Cubanborn87 42 Posted March 17, 2019 As a lot of you guys know I have been dealing with a lot with my ALS phobia for the last 5-6 months. I have had twitching all over my body for 2 years now and since November I have been feeling a lot of different symtoms that are very worrisome. Ever since all this started I have noticed that my foot is twitching 24/7 and the areas where o think the atrophy is taking place are twitching a lot more than the right side of my body. Here are a few pics comparing the left side to the right side. On my left leg you can clearly see it , the same with my left hand where the ligaments stick out a lot more including my wrist bone and the muscle right under my pinky finger. I don't understand I had an EMG done a month and a half ago and I passed it. All these areas were tested. I thought it was supposed to be the gold standard , so what was missed? I feel so hopeless now, hopefully atrophy doesn't mean ALS and it could be some other type of condition. But I doubt it. There is also twitching in the problem areas non stop. I don't see my Neurologist for another 5 weeks. But I don't feel confident about this at all. https://ibb.co/DpfDYbG https://ibb.co/C0YQxh8 https://ibb.co/G5NHm3W https://ibb.co/RyX0RJ2 https://ibb.co/1rBq3Pm https://ibb.co/TcrRHV0 https://ibb.co/FBG5FJK https://ibb.co/3hC8mQv https://ibb.co/jrPhjbP https://ibb.co/vZrJ8LF Quote Share this post Link to post Share on other sites
Cubanborn87 42 Posted March 17, 2019 I posted pics of the left side and the right side for comparison purposes. Quote Share this post Link to post Share on other sites
utrocket09 115 Posted March 17, 2019 2 hours ago, Cubanborn87 said: As a lot of you guys know I have been dealing with a lot with my ALS phobia for the last 5-6 months. I have had twitching all over my body for 2 years now and since November I have been feeling a lot of different symtoms that are very worrisome. Ever since all this started I have noticed that my foot is twitching 24/7 and the areas where o think the atrophy is taking place are twitching a lot more than the right side of my body. Here are a few pics comparing the left side to the right side. On my left leg you can clearly see it , the same with my left hand where the ligaments stick out a lot more including my wrist bone and the muscle right under my pinky finger. I don't understand I had an EMG done a month and a half ago and I passed it. All these areas were tested. I thought it was supposed to be the gold standard , so what was missed? I feel so hopeless now, hopefully atrophy doesn't mean ALS and it could be some other type of condition. But I doubt it. There is also twitching in the problem areas non stop. I don't see my Neurologist for another 5 weeks. But I don't feel confident about this at all. https://ibb.co/DpfDYbG https://ibb.co/C0YQxh8 https://ibb.co/G5NHm3W https://ibb.co/RyX0RJ2 https://ibb.co/1rBq3Pm https://ibb.co/TcrRHV0 https://ibb.co/FBG5FJK https://ibb.co/3hC8mQv https://ibb.co/jrPhjbP https://ibb.co/vZrJ8LF Going to give you some tough love...I looked at your photos. THERE IS NOTHING THERE. You have already have clear testing. If there was something wrong such as ALS. It would have been picked up. You have to let this go. In 5 weeks when a doctor tell you that you are fine, you are going to feel silly for wasting 5/6 weeks of your life that you will not get back. 1 Quote Share this post Link to post Share on other sites
Matty_G 18 Posted March 17, 2019 EMGs are 100% man. You need to let this shit go. You have health anxiety just like the rest of us. Stop hyperfocusing on your body and just live your life. Start reading books, pick up some video games, hell start a woodworking project. Anything but constantly examining yourself. I truly hope you can move on from this, but you've had the tests, the only person that can do anything for you now, is yourself and a good psychologist (and I mean this in a positive, constructive way). Good luck my friend. 1 Quote Share this post Link to post Share on other sites
ZenCube 59 Posted March 17, 2019 Reminds me of anorexia. A 30kg starved to death girl looks at her mirror and states she's too fat. You see atrophy where there is NOTHING. Your mind is killing you, so yes your nervous system is sick all right, but with fear not ALS. Please let it go, you just have this life... 1 Quote Share this post Link to post Share on other sites
Cubanborn87 42 Posted March 17, 2019 Thanks for the feedback guys, I don't know I guess I am going crazy with this. I am seeing atrophy all over but everyone including my friends and family tell me otherwise. I was doing well for a little bit, but I am still comparing both sides all the time. Quote Share this post Link to post Share on other sites
Matty_G 18 Posted March 17, 2019 2 hours ago, Cubanborn87 said: Thanks for the feedback guys, I don't know I guess I am going crazy with this. I am seeing atrophy all over but everyone including my friends and family tell me otherwise. I was doing well for a little bit, but I am still comparing both sides all the time. It's going to be hard because it does become obsessive compulsive, but you have to learn to catch yourself in the middle or just before you do it and reverse the behaviour. Attached is a link to some CBT thought records, please read and fill these out a few times a day, it's a great tool and really turns around patterns of trapped thinking. https://ohsheglows.com/2011/11/02/how-to-reframe-a-negative-thought-with-a-thought-record/ The records are in the middle of the page, are downloadable and printable. Quote Share this post Link to post Share on other sites
Cubanborn87 42 Posted March 17, 2019 Thanks, I appreciate it Quote Share this post Link to post Share on other sites
lofwyr 215 Posted March 18, 2019 Body dysmorphia is the inability to see what is right there. Looking at the pictures, there was literally zero difference. Definitely get a program, see a therapist or counselor, and formulate a plan to attack and deal with the anxiety. There is your cure for what ails you. Really seek professional help if you haven't. Hypothetically if you had a real neurological condition you would be doing everything you can to fight it. It is time to give anxiety the same aggressive treatment. Quote Share this post Link to post Share on other sites
ZenCube 59 Posted March 18, 2019 Cuban, one more thought: once you'll have weathered this storm and will be able to return back to a somewhat normal life, which is one where your days and nights are not constantly haunted by the ALS ghoul, which is one where your attention will be able to go towards your loved ones and happy things instead of taking calves and tongue pictures..., once this is achieved, I suggest you don't just get past the core question: why or what for did I had to put myself in that horrible state of mind? Did I get any benefit out of it despite the considerable suffering that I had to pay for it? I reckon that will be the moment to put a psychologist to use and talk about the reason behind the craziness. No offense here my friend. I've been exactly where you stand. I even once had a loaded gun in my hand and contemplated the one way out ticket it was offering. This suffering is out of this world. But it's there for a deep reason. You might want to chase it down once the storm is dealt with. Quote Share this post Link to post Share on other sites
Cubanborn87 42 Posted March 18, 2019 Thanks guys, I will definitely have to do something about it. To me I am still convinced that I have atrophy , I am going to have to wait until I see the neurologist and go from there. The Prozac is definitely helping with the anxiety, but I am still convinced I have ALS. I can't believe everyone is telling me they don't see it in the pictures, because to me it's clear as day. Even my foot feels super skinny, my shoe is super lose on it Quote Share this post Link to post Share on other sites
Cubanborn87 42 Posted March 18, 2019 I had been telling you guys that for the last 4-6 weeks my left foot was feeling super skinny. The shoe would always feel loose no matter what shoe it would put on. This is the same leg that has had the tingling for about 5-6 months now. I just took this picture and it's truly concerning Quote Share this post Link to post Share on other sites
utrocket09 115 Posted March 18, 2019 33 minutes ago, Cubanborn87 said: I had been telling you guys that for the last 4-6 weeks my left foot was feeling super skinny. The shoe would always feel loose no matter what shoe it would put on. This is the same leg that has had the tingling for about 5-6 months now. I just took this picture and it's truly concerning Again...THERE IS NOTHING THERE Quote Share this post Link to post Share on other sites
ZenCube 59 Posted March 18, 2019 Let's do a test, Cuban. I took a picture of my right hand. Do you see atrophy in it? I ask because when I was in the pit, I could swear to gods and devils it was. To us, your hands, calves, etc just look like my hand to you : normal. Quote Share this post Link to post Share on other sites
Cubanborn87 42 Posted March 18, 2019 No, I do not see it. Quote Share this post Link to post Share on other sites
anxietyprince 4 Posted March 18, 2019 4 hours ago, Cubanborn87 said: No, I do not see it. Cuban you shouldn’t be fearing ALS if you’re having tingling. If anything get tested for MS as ALS doesn’t affect sensory nerves Quote Share this post Link to post Share on other sites
ZenCube 59 Posted March 18, 2019 5 hours ago, Cubanborn87 said: No, I do not see it. Spot on brother. Neither do we see anything wrong with your pics. It's all in your head. Try to trust us on this, we bring objectivity to your subjectivity, just as you did with my picture. 2 Quote Share this post Link to post Share on other sites
Cubanborn87 42 Posted March 19, 2019 Ok, I am going to try. I guess inwktn be sure until I shownotntonky Neurologist. But I'll try to keep it out of my mind until then. Quote Share this post Link to post Share on other sites
Cubanborn87 42 Posted March 19, 2019 I don't get it now on the left side of my throat when I swallow there is this click that happens. And if i put my finger on it you can feel it really easily . This is right under where that thing on my tongue is 😭😭😭 Quote Share this post Link to post Share on other sites
vismonkey19 2 Posted March 19, 2019 1 hour ago, Cubanborn87 said: I don't get it now on the left side of my throat when I swallow there is this click that happens. And if i put my finger on it you can feel it really easily . This is right under where that thing on my tongue is 😭😭😭 I also have a click when I swallow that is much more pronounced when Im stressed. I believe it's due to my hypersensitivity to the act of swallowing. Not only do I hear things that are probably always there, but I'm also physically affecting how I swallow by paying close attention to the process. My hypersensitivity when stressed affects all parts of my body. Swallowing, walking, chewing, and even breathing are affected when Im highly concentrating on those processes. 1 Quote Share this post Link to post Share on other sites
