dcamc4 8 Posted July 1 Hi folks...I know there are many threads and I have been reading up. Just wanted to voice that I have been in ALS rabbit hole for past 48 hours. 47 year old male...Started with my right foot feeling tight and like I cant lift my toes as far as I normally can, thinking foot and shin is getting weaker and my shin muscle is sore. I started wearing flip flops about a week ago on and off, but still I go down rabbit hole....of course, I went to ALS rabbit hole thinking I want to watch my kids grow up. Not much else, just really sad as I have ben doin geeks for a while. This fear is intense. Sorry to vent, just wanted to get this out to a group I feel safe with. All the best to everyone. Quote Share this post Link to post Share on other sites
sTeaLth 221 Posted July 2 Man, I’ve been there. I spent the better part of a year in an anxiety storm from twitching and perceived weakness. That is what yours is too, perceived weakness. Your fear will make you see and feel what you fear because it’s your main focus. Take a deep breath. You fear having ALS. You don’t have it. The main thing to remember is this disease is NOT subtle at all. You either have it and can’t do things. Or you don’t. If you can hold a coffee cup and walk up stairs with no problem… then you don’t have it. Just thinking about a muscle too much can give you that perceived weakness feeling. Let alone allowing dread from that ever-present “what if”. Relax. You have anxiety, not ALS. Quote Share this post Link to post Share on other sites
Ironman 109 Posted July 2 @dcamc4There are a lot of factors with ALS. It would take a lot more than one foot weakness. Daily stretching wouldn't do any harm, though. Build your muscles. I do some running and don't want to stretch afterwards. I end up sore the next morning, especially in the ankles and lower legs. I get compliments on my calves, though - thanks, Dad lol. I just turned 47 a couple of weeks ago, sometimes I wonder about stuff like that. But yeah, it's anxiety. Eat right. Get exercise. DON'T cut yourself down! Quote Share this post Link to post Share on other sites
MARC 414 Posted July 3 My friends wife passed away from ALS at 62 in December 2020 and my clients brother in law passed away at age 71 from ALS in 2018. There symptoms were nothing like your symptoms. Quote Share this post Link to post Share on other sites
dcamc4 8 Posted July 4 Thanks folks. I am still feeling anxious bc my ankle is sore and feels "restricted" feeling tight and not loose, but I am able to move how I explained above still. Making small progress moving in right direction but having minor pitfalls but trying to move in right direction. Thanks for all of your patience and kindness and support. 1 Quote Share this post Link to post Share on other sites
