitching all over even in tongue sometimes. Was the test done too early? I was feeling good for a while but I was dropping things the other day and it started again. Is dropping things normal? I feel like everyone says that it a sign. I’m trying to get out of this pond quick before it becomes an ocean thanks friends ❤️

The point is you could do it! You were able to grip the shovel and dig. It took me along time to learn that the big three letter disease causes your muscles to stop working. And pretty quickly too. Go back and search some Of my posts here. People with first hand knowledge and who have had family with this disease will tell you the same. Carpal tunnel, stress, out of shape.... all reasons for what you are feeling. Don’t be sorry, just try and live your life with gratitude. Theoretically any one of us could get a horrible disease. But you don’t have it now and probably never will. Als is also about failing. People don’t really feel weak they just are. It’s also soooooooo rare. Most cases are older folks and the few that are younger people have been related to genetics.

Hot spots are normal too. I will get one in the same spot for a while then it migrates. The difference is when it migrates, it’s not leaving our muscles dead and unusable. I know how hard it is. Distract your mind. Overcome this I know you can!

Nope. Not ALS. Stop now! I’ve been twitching for 8 months. Started just like yours, after an extreme health freak out. ALS is failing not feeling. Stay away from any ALS forum. I twitch all over. Big, small, flutter, tap. Arms, legs torso, hand, ect.... ALS in someone under 40 is almost unheard of. And over 40 it’s extremely rare. Please try and stop now. I’m not trying to be harsh but this is a deep and scary hole to Fall into. You can do this. Get help from a therapist if you need it. Breathe!!

I have upper limb muscle burning and have had in on and off for years. Most likely neck / posture related. Neuropathy is common also. Als is not neuropathy it is the death of motor neurons. It doesn’t involve sensory neurons. Don’t stress. It’s about faliling not feeling. Search me and my posts .... I had a fear of this too, been twitching for months(8) . Will get weird tingles/ sensory stuff, burning. Over active nervous systems because we are anxious folks. You can do this. Put the fear away now before it’s too late!

I have tingles and crawling sensations a lot. We have anxious brains that focus on them. All bodies make noise. Try and not fear MS, though sounds so ominous, most who are diagnosed live near normal lifespan now a days. It’s considered a chronic illness and medicine has come such a long way in treating it. And for the record, I do not think that is what it is at all. Just trying to take a way power from the fear.

Yes!! When I was at the height M of my fear, I spoke weird, dropped things, ect... all because I was I was making automatic body processes complicated by thinking about them . Good point iron man

This sounds nothing like the disease you fear. Allergies maybe? Bulbar onset is very aggressive and even more rare than this very very rare diseases You’d be in bad shape by now. Try not to stress and replace your anxiety with something. Hang In there! You can overcome this!

Thank you Marc, not too serious, can be managed relatively easy. Thankfully.

I just wanted to say that I went to the doctor and it turns out I have thyroid disease. This impacts my muscles and twitching is really common. Wish I would have Pursued this more throughly before going on a 7 month als freak out. So many things cause twitching. Or nothing can cause them and they just happen. 99.99 percent of the time l- it’s NOT als!!!

Dr. Said it was just a shoddy node, nothing to be worried about! Common in groin. Thanks all!!!

Ironman what do you mean exactly ? Yes when I’m anxious my mind goes to als 😢 Thank you for your reply 😊

Thank you Marc, I know you have a lot of unfortunate experience with these matters. I do know that clinical weakness is different than perceived weakness… If im not mistaken , if I was clinically weak I wouldn’t be able to put my arms above my head (ie) etc....

I can button buttons, unscrew lids, pick up my kids, rock climb, lift weights...... sometimes I will have perceived shoulder weakness. Anxiety really sucks because logically I know I’m fine but these damn twitches everywhere make me think it could come at any time.

Thanks Marc. I’ve been in enough forums to know symptoms. I have no weakness. Just an intense fear I will because of twitching. I think I would be bad off after 7 months right?

In my case thinking about it every time it happens.......😢 but can everyone agree somewhat that I would have serious issues 7 months into twitching?😩