Iugrad91 500 Report post Posted February 5, 2019 You can’t be serious. You really, really need to get some help and fast. You would question the sky is blue right now. Your anxiety is consuming you and you are not thinking rationally about anything at the moment. 2 1 Quote Share this post Link to post Share on other sites
enidoreilley 83 Report post Posted February 5, 2019 Hey! This is great news! No evidence of disease on the EMG means NO ALS. You are fine. You have experienced an extreme bout of HA, now accept the great news and let your anxiety diminish. Then see how many of your symptoms you still experience. Our minds are very capable of inventing issues whole cloth. Enjoy the feeling of having had your life handed back to you tonight and tomorrow see if you can start working on your anxiety. 2 Quote Share this post Link to post Share on other sites
Cubanborn87 42 Report post Posted February 5, 2019 It was great news indeed. Thanks to everyone for being there for me and helping me trying to get through this crazy episode. I don't think I am completely over it yet. But this is a first step to hopefully get completely over this anxiety I bave eventually. I am definitely doin better. Quote Share this post Link to post Share on other sites
Cubanborn87 42 Report post Posted February 10, 2019 Guys the tongue Atrophy thing has not gone away and now I have a smaller one on the opposite side . What in the world is going on. I know the EMG is supposed to be very accurate , but this is just too much Quote Share this post Link to post Share on other sites
Holls 1478 Report post Posted February 10, 2019 24 minutes ago, Cubanborn87 said: Guys the tongue Atrophy thing has not gone away and now I have a smaller one on the opposite side . What in the world is going on. I know the EMG is supposed to be very accurate , but this is just too much The emg is accurate. Your anxiety is not. Why are you still looking at your tongue again? You have to make an effort to stop testing and looking. It's really time to seek help for your anxiety. I'm sad that this hasn't stopped for . It's time to get better for you, your wife and your children. Quote Share this post Link to post Share on other sites
Cubanborn87 42 Report post Posted February 10, 2019 1 hour ago, Holls said: The emg is accurate. Your anxiety is not. Why are you still looking at your tongue again? You have to make an effort to stop testing and looking. It's really time to seek help for your anxiety. I'm sad that this hasn't stopped for . It's time to get better for you, your wife and your children. I know. I was doing pretty good. I stopped for a while completely and I am doing much better. Even though I am not all the way over it yet. Today I was just looking in the mirror and I happened to see something on the back of my tongue and that's when I investigated it. But I was doing fine for the most part before that. It has been 3 weeks the one on the left is still there as I said and now on my right side I have the same thing. It's awful , something really bad is going on . My foot still feels tingly and skinny. My shoe is always so loose. Quote Share this post Link to post Share on other sites
Jae 208 Report post Posted February 10, 2019 20 minutes ago, Cubanborn87 said: I know. I was doing pretty good. I stopped for a while completely and I am doing much better. Even though I am not all the way over it yet. Today I was just looking in the mirror and I happened to see something on the back of my tongue and that's when I investigated it. But I was doing fine for the most part before that. It has been 3 weeks the one on the left is still there as I said and now on my right side I have the same thing. It's awful , something really bad is going on . My foot still feels tingly and skinny. My shoe is always so loose. 3 You look in the mirror to make sure food isn't hanging off your face or to straighten your hair, or to admire your looks .. NOT TO CHECK THE BACK OF YOUR TONGUE! As far as your foot? Seriously? STOP obsessing over your foot! Wear a pair of shoes that fit. Your obsession and neurotic behavior infuriate me because you've been CLEARED of ALS, 4 people I knew DIED of ALS, they and their families PRAYED TO GOD for the results you just got and instead they are DEAD. Get on your knees and thank GOD for your results, apologize for wasting the precious life and health you have been given. Be grateful every day that you are not .. Ryan, David, Dave M or Judith who are MY FRIENDS that lost their battle with ALS. 1 Quote Share this post Link to post Share on other sites
utrocket09 115 Report post Posted February 10, 2019 1 hour ago, Cubanborn87 said: I know. I was doing pretty good. I stopped for a while completely and I am doing much better. Even though I am not all the way over it yet. Today I was just looking in the mirror and I happened to see something on the back of my tongue and that's when I investigated it. But I was doing fine for the most part before that. It has been 3 weeks the one on the left is still there as I said and now on my right side I have the same thing. It's awful , something really bad is going on . My foot still feels tingly and skinny. My shoe is always so loose. There is nothing going on! You have been cleared. Time to move on and find a pair of shoes that fit. Quote Share this post Link to post Share on other sites
Holls 1478 Report post Posted February 10, 2019 1 hour ago, Jae said: You look in the mirror to make sure food isn't hanging off your face or to straighten your hair, or to admire your looks .. NOT TO CHECK THE BACK OF YOUR TONGUE! As far as your foot? Seriously? STOP obsessing over your foot! Wear a pair of shoes that fit. Your obsession and neurotic behavior infuriate me because you've been CLEARED of ALS, 4 people I knew DIED of ALS, they and their families PRAYED TO GOD for the results you just got and instead they are DEAD. Get on your knees and thank GOD for your results, apologize for wasting the precious life and health you have been given. Be grateful every day that you are not .. Ryan, David, Dave M or Judith who are MY FRIENDS that lost their battle with ALS. I agree!! Think how many people wish for a clean emg and a neuro to tell them it is anxiety. It is more than time to move on. Quote Share this post Link to post Share on other sites
Cubanborn87 42 Report post Posted February 10, 2019 I am sorry about your friends. You are right I should be very thankful of the results and I am. I just can't help but think to myself what in the world is this? Regarding the shoes , it happens with all my work shoes. I started noticing it few weeks ago answitched to different shoes and the same thing. One feels a bit looser. This was the same foot I told my neurologist that I felt was getting skinnier and felt at times it wasn't as beefy and didn't seem to have the same support as the right one. This is the foot that has given me issues since November, which I always thought looked a bit off. When I started analyzing it while I was feeling all my symtoms. I am seeing my GP on Tuesday, hopefully everything will go ok. I can't afford to lose any more weight, I have been trying to eat a lot and some how each week I lose 1 to 1.5 lbs. Let's hope this week I finally see some weight gain. Because this is really concerning. Quote Share this post Link to post Share on other sites
clearhead 129 Report post Posted February 10, 2019 So you’re back to square one. Perhaps even worse. Please focus on your anxiety and not your fictional illness. 1 Quote Share this post Link to post Share on other sites
utrocket09 115 Report post Posted February 10, 2019 10 minutes ago, Cubanborn87 said: I am sorry about your friends. You are right I should be very thankful of the results and I am. I just can't help but think to myself what in the world is this? Regarding the shoes , it happens with all my work shoes. I started noticing it few weeks ago answitched to different shoes and the same thing. One feels a bit looser. This was the same foot I told my neurologist that I felt was getting skinnier and felt at times it wasn't as beefy and didn't seem to have the same support as the right one. This is the foot that has given me issues since November, which I always thought looked a bit off. When I started analyzing it while I was feeling all my symtoms. I am seeing my GP on Tuesday, hopefully everything will go ok. I can't afford to lose any more weight, I have been trying to eat a lot and some how each week I lose 1 to 1.5 lbs. Let's hope this week I finally see some weight gain. Because this is really concerning. 1-1.5 pounds is not weight loss. There is nothing wrong other than anxiety. You should be glad you are fine. As another poster said already, you should be grateful. My aunt whom is seriously ill with blood cancer.is probably going to hospice. Makes me very angry. Quote Share this post Link to post Share on other sites
Cubanborn87 42 Report post Posted February 10, 2019 I am sorry guys, it's really hard for me to explain it. All tjese symtoms are driving me crazy now with my tongue and how it feels different and how the muscles under it get weak at times. Ill try to work on it, I know I passed the EMG. But, all these symtoms are driving me nuts. I didn't mean to upset anyone Quote Share this post Link to post Share on other sites
utrocket09 115 Report post Posted February 10, 2019 27 minutes ago, Cubanborn87 said: I am sorry guys, it's really hard for me to explain it. All tjese symtoms are driving me crazy now with my tongue and how it feels different and how the muscles under it get weak at times. Ill try to work on it, I know I passed the EMG. But, all these symtoms are driving me nuts. I didn't mean to upset anyone If you had any weakness, it would have been found. Like a previous poster said, you now back to square one and seem to be doubting your results. Quote Share this post Link to post Share on other sites
Cubanborn87 42 Report post Posted February 10, 2019 I know, I need to get it together. Quote Share this post Link to post Share on other sites
Jae 208 Report post Posted February 11, 2019 1 hour ago, Cubanborn87 said: I know, I need to get it together. You are creating your own misery, your hypersensitivity, hyperfocusing and anxiety are causing your symptoms, you are the classic definition of "it's all in your head". The only REAL illness is anxiety. 2 Quote Share this post Link to post Share on other sites
enidoreilley 83 Report post Posted February 11, 2019 4 hours ago, Cubanborn87 said: I know, I need to get it together. Buuuuddddy! @Cubanborn87! I HATE to say I know how anyone feels, but I have been here. It feels so real. You KNOW your shoes are looser and you are certain that your tongue is fatigued. I still will be chewing from time to time and it will feel tired and I will think "OMG! Is it....?" But the answer for you and I is "No" it isn't. We are lucky but we do not feel lucky. We are waiting for some horrible outcome. One day it will come for us like it does for everyone, but that isn't today. You have kids, right? Please, do yourself and your family a favor and let it all go. The EMG is gold standard for diagnosing ALS. You don't have it. Based on everything you said, I suspect you have nothing but anxiety, but I'm not a Dr. What I know - because you told us - is that you don't have ALS. Let it go. 1 Quote Share this post Link to post Share on other sites
Cb17 9 Report post Posted February 12, 2019 Go watch movie or something stop looking at your pale tongue which no one wants to see pictures of Quote Share this post Link to post Share on other sites
Cubanborn87 42 Report post Posted February 19, 2019 This makes no sense not only has the tingling and Pin and needles sensation not gone away for months. But my foot keeps looking skinnier and skinnier and now my leg looks like it's starting to lose muscle. It doesn't look as beefy as the right one does, I have always had muscular legs. I have no idea what's going on. It looks like the muscle waste it's working its way up . But I passed the EMG, so someone please help me understand this. Quote Share this post Link to post Share on other sites
utrocket09 115 Report post Posted February 19, 2019 15 minutes ago, Cubanborn87 said: This makes no sense not only has the tingling and Pin and needles sensation not gone away for months. But my foot keeps looking skinnier and skinnier and now my leg looks like it's starting to lose muscle. It doesn't look as beefy as the right one does, I have always had muscular legs. I have no idea what's going on. It looks like the muscle waste it's working its way up . But I passed the EMG, so someone please help me understand this. I have seen someone with actual muscle wasting. Not a pretty site. If you actually had that, you would not be walking. 1 Quote Share this post Link to post Share on other sites
ZenCube 58 Report post Posted February 19, 2019 Cuban, buddy, I went through tne whole thread, now let me stating it straight: its not als thats killing you right now, its the health madness. You are putting so much strain upon your body and mind that the outcome wont be good. You re running on adrenaline 24/7, and that s why you are losing weight and bulk. I ve been there. At one moment I just thought "this is too much, f..k it, if its als so be it but I cant go on like this. I had lost seven kilos, was a mess, couldn t even care about my baby daughters any more. It has to stop before it hacks you to bits and waste your life with your family. Let it go. 1 Quote Share this post Link to post Share on other sites
Cubanborn87 42 Report post Posted February 19, 2019 Yeah man, I have been able to gain some weight recently after losing those initial 10 lbs from early December to early January. I just have so many new symtoms that I feel like I need to see the neurologist and show him everything that is going on. The problem is the follow up is in exactly 9 weeks SMH I know exactly the feeling of I can't go out like this , I have had that before. My anxiety right now is not horrible, the Prozac has really helped me and the results of the EMG. But I am still concerned to say the least. Quote Share this post Link to post Share on other sites
