Sommer J

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Everything posted by Sommer J

  1. I’m also struggling with a als fear. I have twitching and cramps as well as trembling or shaking. Does anyone know how common it is with people with als to have tremors? I’m so worried.
  2. I’ve had muscle twitching all over my body for about 4 months but for the last two months I’ve been have pulsing in my heels and one spot on my left heel goes numb. Please help
  3. Yeah I can lift anything I just have the quivers feeling in both of my arms for months now and idk what it is.
  4. Anyone feel like their arms are trembling/shaking when trying to hold yourself up ? Or even lift up your arms. What is it ? It cant be anxiety
  5. Thank you for the advice. I’m trying really hard today. It sucks that this is taking over my life. Every time these sensations come back I have a mini freak out session. Like right now my soles of my feet are twitching and I’m trying to get it off my mind
  6. What did you do to breath better?It feels like I can’t get enough air breathing out my mouth. I can’t believe you have this too. Scary isn’t it.
  7. I’ve had twitching and shortness of breath but not like winded short of breath but almost like I can’t get enough air kinda like holding your breath.
  8. Wow, do either of you feel like you have shortness of breath ?
  9. See I haven’t yet seen a neurologist because my doctor says it’s anxiety but I still wonder what it is. But it’s reassuring to hear that you have experienced it too. How long did your tongue twitching last? Or how long have you been twitching ?
  10. So I can’t even shake this. I’ve been twitching everywhere for about 2-3 months and 2 days ago it started in my tongue... anyone else have this problem. I’m so scared
  11. So I can’t even shake this. I’ve been twitching everywhere for about 2-3 months and 2 days ago it started in my tongue... anyone else have this problem. I’m so scared.
  12. It feels like a heartbeat and no it lasts a few minutes on and off
  13. That definitely freaks me out even more now
  14. The soles of my feet and hands are pulsating everyday. It’s freaking me out. Anyone else have this going on right now ? What is this
  15. The soles of my feet and hands are pulsating everyday. It’s freaking me out. Anyone else have this going on right now ? What is this
  16. The soles of my feet and hands are pulsating everyday. It’s freaking me out. Anyone else have this going on right now ? What is this
  17. Thank you everyone, I’m going to try my hardest not to think so negative all the time. It feels great to know that other people understand and go through the same motions as me.
  18. So, I have been posting a lot lately. Little things here and there but it all comes down to the simple fact that I’m terrified of ALS. About a month ago I started to experience(notice) twitching and I decided to look up twitching. Immediately my heart jumped out of my chest and I saw nothing but doom from there. I couldn’t/ can’t get it out of my head. I’m struggling day to day. It’s hard to eat sleep or even smile. As time went on more “symptoms” have occurred. -body wide twitching ( especially leg and eye of opposite sides. -feeling of hair on my tongue -tingling/burning/jerking and cramps/pulsing in feet and hands. i don’t know what to do anymore. My family doctor brushes it off as nothing but anxiety and won’t refer me to a Neuro unless it gets worse. It sucks because in the back of my mind I feel like I’ll dying. i am scared and I know I do need help. I just want to get past this and live happy again.
  19. So, I have been posting a lot lately. Little things here and there but it all comes down to the simple fact that I’m terrified of ALS. About a month ago I started to experience(notice) twitching and I decided to look up twitching. Immediately my heart jumped out of my chest and I saw nothing but doom from there. I couldn’t/ can’t get it out of my head. I’m struggling day to day. It’s hard to eat sleep or even smile. As time went on more “symptoms” have occurred. -body wide twitching ( especially leg and eye of opposite sides. -feeling of hair on my tongue -tingling/burning/jerking and cramps i don’t know what to do anymore. My family doctor brushes it off as nothing but anxiety and won’t refer me to a Neuro unless it gets worse. It sucks because in the back of my mind I feel like I’ll dying. i am scared and I know I do need help. I just want to get past this and live happy again.
  20. I sometimes feel like I’m holding my breath or short of breath. Does anyone experience it as anxiety ? I do it with no warning, out of no where sometimes for a few days straight out of no where or maybe a couple time a month. It all started about 3 months ago. I went to the er and they told me my oxygen level was fine so I know it’s anxiety. it’s just crazy that it makes you feel like you can’t breath. What do you guys do to cope with it ? How do you get it to stop? I guess I’m just looking for tips and advice.
  21. I sometimes feel like I’m holding my breath or short of breath. Does anyone experience it as anxiety ? I do it with no warning, out of no where sometimes for a few days straight out of no where or maybe a couple time a month. It all started about 3 months ago. I went to the er and they told me my oxygen level was fine so I know it’s anxiety. it’s just crazy that it makes you feel like you can’t breath. What do you guys do to cope with it ? How do you get it to stop? I guess I’m just looking for tips and advice.
  22. Sommer J

    Tingling

    Wow! That is crazy! I thought I was the only one. People look at me as if I’m crazy when I tell them lol.
  23. Thank you everyone. I get enough sleep but it is irregular. Wow, I didn’t know that they could do that.
  24. Thank you everyone ! I went about 3 days with no eye twitching at all and it started up, same eye but just in a different spot. it’s been nonstop with no break