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  1. I have some of the same symptoms. The eye jerks and the headaches..along with others you don't have. My eyes have been jerking just like yours since 2012. When I became pregnant in 2015, they started rolling. Like when you see a baby that's really sleepy.. you'll see their eyes roll. That's what it feels like my eyes are doing, but my boyfriend says he can't see them roll. I just feel it. Such a weird feeling. Both happen much more when I'm tired and or in low light. I also see light rings..like when my eyes are closed and it's really dark..just for a split second. Neuro opthamologist wasn't concerned with the jerks or the rolls.. ordered an mri with contrast just to calm me but I never went thru with it. I was breasfeeding at the time and couldn't do the contrast. She literally said that she would buy me dinner if it (the mri) came back with anything. The light rings have started after my visit with her tho.. so I'm worried about them. When I wean my lil guy I'll see about getting that mri. How are you now? Have they gotten better or worse? Have you seen a dr and what did they say?
  2. I've seen reg drs, neurologists and one neuro opthamologist. One neurologist gave me an MRI in 2015, but I was pregnant so it only lasted 15 min. and without contrast. It was normal. Neuro opthamologist ordered one early last year. Admittedly she said she would bet it wouldn't find anything. I was too scared to have it done tho. So it's been awhile since it was actually ordered, but since I still have symptoms I just can't stop worrying. I decided to go ahead and have it done, so I can get past this. All drs have said they didn't think anything was wrong really. I've had this one symptom since 2012. I didn't have health anxiety then tho so I didn't even think anything of it, but when I got pregnant in 2015, I woke up one morning with a lump on the side of my neck, behind my ear. I googled, because at that time I didn't know I shouldn't. And of course I've been worried about a brain tumor since then. I've also had a weird headache since then. But the main symptom I've had since 2012 is eye jerks. Not twitching, but my eyeball(s) actually jerk back and forth up to four times at a time. And since I got pregnant, they started to roll a bit, in low lighting or when I'm tired. So, that symptom alone is quite enough to worry me. My eye doctor, the only dr so far, is the one that thought there might be something to worry about and sent me to the neuro opthamologist. I've been really good actually.. avoiding posting here. Avoiding googling, although I have been dying to. I think I'm overwhelmed right now tho. I want this to be over with so badly. Thanks...and sorry this post was really all over the place.
  3. Just wondering... Aside from symptoms I'm having..right now I'm worried about the contrast dye with an MRI I'm supposed to have. Actually, had to reschedule it yesterday because I wasn't aware I would have to 'pump and dump' for three days while breastfeeding. Was shocked about that. I'm worried enough about side effects and then they tell me I can't breastfeed. I have big issues with taking anything, I mean pills or injections. Feeling the effects of whatever it is is what scares me. Minor sensations to big side effects. If I can feel it in any way, I'm going to freak out. Knowing that it's bad enough for your body that they want you to dump your breast milk scares the crap out of me. Anyone else get freaked out like this? And if you've had the contrast.. have you felt it? How so? I'm freaking out enough as it is with the symptoms I'm having. (Scared of brain tumor....still.) Worrying about this is just too much for me right now. TIA
  4. Hello! Ive been meaning to create a post about anxiety sufferers and their social life, or rather the very likely possibility of the lack thereof. Unfortunately I've become quite withdrawn these past couple of years since my anxiety has really set in. Losing friendships either to their lack of understanding or my unwillingness to even leave the house. Either reason sucks. If you don't mind me asking, how have you fared thru your long term anxiousness?
  5. I'm actually having really good experiences with a counselor. I was seeing a physiologist for several months, paying more than double what I'm paying now, and didn't hear anything about CBT. Stopped seeing him because I didn't feel there was a next step... Like he'd done what he could, or cared, to do and that was that. Found a counselor for, like I said, less than half what I paid him and we started right off the bat with CBT. Im totally confidant with her, I feel she has a plan and knows exactly what the next step will be in the process. I look forward to seeing her. And her schedule is much more open as well. I know I probably just got really lucky in finding her, but don't give up! Give the counselor a chance at least... And def get the books.
  6. No response is not comforting... Can't help but think that it's my symptoms that keeps ppl from responding. Like, they really do sound that bad and ppl don't want to say anything. Which, if that's the case, that's fine. I couldn't take hearing it anyway. My neurology appointment is just around the corner.. I can wait. Positive thoughts till then.
  7. Had such a good day today. Hardly any pain, was able to think of other things, focus on different things other than just the headaches. But now... My head is hurting, and it just throws me into depression/panic at the same time. This pain on top of my head is not like any headache I've had before I got pregnant. It scares me.
  8. Hello, new here. I've been reading all the chronic headache and brain tumor posts out there. I can't seem to find anyone with the same symptoms as me tho. I've been to four doctors, all say I have nothing to worry about. I tend to think that they just say that because I'm pregnant and can't/won't do the tests needed to really know for sure. I have a neurology appointment on the 16th of this month. Seems so far away tho. But dreading it as well, thinking about receiving 'the' diagnosis is so scary for me. So here are my symptoms....About a month and half, two months after becoming pregnant, I started having these headaches. Didn't pay much attention to them, I've always had random headaches. Although these did seem different. One morning I woke up and felt a swollen and sore lymph node on my neck, almost behind my ear. Scared me because I've never had a sore one there before. So what did I do?? I googled of course. This was before I knew I shouldn't tho. So google tell me... If no sign of infection or injury, could be brain tumor or neck tumor. I have been in panic mode since then. Sorry, was supposed to list symptoms.. here goes. Pressure and pain in two places on top of my head, possibly slightly to the left. Small area, and doesn't last very long. Another pain is... like a pinched blood vessel or pinched nerve. These happen on the sides and back of my head. Small area and doesn't last long either. I also have, what I believe, is a tension headache. Starts in my neck and I feel up the back of my head and sometimes around the sides. Feels like I need to pop my neck really bad. I also get sharp pains behind both my eyes, doesn't last long tho. All of these symptoms are everyday, throughout the day. Middle of the night too. Seems to be worse at night time tho, maybe because anxiety is always worse then too. I am 23 wks pregnant. I know headaches are common in pregnancy, but these just do not feel like normal headaches to me. I really can't handle anyone saying anything like.. oh that sounds serious, you should have that seen about. To me it sounds very serious, i just can't get a doctor to believe me. I guess I need some reassurance. Any one have anything like this??