Nik Nak

I’ve just come back from having my EMG. He tested me on my right arm, right leg, back and under my chin. He said everything looked good and there was nothing sinister going on but I’ll get the full report when I have my follow up with my neurologist. Glad that your EMG is all over and done with. I’m sure the results will be all good I always find the nerve conduction test but worse than the needle part.

Thinking of you! Hope it all goes well. Let us know how it goes. I’ve got mine today too. Fingers crossed they both go well 😊

I’m curious, are you on any kind of medication (such as an antidepressant)? When I was on citalopram last time, after about a year I started getting a lot of side effects that made my brain super foggy. I would forget things all the time. Someone would tell me a number and then ask for it about 10 seconds later and I had completely forgotten. This went on for months and it was all caused by the pill.

Hi guys I just came on to post an update and my thread regarding my als fears has just vanished off the site. Is there a reason for this? Anyway, what I came on here to ask was...One of the symptoms I’ve been worried about is a feeling of a lump in the back of my throat. Am I right in thinking that it is unlikely to be ALS because when I wake up first thing in the morning it’s gone? It’s only after I’ve been awake for a bit and started talking that it begins to come back.

I also have my EMG Thursday. Please let me know how you get on. I have my fingers crossed for both of us.

Wow @mollyfin that is quite the list! I'm actually impressed in a weird way.

I find it very hard to bend my pinky toes down, it's just the way they are designed. They are smaller and don't have as much room to bend therefore it is harder to do so.

Okay so I went to the neurologist and he was a specialist in neuromuscular deseases. He said that I do not have ALS and that I was catastophising everything. He immediately jumped on my mental health problems and told me the problem isn’t physical but mental. He’s given me the information of a psychologist/therapist he very highly regards and told me I should visit her to sort the out the root of my worries.

Problem is, my mouth isn’t feeling fatigued...it just doesn’t work. I can’t make a kissing sound anymore and I can’t suck hard enough to make a love bite (I’ve been trying on myself). Anxiety doesn’t full on stop it working like mine has. I’m so scared

I wish I could agree with this so much. I’m currently sitting on the floor at work sobbing because I am 100% convinced that I have bulbar als. My mouth just isn’t functioning properly. It’s not the standard symptoms of bulbar onset they are more subtle but I literally can’t use my mouth the same way and I feel like I am going to be THAT person who has health anxiety and ends up with the super rare illness that they fear the most. It’s a nightmare I just want this worry to be over.

I thought this would be a good way to put things into perspective. I only really started suffering from serious health anxiety about 2 years ago but it has been an ongoing problem all my life. Thought this would be some fun, write down all the illnesses over the last few years you were certain you had and what they actually turned out to be, so let me start: Ovarian Cancer (nothing) Cervical Cancer (nothing) Breast Cancer (just a lymph node) ALS Limb Onset (nothing) Breast Cancer x2 (another lymph node) Brain Eating Amoeba (nothing) Early Onset Dementia (anti-depressants were giving me brain fog) Lymphoma (just normal reactive lymph nodes) Stomach Cancer (nothing) ALS Bulbar Onset (still an ongoing fear and my current rabbit hole)

I’m so happy for you! What a fantastic result! I hope you are feeling so much better after hearing that from him. I’m seeing a neurologist today and I am so nervous. My symptoms are very different from yours. I lost the ability to make some sounds with my mouth and I’ve been having what I believe to be perceived problems with my speech and singing. I’m truly hoping that he can put my mind at ease once and for all. I’m 25 years old, how old are you?

I’m trying to be rational but it isn’t working. I didn’t go lookin for things that were wrong and stopped working I just noticed it yesterday when I tried to get my dogs attention. My brain keeps telling me this could be the first sign of ALS but because it’s such a random thing no one has ever noticed it as their first symptom. Ugh I’m so scared, I’m barely eating I’m barely sleeping. My anxiety is eating my up inside

I had an EMG two years ago on my right arm. I’m now worried about bulbar als which hasn’t been tested. I just can’t stop being scared. Should I go see a neurologist to be sure?

I went to visit the doctor about my concerns and he said he didn’t think anything was wrong. He said my whistle is fine because it uses the same muscles as talking and my talking is fine. I still can’t drop the feeling that something is wrong. I can’t make the same noises with my mouth as normal. I can’t shake it