SoAnxious 3 Posted January 23, 2014 I'm baaaaaaaaaaaaack! Last time I checked in here I was feeling great because my sinus and breathing issues seemed to stem from rhinitis and was managed by a cortisteroid spray. So things have been great for months. Until the a Crohn's came back to life in December. Having an upper GI and a colon next month to see what's going on. The rhinitis is in check about half the month. The Crohn's has made me vomit three different days in the last month, last night being the latest episode. And once the disease finally relented I could feel (and hear!) all this stuff rushing through my gut after being backed up. That induced a major panic attack. I called 911 for the first time in my life because I was afraid something ruptured and I was about to bleed to death. I got the medic on the phone about the time I came to my senses that it was a panic attack and I wasn't going to die. I told him never mind and sorry for the trouble. I'm frightened to do my procedures next month because I'm afraid of taking medication. How is it anyone can fix anything with medication when the patient is afraid of the medication?! Specifically I'm afraid of whatever they use to put you under and I'm terrified of Remicade now after I took it for years. Good to be back, but wish it were to visit instead of having to stay a while. Quote Share this post Link to post Share on other sites
Gilly 1086 Posted January 23, 2014 hey SoAnxious, I'm sorry your having a bad time, I've been worrying about my crohns myself because my stomach has been off since christmas. FWIW the last time I was sure my crohns flared up, it hadn't it was declared stress and IBS, I was so certain, but all the tests were clear. I've sworn time and time again that crohns doesn't scare me because I've been there, done it all and worn out the tshirt, but here I am getting scared about it, anxiety is such a beast! My bloods at christmas were normal, idk if I'm overly worrying or not. I'v been taking imuran/azathioprine since 2005 and it's so far kept me in remission. I'm here if you need to talk, you aren't alone and I understand it all so well. (diagnosed crohns 30 years) Quote Share this post Link to post Share on other sites
SoAnxious 3 Posted January 24, 2014 Thanks Gilly. I'm a 26 year Crohn's survivor myself. No blood in my stools and my doc thinks it could either be an infection or Crohn's in the stomach or small intestines but I won't know anything until late next month. Anxiety stinks. I took Remicade for seven years. I don't want to go back on it. 1 Quote Share this post Link to post Share on other sites
SoAnxious 3 Posted February 24, 2014 Gilly, I have my colon and upper GI this week but I haven't had those since my anxiety started up around 2011. They're giving me Propofol to put me under and I am getting more anxious as the day draws near. Already have the shallow breathing today and nervousness. It's going to be a rough week. Quote Share this post Link to post Share on other sites
SoAnxious 3 Posted February 28, 2014 Well my procedures were easy today. Don't know why I worried so much about it... Quote Share this post Link to post Share on other sites
Twinks* 16 Posted March 1, 2014 Hi SoAnxious, I have Crohn's also and like you I am very scared of the medicine I take (Humira). I have really bad anxiety and being diagnosed with Crohn's made it worse. I have been on Humira for about 3 years now and always have my bloods taken and they come out fine. I too am afraid of taking medicine especially one that comes with a bible of side affects. I feel like I am in remission but my current scope shows that I am not so my Dr said I cant stop Humira . What I am doing to be pro active about my anxiety is I am getting another opinion from a great DR In Chicago just to see If I can stop the Humira. Also regarding the rhinitis I have it BAD I feel like my head is in a fish bowl all the time especially after my injection. Can I just say a 26 year survivor!!! wow...I know this may sound strange but be proud that you have endured this disease and its side affects. A lot of people don't know what it is and to have anxiety on top of it...well that just makes us hard as nails even tho we don't think we are. Im glad your procedures went easy Im sure the Propofol had something to do with it . Actually that's probably the only drug I do like. Good luck and be proud!! You are a survivor!! Quote Share this post Link to post Share on other sites
Gilly 1086 Posted March 1, 2014 Oh crap, I'm sorry SoA, I missed your reply. How are you feeling now? Did they tell you anything after your procedure or are you waiting on results? FAP is right, we are survivors, crohns is a tough disease to live with, but we are tougher Quote Share this post Link to post Share on other sites
JOYCICLE 654 Posted March 1, 2014 Yea ! A victory! Quote Share this post Link to post Share on other sites
SoAnxious 3 Posted March 1, 2014 Hi Findapassion! Nice to meet another Chronie!! Gilly, the a Crohn's is still in remission actually! But I have a possible infection and a hiatal hernia now. :-/ Will know more when the labs come back. Quote Share this post Link to post Share on other sites
SoAnxious 3 Posted March 25, 2014 Labs came back normal. I'm having a CT scan today to see what's going on. I don't mind drinking the stuff that coats my insides but I detest the IV that makes my brain warm. Having some anxiety about it. But I can't eat anything solid now without throwing up a week or two later so it must be done if I want any chance to find the problem and fix it. Quote Share this post Link to post Share on other sites
SoAnxious 3 Posted March 26, 2014 And it's confirmed: Crohn's in small bowel causing partial obstruction. Now the anxiety over taking biologics again begins... Quote Share this post Link to post Share on other sites
