sTeaLth 238 Posted August 3, 2020 I brought up months ago that my tongue had some inflammation. That comes and goes still to this day. Thought it doesn't worry me as much these days. I am learning that checking myself in the mirror is as bad as googling symptoms. I have been looking and focusing on my tongue WAY TOO MUCH and so the issues never seem to fully go away. The newest thing is I am starting to notice little white(ish) patches near the back of my tongue on both sides. This may very well be normal as I have never focused on that area before now so of course... everything seems foreign. The bad part is that the only reason I am focusing on them is from a google search from months ago. (This is why we must never google search, results stay in our minds for a LONG time) There is no effect on anything, I can't even feel that stuff, I just saw it in the mirror. I went to the doctor for my throat spasm issues about a month ago and she looked at my tongue as well. She said it looked fine if not a bit dry. She even said it didn't seem inflamed which makes me think my mind is creating that as well. (The throat spasms have almost disappeared once I stopped focusing on them and believed they were nothing) I told her the dryness was because I was at the doctor and that gives me anxiety. I know I need to trust the doctor and move on, but it is hard some times. I have a dentist appointment on August 14 and I am scared that when he checks my mouth for any cancer signs, that he is going to mention my tongue. I wanted to post a picture of what I am referring to with my tongue and get some feedback from fellow sufferers. Do you guys have similar stuff or do I need to be concerned? Am I just looking for problems at this point? Someone talk me out of this chaos. Thanks. Quote Share this post Link to post Share on other sites
Holls 1505 Posted August 3, 2020 Hi!!! Okay. I had to look in the mirror and I have those too and my tongue looks identical to yours. I feel that yes... You are over analyzing. I had a mouth fear (bulbar) and it was by far the worst of the ALS fears usually mine was leg related... But when I went to the mouth.. oh my goodness. I don't think your fear is als related... I was just using that as an example as to why I went to my mouth during that anxious time period. That one almost drove me completely mad! I felt like my tongue was huge and it made it hard for me to eat because I was focusing on my tongue. If I focus on my tongue now. It's a strange strange feeling!!! It's just something that supposed to be involuntary and when we start messing with that with our minds we can do some wild things. I really think you had a small issue months ago and it went away but your focus didn't and it's causing issues that aren't truly there. I would absolutely trust your Dr. Your dentist will also confirm all is well... Sometimes when I have upcoming appointments to check on something I've been off and on worrying about it ramps up my anxiety so bad and I start focusing on that area again..maybe that's what is happening with your dentist appt? Hugs. I see nothing wrong and I agree with your Dr. ! You are okay. 1 Quote Share this post Link to post Share on other sites
sTeaLth 238 Posted August 3, 2020 I appreciate your input. No ALS fears. I kicked those long ago and realize how stupid they truly were. My worries are more cancer of the mouth. The funny thing is I have literally no symptoms. I feel like I am grasping at straws for "white sores" when really this is likely just normal abrasion from my teeth on the back of my tongue. If there was something there though I assume the doctor, who looked at my throat and tongue, would have noticed something and pointed it out. In fact, she said "it looks fine, I don't even think it looks more red than it should." She wasn't looking at these spots specifically but would have seen them if there was a concern. I will try to ignore it and see if I can just find peace again. Funny thing is that as I have focused on the back of my tongue, (which I can't feel by the way, I just see it in the mirror and started freaking), the inflamed feeling on the tip of my tongue is mysteriously absent. I HATE ANXIETY. 1 Quote Share this post Link to post Share on other sites
Holls 1505 Posted August 3, 2020 Yes I agree that your Dr looking at it is enough to let the worry go. She would have known if something was wrong right away. I always find trouble when I look for it lol. Stop looking at your tongue. It's okay and your have Dr confirmation all is well. Hugs. 1 Quote Share this post Link to post Share on other sites
sTeaLth 238 Posted August 7, 2020 My tongue has been inflamed a lot over the past few days and causing more anxiety, as always. This time around though I think I may have figured out why. I've been on Omeprazole for the several months now. Both over the counter and perscription. I have noticed my tongue stuff getting worse as I went to strong dosages. I think this is the reason why... (see attachment) B12 deficiency can cause inflammation of the tongue. I have definitely had a lot of the other symptoms as well, except the menstruation. 😛 I am going to stop the Omeprazole entirely for now and see how things go. I don't think I need it anymore anyway. I am doing a lot better in acid reflux and esophagus spasms anyway, which they were for. Once I realized anxiety was doing a lot of it, they have almost completely gone away. I am almost two full months into the three month prescription and I believe it has done it's job for now. I am hopeful this will now resolve. Thanks for caring guys. 🙂 Quote Share this post Link to post Share on other sites
MARC 431 Posted August 7, 2020 My physician once told me that most tongue issues are nothing to be concerned about. Quote Share this post Link to post Share on other sites
sTeaLth 238 Posted August 7, 2020 I would even say that most physical issues are nothing to be concerned about. Unfortunately anxiety causes us to focus on them so much that they become big huge deals in our mind. I’m pretty certain I’m fine. Hoping that this medication change will stop all of this from happening. Thanks. Quote Share this post Link to post Share on other sites
MARC 431 Posted August 7, 2020 The reason I mentioned my physician is because a number of years ago I had discoloration on my tongue and he just said to forget about it as most tongue issues are benign. 1 Quote Share this post Link to post Share on other sites
sTeaLth 238 Posted August 14, 2020 I just left the dentist. He did the tongue and mouth check and didn’t say a word about it. He was more concerned with a crown I need to get. I figure I’m solid at this point. Had a doctor look at my tongue and mouth/throat with no red flags. A few months later now a dentist. Let the anxiety be gone!!! 😁 2 Quote Share this post Link to post Share on other sites
Holls 1505 Posted August 15, 2020 That's awesome!!!! I'm glad you have comfort and can drop the worry for good. ! 1 Quote Share this post Link to post Share on other sites
MARC 431 Posted August 15, 2020 I went to the dentist yesterday and I need 2 crowns. With my insurance, the first crown will be $590.40, which I am getting on September the 3rd and the second crown will cost me $490.40. Seems odd the second crown is cheaper. I am sure there is a mistake as nothing is cheap at the dentist. I was kidding with them yesterday as I was checking out and I said my friends and I say that when you go to the dentist and need work done, you will need to take a home equity loan out to pay the bill and they laughed. They were probably cursing at me when I left!!! 1 Quote Share this post Link to post Share on other sites
sTeaLth 238 Posted August 27, 2020 I just had a follow up appointment for a root canal from a year ago. I had to go back to an endo’s office. He did a full mouth check, which I was not expecting. He said it all looked good. I hadn’t thought about my mouth for a week. All the symptoms have gone. Another crazy thing my mind created. Good news though. Anxiety free for now guys. Hope you’re all doing well. 1 Quote Share this post Link to post Share on other sites
MARC 431 Posted August 31, 2020 Congratulations on the good news!!! Quote Share this post Link to post Share on other sites