Total Eclipse

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Everything posted by Total Eclipse

  1. We will be working on some updates this weekend πŸ™‚
  2. I've been given Ketamine for pain relief at hospital setting. It was not for depression. I did have long term anxiety spike and did not feel well after. If you try it, please have a support system around you!
  3. I like to take baths and meditate. I learned that self care can be really helpful. Sometimes a cup of tea can bring an edge off too.
  4. Please listen to your doctor over random internet advise in regards to medicine. It’s good to get peoples experiences - but don’t go off them based off posts.
  5. Didn't ask about MRI. What does your doctor think about your anxiety over your medicine? If your doctor thought a test was needed he would run it through insurance.
  6. Have you reached out to services in your area? Where do you live?
  7. Hows your anxiety going? Welcome back.
  8. Sent out an email about the raffle xx
  9. Welcome to the site πŸ™‚
  10. You hurt your back this weekend. Any muscle twitching, spasms or pain is due to that. It's already stated your doctors think you have a disc issue (which sounds like it can be painful); let them know you might of re-injured (via their nurse line) as they might have some restrictions for you until it's healed a bit. ALS isn't flared by a disc issue or injury.
  11. @Zazz hope your doing ok ❀️
  12. New section (still a work in progress) anyone who wants anything added feel free to make a thread or PM me. This section of the forum will only be admins allowed to post and members to write treatment reviews on.
  13. Reaching out to us here was a great start! I also agree you should seek help with a therapist. Your anxiety seems really high.
  14. Any updates? I'm sure he's doing just well!
  15. I want to talk about what I've learned about being scared. First, because becoming sick has taught me so about fear and what fear is. Second, because that's the thing, fear is a liar. It'll make you feel so alone even when you're in a crowded room. It pretends that it's helpful and makes sense. And sure, caution and concern can be beneficial. But the concern is something you own. Fear has a way of owning you. Fear tells you everything will go wrong. Or that it will never get better. Or you're not enough. And that after a long time of listening to the fear in my head, it wasn't helping me. But do you know what was helping? Love. And love was the one constant in my life. It always made things better. Love has a way of shining a light on things where fear tends to cover them up or hide them. Love casts out all fear. And I realized I didn't fully accept love when I let fear make a lot of my decisions. Fear says lay in bed, think about all the ways you're failing, and that the worst possible outcome will happen. And love says, wow, it's a new day. Look at all the gifts around you. How can you share those with your friends and family? Right now, I'm a mess. And at first look, I get overwhelmed. But then, my mood sinks and my heart feels like it's pounding out of my chest. Finally, my body becomes paralyzed, and all I can do is sleep. Suddenly, with projects half done and unaccomplished achievements, I want to beat myself up. I feel like my life has become a giant to-do list that I can't seem to keep up. It takes a minute. When writing all these things down, these thoughts stem from the fact that I don't think I'm enough. It's a fear mindset. The fear that speaks to me, "is all my life going to be one giant to-do list that I can't keep up with"? But what does love say when I put all my thoughts in the light? And I start poking them to see if they are truthful. Love says start. Well, fear says this is a never-ending to-do list. Love says it's a bucket list, and I don't have to do these things, but I get to do these things. It makes doing these things so much more enjoyable. So much more empowering. I get to do these things because I am alive. So why wouldn't I want to? I am so much more than the bad things that happened to me. Don't I want to see what happens if I don't give up? Don't I? Many people want to hope for something in their life but are afraid because of their circumstances. The fear is holding you back. Love gives you hope. Right now, I'm just clearing out my space so I can clear my thoughts along with it. Moving forward with love and hope is my only way to find happiness. Have I gotten less scared as the years have gone on? I feel like the answer is no; I haven't. But the flashlight of love is right next to me when I'm ready to turn it on. I have realized the power of having people around me with flashlights. Because when you are part of a loving community, fear doesn't stand a chance. I can't tell you for so long that I believed the lie that no one wants you to ask for help and that you're a burden if you ask for people for help. It's the complete opposite. People have strengths that are other people's weaknesses. So I can't come up with a better invitation to encourage people to share their gifts.
  16. I struggle with health issues and the unknowns of the progression. Each day is a new day. And I know my off days. I also know my really good days. Diet, exercise, sleep and reducing stress are all things I do as preventive to make sure my illnesses don't get worse. Fear lies to you. It's not your friend. Do not allow fear to control your day. I know easier said than done. But I know I am doing everything I can to be healthy. And I have to accept that.
  17. Ohhh how I would love to! I see a cat outside and I'm like oh, well - that's my cat now.