pinkynikki 0 Posted December 23, 2022 Hello, I am a 42 year old whom seems to be suffering from a lot of health anxiety. This was kicked off about 6 months ago after being diagnosed with atypical migraines after suffering headaches and feeling as though my legs were weak. 4 months ago things became worse and started to have abdominal and back pain for which my gallbladder was removed. Symptoms did not change and actually added difficulty swallowing. I also had unintential weight loss, bowel issues. Google has had me convinced I have ALS as I have muscle twitching, what I feel is atrophy, insomnia. In all my researching I also found Ehlers Danlos which my oldest daughter is now being genetically tested for. Researching the different types of this, as well as knowing it usually comes from a parent also has me worried. I should also add this all started after a dr at work told me my ekg was concerning for pulmonary htn. After many in depth tests I do not have that either. I have been to the hospital more in the last 6 months then my whole life to be told all is "normal" and most likely anxiety. I am just looking for some support in getting through all this. I have read all the ALS forums pretty much and like anything some things fit, others don't. It also doesnt help that during one of my hospitalizations a radiologist initially read my MRI as probable cancer with 3 other radiologists going back and completely disagreeing. Thanks for any support you can provide. Quote Share this post Link to post Share on other sites
MARC 425 Posted December 25, 2022 Welcome to the forum. My friend's wife was diagnosed with ALS and passed away at age 62 in December 2020. Another person I know of had ALS and he passed away at age 71. Neither had any twitching. My friend's wife had sudden weakness and the man had sudden slurred speech and was initially diagnosed with a stroke. Try to also remember ALS is a very rare disease with only around 5,000 cases diagnosed each year. Quote Share this post Link to post Share on other sites
Ironman 138 Posted December 25, 2022 Welcome, PinkyNikki! You have to be careful with Googling. We can think we have anything it tells us. Quote Share this post Link to post Share on other sites
