Meghansherf

ALS fear

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Hey guys! So lately I've been feeling like I may have ALS as ridiculous as it sounds. My brain has been in a fog, I have muscle weakness, I've been stumbling over my words and the icing on the cake...I stood up from sitting at my desk at work and my leg gave out. Now I'm freaking out. Please tell me somebody out there has had symptoms like this? I'm most concerned with my leg giving out. Thanks!!

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6 minutes ago, Meghansherf said:

Hey guys! So lately I've been feeling like I may have ALS as ridiculous as it sounds. My brain has been in a fog, I have muscle weakness, I've been stumbling over my words and the icing on the cake...I stood up from sitting at my desk at work and my leg gave out. Now I'm freaking out. Please tell me somebody out there has had symptoms like this? I'm most concerned with my leg giving out. Thanks!!

Hi. There have been a ton of als posts lately. 

I was an als worrier..almost two years in 🙄😥 i still sometimes get triggered... you don't have als. 

Stumbling over words is NOT als. 

Brain fog is not a symptom at all

Muscle weakness is not the same weakness in als. They have clinical weakness as in the fail and fall. Legs giving out isn't als.. 

I'd definitely let this fear go now and fast Bec it grabs ahold fast..

 

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Thank you for responding so quickly. Even just hearing reassurance like that makes me feel better. I'm a chronic HA worrier. My 3 biggest fears are ALS, ovarian cancer and brain aneurysms. I cannot seem to get over it!!! 

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Just now, Meghansherf said:

Thank you for responding so quickly. Even just hearing reassurance like that makes me feel better. I'm a chronic HA worrier. My 3 biggest fears are ALS, ovarian cancer and brain aneurysms. I cannot seem to get over it!!! 

I understand. I'm so sorry. 

Def put the als fear to bed. You have zero symptoms.. 

I had an ovarian fear.. my Dr was awesome, she told me it's very rare in women who are still menstrating. That calmed my fears super quick. 

Hugs. One step at a time. 

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I just couldn't get over my leg giving out. I was like ok this just confirms my fears 😑 I've spent thousands on trips to the ER, MRI's Drs apt etc on my health anxiety. I hate it 

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2 hours ago, Meghansherf said:

I just couldn't get over my leg giving out. I was like ok this just confirms my fears 😑 I've spent thousands on trips to the ER, MRI's Drs apt etc on my health anxiety. I hate it 

Yeah, the leg giving out confirms absolutely nothing. :)

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Just search twitching on this website and you’ll see how many people have twitching as a symptom of anxiety. I’d guess most of us have had it at one point or another even if we haven’t posted about it.

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I met with a neuro last week who did a physical exam/basic tests and said I'm perfectly normal but didn't do an EMG. Do you think I should stop worrying if the physical exam was fine? She was seeing me for my daily headaches I didn't tell her about my ALS fears so idk if the physical exam would be different 

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Yes you are fine. Several people who have visited their doc for ALS fears said the doc told them they could see ALS a mile away. It’s not subtle. And it doesn’t start with twitching. 

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46 minutes ago, Meghansherf said:

I met with a neuro last week who did a physical exam/basic tests and said I'm perfectly normal but didn't do an EMG. Do you think I should stop worrying if the physical exam was fine? She was seeing me for my daily headaches I didn't tell her about my ALS fears so idk if the physical exam would be different 

Yes stop worrying!!! A Dr said you are healthy. She is a specialist who looks for other things as well. She didn't see anything wrong..

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I honestly wish I could quit worrying. Believe me, I want to!! My muscles are cramping now lol I know how ridiculous it all sounds. My family laughs at me but to me, it's real 😔

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24 minutes ago, Meghansherf said:

I honestly wish I could quit worrying. Believe me, I want to!! My muscles are cramping now lol I know how ridiculous it all sounds. My family laughs at me but to me, it's real 😔

Your muscles are tense and tired from the worry and anxiety..it's normal. Mine even vibrsted.. hugs. It's going to get better

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5 minutes ago, Meghansherf said:

Have your hands ever cramped up?

 

youre so sweet thank you for your words of encouragement

You don’t have ALS. Yes muscle cramping, stiffness, soreness can all be attributed to anxiety.

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@Meghansherf hey! I’ve been having the als fear for a month now - started with muscle twitching. But my hands and feet have been cramping for a week and half now. I’m sure it anxiety. Are you still experiencing cramping?

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yes! It's gotten worse. I have cramping in my calves and thighs and occasional cramps in my feet. The left side of my body feels weak and my hand specifically feels very weak today :( The twitching is a tiny bit better since I've moved on to worrying about the cramping

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I have an apt next week to get an EMG just to clear my worries. ALS and ovarian cancer have always been my two biggest fears. I just need a clean bill of health so I can stop worrying. I'm really not the type to second guess test results like alot of people. I know that I'll be able to move on if I can just know I'm ok!

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1 minute ago, Meghansherf said:

I have an apt next week to get an EMG just to clear my worries. ALS and ovarian cancer have always been my two biggest fears. I just need a clean bill of health so I can stop worrying. I'm really not the type to second guess test results like alot of people. I know that I'll be able to move on if I can just know I'm ok!

I have one as well, mine is next Thursday. How about yours ?

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2 hours ago, Meghansherf said:

Mine is next Tuesday at 2:50. I can't wait to get it over with!

Mine is at 830 AM. I am also very anxious about it. 10 days to go!!!

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18 minutes ago, Cubanborn87 said:

Mine is at 830 AM. I am also very anxious about it. 10 days to go!!!

Please let me know how it goes!!! Even though I'm sure everything is fine :)

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32 minutes ago, Meghansherf said:

Please let me know how it goes!!! Even though I'm sure everything is fine :)

Absolutely, let me know how yours goes as well. I'll definitely give you guys an update after the appointment. 

I am pretty anxious about it, but at the same time I am ready to get it over with.

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