MS...clean MRI....but I googled...

[Iugrad91 501]

Have they recommended you see a neurologist or is that desire for your own reassurance? If they said no need then you need to trust that they know and have seen enough patients to know if you needed further testing.

[DoxieMoxie 316]

6 hours ago, Concerned-pa said:

And I should add that there is a slight twitch in this location as well. Not consistent, but I notice it every now and then. Awesome.

You can add all these symptoms, but it still doesn't sound like anything other than an acute injury.  You will have some weakness with an acute injury.  You would do well to give it some rest, because if you are engaging in strength testing, it could worsen the injury.   

[BrightPhoenix 78]

I agree - I've been to the neurologist many times (but due to essential tremor, which is another benign condition that can be lived with) and I've talked tangentially with them about ALS - you definitely do not have ALS.  However, for your own reassurance, I would go to the neurologist NOT BECAUSE I THINK YOU HAVE SOMETHING, but to ensure that the symptoms you have ARE having are elated to your injury, and since you have multiple experts telling you that, they're most likely 99.99% correct.  I actually agree with everyone else that it's most likely your injury that caused the symptoms you're having.

I'm dealing with some scares myself and that is part of the reason why I'm seeing my neurologist next week.  Health anxiety is a huge beast, but especially when you have symptoms that you DON'T KNOW the cause of.

[Concerned-pa 17]

9 hours ago, Iugrad91 said:

Have they recommended you see a neurologist or is that desire for your own reassurance? If they said no need then you need to trust that they know and have seen enough patients to know if you needed further testing.

They recommended it after I kept expressing concerns of ALS and MS.

 

[BrightPhoenix 78]

Then I suggest you go, because we know how stubborn health anxiety is.  We can tell you how much it's nothing how this is just your stuff coming back to bother you and this and that, but your health anxiety won't hear it.  I know how it is.  I've been there.  It's beyond frustrating.  I spent the past 2 weeks googling MS symptoms and everything was pointing to "I HAVE IT!" but I have an equal amount of evidence telling me I don't; however all I can do is wait until I see my neurologist so I can talk to him about it.

Find a good neurologist with good bedside manner and go so you can get peace of mind.  They may be able to point some things out with your spine/lumbar injury.  I kinda fell on my tailbone last month too and I'm wondering if some of the symptoms I have is due to that.  The mods at NMP ended up merging a bunch of old threads I made so it's an absolute mess and I got no help whatsoever, so your best bet I think is to go, provided it won't use up too much money.

Also, I'm going to repeat this again - try to find a good therapist too.  When it's nothing, you'll still have someone you can vent your frustrations out to who can give you much better advice than strangers on the net.  We can sympathize with you and offer you our opinions based off of our limited experience (and I know you don't want to step foot inside MS forums because it would just make our health anxiety worse) but a therapist is typically trained in both neurology and psychotherapy and may be able to help calm you down about your neuro symptoms.

[Concerned-pa 17]

5 hours ago, BrightPhoenix said:

Then I suggest you go, because we know how stubborn health anxiety is.  We can tell you how much it's nothing how this is just your stuff coming back to bother you and this and that, but your health anxiety won't hear it.  I know how it is.  I've been there.  It's beyond frustrating.  I spent the past 2 weeks googling MS symptoms and everything was pointing to "I HAVE IT!" but I have an equal amount of evidence telling me I don't; however all I can do is wait until I see my neurologist so I can talk to him about it.

Find a good neurologist with good bedside manner and go so you can get peace of mind.  They may be able to point some things out with your spine/lumbar injury.  I kinda fell on my tailbone last month too and I'm wondering if some of the symptoms I have is due to that.  The mods at NMP ended up merging a bunch of old threads I made so it's an absolute mess and I got no help whatsoever, so your best bet I think is to go, provided it won't use up too much money.

Also, I'm going to repeat this again - try to find a good therapist too.  When it's nothing, you'll still have someone you can vent your frustrations out to who can give you much better advice than strangers on the net.  We can sympathize with you and offer you our opinions based off of our limited experience (and I know you don't want to step foot inside MS forums because it would just make our health anxiety worse) but a therapist is typically trained in both neurology and psychotherapy and may be able to help calm you down about your neuro symptoms.

I'm going, but I'm just terrified. What other cause could be to blame for the feeling in my leg? It's not pain, but like pressure/weakness. The weakness isn't getting worse, but this feeling only came on with activity a few days ago and now it's persistent even when not under activity.

[Iugrad91 501]

Injuries don’t only hurt during use. There could be many reasons for the sensations you’re having. There have been a lot of postings in the last few months of people feeling the same way you do. They have had clean MRI or EMG, none of them have MS or ALS. It can be anxiety, it can be an injury. But it’s not a NMD.

[JOYCICLE 654]

When we are in an panicked state or even ' just anxious' state, we hold our bodies rigidly. It's very hard on the muscles to be in a ' fight or flight' mode all the time. I like to think of it with a story you can visualize. You know when you watch the Olympics and all those runners are ready to run the sprint races with their feet in the blocks OR the swimmers ready to dive in to the pool, waiting to her the gun? Their bodies are bursting with adrenaline and cortisol ready for the big event. Their minds and bodies are at the highest alert you can be. FIGHT OR FLIGHT is the same physical sensations as that.  So often we see someone LITERALLY ' jump the gun'. The body is so ready they can hardly stand still and wait on that gun so they are ready to leap at a fraction of a moment's notice. Only the Olympians get to release all that energy when they go run or swim as soon as the gun really goes off.   When the race is over and they have spent all that energy being active the body relaxes. But we are not Olympians and we don't burn off that energy so it stays in our body UNTIL WE DO. This is why exercise is so great for the anxious body. But I digress.  Imagine if you were standing in the runner's block on that track for 6 hours. How tired would your body be? How exhausted would your muscles and tendons and even bones be?  That's a temporary state created for our bodies that's meant to come and go. But we, the anxious people that we are, don't let it GO anywhere. We just keep it and add more and add more and wander around wondering why our bodies are tight and tense. So if you've  had a good scare and a good panic , your body is tired. That includes ev ery muscle. For me, the greatest area I hold tension is my neck and shoulders. I frequently get massages to work it out.  

Keep visualizing the runners in those blocks and how fatigued the muscles would be if the gun never went off and you stood there for hours or days.