Meghansherf

ALS fear

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On 1/21/2019 at 10:16 AM, Meghansherf said:

I have an apt next week to get an EMG just to clear my worries. ALS and ovarian cancer have always been my two biggest fears. I just need a clean bill of health so I can stop worrying. I'm really not the type to second guess test results like alot of people. I know that I'll be able to move on if I can just know I'm ok!

How did your EMG go?

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How sweet you are. I am new here and the twitching can be terrifying. Even reading knowledgeable descriptions of how disease process and progression work should reassure but don’t. They sometimes scare the hell out of me because I read too much into them. I am amazed at the amount of people with the same fears as mine and yours. I too have struggled over the years bouncing from one disease to another sure it was THE ONE. The one I know for sure is THE ONE is the A one. The A stands for anxiety. It sucks but we are all here to help ourselves and each other . What a good place to start.  Good luck . You are fine. Honestly!

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1 hour ago, Jackye said:

They sometimes scare the hell out of me because I read too much into them

Sorry. I didn’t think about this. I’ll stop.

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Twitching in my bottom lip and hands. been over a month. My hands constantly feel "stiff" best way I can describe it. I am terrified of ALS or Parkinsons. Help :(

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1 hour ago, Papyapa said:

Twitching in my bottom lip and hands. been over a month. My hands constantly feel "stiff" best way I can describe it. I am terrified of ALS or Parkinsons. Help :(

I’m not a doctor but it’s more likely BFS. Definitely not als. A close friend of mine has Parkinsons and twitching was not a symptom. Here are symptoms that accompany BFS:

Along with the twitches comes :

  • aches
  • pains
  • stiffness
  • tingling
  • numbness
  • tremors, visible
  • non visible shakes
  • pins and needles
  • body jolts
  • fatigue

 

  • Thanks 1

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