Ihadcancer 321 Posted August 30, 2023 The hand tremor I posted about several times remained and I began to walk slower and was not swinging my arm when walking. I'm very sad and discouraged. I see a 'Movement Disorder Specialist' Oct. 9th. The bank called me today thinking checks had been stolen because my signature has changed so much. I'd appreciate prayers. It won't kill me, but I'd rather not live 10 to 20 years as a burden to my husband and children. Quote Share this post Link to post Share on other sites
Ironman 193 Posted August 31, 2023 16 hours ago, Ihadcancer said: The hand tremor I posted about several times remained and I began to walk slower and was not swinging my arm when walking. I'm very sad and discouraged. I see a 'Movement Disorder Specialist' Oct. 9th. The bank called me today thinking checks had been stolen because my signature has changed so much. I'd appreciate prayers. It won't kill me, but I'd rather not live 10 to 20 years as a burden to my husband and children. Were you diagnosed? I will definitely pray. Quote Share this post Link to post Share on other sites
Ihadcancer 321 Posted August 31, 2023 The neurology PA and a GP dx'd but I'll see a movement disorder specialist on Oct 9th. She's the only outpatient neuro in 100 miles. I failed the 'tap test', walk slower than average and do not swing my left arm. I have also choked on food many times but cough it up. I really appreciate the prayers! Diane Quote Share this post Link to post Share on other sites
DeannaW 18 Posted September 2, 2023 So sorry to hear that, @Ihadcancer. One of the scariest things about it must be not knowing how your disease might progress. I hope the movement specialist leaves you more reassured than not. Quote Share this post Link to post Share on other sites
angrry 55 Posted September 2, 2023 Hopefully the specialist can provide a positive path forward. A friend of mine has Parkinson’s. He was telling me there is a new medication out now and he will be starting on it soon. Apparently it’s far superior to anything that has been available up to now. Quote Share this post Link to post Share on other sites
MARC 429 Posted September 3, 2023 I hope things work out in your favor. Quote Share this post Link to post Share on other sites
Ironman 193 Posted September 4, 2023 @angrry is right - there are a lot of interesting treatments now for Parkinson's, including treatments that help synchronize nerves. Quote Share this post Link to post Share on other sites
Wonky 92 Posted September 10, 2023 Please keep us updated on how you're feeling. We are here for you. Quote Share this post Link to post Share on other sites
Ihadcancer 321 Posted September 29, 2023 Thanks everyone. I saw a speech / swallow specialist who has horrible health anxiety and she helped me overcome the fear of choking. My newest 'thing' is a tiny muscle under the left side of my lip will spasm or indent and cause it to feel like my lip twitched. My anxiety is horrible and I won't see the specialist until Oct 9th. Good news is one of her specialties is treatment of certain tremors with Botox. Right now, you wouldn't notice anything but my hand tremor. PD patients need more dopamine in our brain. By time we're dx'd, we've lost up to 80% of dopamine. Quote Share this post Link to post Share on other sites
Ironman 193 Posted October 1, 2023 I am glad that you found a therapist. It's also really good that you are building up information about this - the knowledge decreases the anxiety. I don't know if Botox would be the thing to do for a lip twitch that may even go away, though. I wouldn't dwell on it...yet. Quote Share this post Link to post Share on other sites
Ihadcancer 321 Posted October 15, 2023 Yes, I have early mild PD. Too soon for medications. I'll be seeing a PD physical therapist on the 26th and they will write up info for my insurance company to get approval and time limit for visits. The neuro increased my Klonopin giving me an extra dose for bad days. I have to remind myself that I'm almost 73 so my lifetime is already much shorter than most of you. Quote Share this post Link to post Share on other sites
Ihadcancer 321 Posted October 15, 2023 On 10/1/2023 at 3:33 PM, Ironman said: I am glad that you found a therapist. It's also really good that you are building up information about this - the knowledge decreases the anxiety. I don't know if Botox would be the thing to do for a lip twitch that may even go away, though. I wouldn't dwell on it...yet. My eye began a huge twitch but an extra dose of Klonopin seemed to calm the facial tremors. Quote Share this post Link to post Share on other sites
Ihadcancer 321 Posted December 28, 2023 The small increase in Klonopin has helped with my hand tremor and almost 100% of my twitches. Physical Therapy is very helpful but my copay is $40 and I was going 3 times a week. I do have some days that I have problems walking or standing in line at a store. My PD PT says it's anxiety because my exercises measure leg strength. Most days I'm positive and should say my symptoms have not changed since Oct. 2021 except getting out of bed. Still NO meds except Klonopin. I see my specialist again early February. I turn 73 tomorrow. 1 Quote Share this post Link to post Share on other sites
