Denv12

Aussie cfs sufferer with ocd.

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Hi.

I am an cfs sufferer.And,I have ocd as well.I'm homebound because of cfs.I'm not bed ridden.I do walk around the apartments (units as us aussies call them).I just dont leave home.I live on my own.I guess I got agoraphobia because cfs has lingered so long.Had cfs since early 2000.I've made progress since 2000.I can walk further now than I did back in 2000.

My social life is a real fizzer due to cfs.I just dont have a social life.On top of that the ocd really messed me up.Good thing I'm recovering from ocd.

Thats if from me for mow.Thanks for reading my post.

Chris.

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It must be hard, I don't have cfs but I have health issues that have caused me to suffer agoraphobia too, so in that sense I can relate. I also don't have a social life, tbh I'm quite happy with it that way. Is anxiety mostly talking here? Possibly, but I have adapted to be this way. Bless the internet tho! It's my only 'social' interaction and I would be lost without everyone here.

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Hi Gilly.

Thank you.

Having all these problems combined just messes up your life.I'm making progress.

Chris.

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Sure does Chris, glad you're making progress :)

Hi illy.I just logged out,checked my email and back in again.I had just posted about stress affecting me\,etc.Just had to ask for advice.

Thanks for the replies.

Regard Chris

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Hi Chris,

 

I've had CFS for the last 15 years and I don't cope too badly with it. I don't have a social life and I haven't had a relationship the whole time I've been ill. Thankfully that doesn't bother me too much. I just find that coping with CFS AND depression AND anxiety all gets a bit too much to deal with sometimes (such as now!). I'm finding websites like this really helpful, I can socialise with people who understand me without getting stressed or tired.

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Hi Chris,

 

I've had CFS for the last 15 years and I don't cope too badly with it. I don't have a social life and I haven't had a relationship the whole time I've been ill. Thankfully that doesn't bother me too much. I just find that coping with CFS AND depression AND anxiety all gets a bit too much to deal with sometimes (such as now!). I'm finding websites like this really helpful, I can socialise with people who understand me without getting stressed or tired.

Hi.

 

The OCD has mostly gone now.Its a few little things and cfs now.

I just get bored because I dont have a social life.I joined a penpal site.Its a big site.(interpals.net)

I'm on facebook,but that hasnt helped find old friends.I joined a lot of forums for anxiety and others for CFS but they got quiet so I rarely go back unless I get a reply.I'm open to recommendations on other sites that you know of.

 

Thanks for the reply.

 

Chris.

I try to keep occupied at home.

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Hi Chris,

 

I have suffered with Major Depressive Disorder, Panic Disorder with Agoraphobia, Anxiety Disorder, and Trichotillomania.  I decided to undergo Ketamine Infusion for the treatment of MMD, and the physician suggested that I, too, suffered from CFS. He came to this conclusion due to the treatment resistant depression that I struggled with, specific blood test markers that I tested positive for, and physical symptoms that I suffered with.  Initially, I just ignored his opinion because I just didn't want another "label" on my rap sheet.  :/  After about 6 months, I did start his recommended treatment to tackle the treatment of potential CFS.  I started taking an antiviral medication.  At first, I was even more exhausted, suffered from headaches everyday, and felt nauseous often.  But after about 5 weeks (which was a rapid response), I couldn't believe the positive effects of the treatment.  Instead of sleeping up to 14-20 a day, I was averaging about 10-12 hours a day...and I am currently averaging 7-10 hours of sleep each day.  I had more energy to do some of the simple household chores that I had stopped doing for years: cooking meals, laundry, dusting, vacuuming...etc.  I had the energy to actually get ready everyday...I started to actually fix my hair regularly because I had the time and energy to shampoo, dry, and fix it!!!  It continued to get better as the weeks passed.  It's been about 6 months since I've been treated for CFS, and I have to admit, that I am still pleasantly surprised that my doctor was right!!   I don't really know how long I may have suffered from CFS, because I thought that the extreme fatigue I experienced was in part due to the depression, anxiety, and agoraphobia that I had been living with.

 

I hope that things are looking up for you these days.  :)   

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Hi Chris,

 

I have suffered with Major Depressive Disorder, Panic Disorder with Agoraphobia, Anxiety Disorder, and Trichotillomania.  I decided to undergo Ketamine Infusion for the treatment of MMD, and the physician suggested that I, too, suffered from CFS. He came to this conclusion due to the treatment resistant depression that I struggled with, specific blood test markers that I tested positive for, and physical symptoms that I suffered with.  Initially, I just ignored his opinion because I just didn't want another "label" on my rap sheet.  :/  After about 6 months, I did start his recommended treatment to tackle the treatment of potential CFS.  I started taking an antiviral medication.  At first, I was even more exhausted, suffered from headaches everyday, and felt nauseous often.  But after about 5 weeks (which was a rapid response), I couldn't believe the positive effects of the treatment.  Instead of sleeping up to 14-20 a day, I was averaging about 10-12 hours a day...and I am currently averaging 7-10 hours of sleep each day.  I had more energy to do some of the simple household chores that I had stopped doing for years: cooking meals, laundry, dusting, vacuuming...etc.  I had the energy to actually get ready everyday...I started to actually fix my hair regularly because I had the time and energy to shampoo, dry, and fix it!!!  It continued to get better as the weeks passed.  It's been about 6 months since I've been treated for CFS, and I have to admit, that I am still pleasantly surprised that my doctor was right!!   I don't really know how long I may have suffered from CFS, because I thought that the extreme fatigue I experienced was in part due to the depression, anxiety, and agoraphobia that I had been living with.

 

I hope that things are looking up for you these days.   :)   

 

Hi Junie.

 

I'm glad you found something that works for you.

I never touched a drug.

 

For the last 5 years I was being treated by a muscle testing/pressure point chiropractor.I stopped having treatments then found a great website with pressure point exercises that anyone can do.Have a look at this site.Its free.

 

http://www.herbalshop.com/Acupressure/Acupressure01.html

 

On the left side of the page is a list of symptoms.Click on any symptoms,go to the page showing the diagrams of pressure points relateing to those symptoms.Take it from there.Go through all symptoms you can relate to.

 

I've been doing these pressure point exercises everyday now for around 6 months.I just bought 3 books on pressure point healing too.

 

Chris.

 

 

 

 

 

 

 

 

 

 

 

 

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Wow Chris,

 

That's awesome!!  :D  Thanks so much for the pressure point link, it's sounds like a wonderful resource!  Keep us posted with regard to the books after you've read them, I'd be interested in what you learn and/or your opinion on them.

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Wow Chris,

 

That's awesome!!   :D  Thanks so much for the pressure point link, it's sounds like a wonderful resource!  Keep us posted with regard to the books after you've read them, I'd be interested in what you learn and/or your opinion on them.

Thanks Junie.

 

I dont like sitting around waiting for answers.I found things that help me.I've spent a lot of money trying various treatments.I found what works and what is a waste of money.

 

I would suggest people look into the pressure points link and find symptoms they can relate to then do those twice a day,they will find they will feel better within 30 minutes and make progress regularly from there on.Not bad for something thats free and takes a few minutes each day.I went one step further by buying some books.I found these three.You are still in print so you could get them around if you shop around.

 

As for books,its a trial and error.Shop around and find something you can relate to.I've bought these:

http://www.amazon.com/gp/product/0553382438/ref=oh_aui_detailpage_o02_s00?ie=UTF8&psc=1

 

http://www.amazon.com/Acupressure-Atlas-Bernard-Kolster-M-D/dp/159477207X/ref=pd_sim_b_5?ie=UTF8&refRID=1NRJGJ13C4EB0FGHGT17

 

http://www.amazon.com/Healing-Pressure-Point-Therapy-Techniques/dp/0735200068/ref=pd_sim_b_6?ie=UTF8&refRID=0JGQ58REMVDRH4MCJZKX

 

I would encorage people not to wait for answers but while you are suffering find things that can reduce the severity of your symptoms.Here are the ones I do twice a day:

http://www.herbalshop.com/Acupressure/Acupressure02.html

 

http://www.herbalshop.com/Acupressure/Acupressure03.html

 

http://www.herbalshop.com/Acupressure/Acupressure_20.html

 

http://www.herbalshop.com/Acupressure/Acupressure_18.html

 

http://www.herbalshop.com/Acupressure/Acupressure_19.html

 

http://www.herbalshop.com/Acupressure/Acupressure_27.html

 

http://www.herbalshop.com/Acupressure/Acupressure_07.html

 

http://www.herbalshop.com/Acupressure/Acupressure_48.html

 

http://www.herbalshop.com/Acupressure/Acupressure_26.html

 

I do the insomnia one an hour before I got to bed.I sleep real well all night.

 

As I have chronic fatigue syndrome (cfs) I'm a lot better off since doing these.As for OCD I'm making great progress.Most times I'm bored.Living on your own isnt fun.I live comfortably.I have friends who have anxiety and most of them wont do anything to look after themselves at all.

 

Chris.

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Chris,

 

It is admirable that you are clearly doing as much as you are able to in order to manage your disorders.  It is most certainly a journey in searching for solutions to help reduce/manage symptoms that vary depending on each individual's disorders.  Personally, I've tried the following treatments, procedures. and therapies:   EMDR Therapy, Cognitive Behavioral Therapy, Hypnotherapy, Meditation, Breathing Techniques, Visualization, Self Talk, Self Hypnosis, Soul Retrieval Ceremony (a Shamanic Ceremony), Massage Therapy, Exercise, Heliotherapy, Adjusting my Diet, Reiki Therapy, and various pharmacological medications. Learning about various causes and various treatment alternatives of certain disorders that pertain to us can be extremely frustrating...to the point that some people just want to give up.  After lots and lots of trail and error, just as you sound like you have been through, it's wonderful that you seem to be at a point of being able to find that you are much more capable of managing your disorders.  It is very wonderful to read that, and I'm excited to learn more from the resources that you have been so kind to share!  The wealth of information that you've provided is so valuable!!  Thank you so much!   :)   Have a fantastic day!!  

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Chris,

 

It is admirable that you are clearly doing as much as you are able to in order to manage your disorders.  It is most certainly a journey in searching for solutions to help reduce/manage symptoms that vary depending on each individual's disorders.  Personally, I've tried the following treatments, procedures. and therapies:   EMDR Therapy, Cognitive Behavioral Therapy, Hypnotherapy, Meditation, Breathing Techniques, Visualization, Self Talk, Self Hypnosis, Soul Retrieval Ceremony (a Shamanic Ceremony), Massage Therapy, Exercise, Heliotherapy, Adjusting my Diet, Reiki Therapy, and various pharmacological medications. Learning about various causes and various treatment alternatives of certain disorders that pertain to us can be extremely frustrating...to the point that some people just want to give up.  After lots and lots of trail and error, just as you sound like you have been through, it's wonderful that you seem to be at a point of being able to find that you are much more capable of managing your disorders.  It is very wonderful to read that, and I'm excited to learn more from the resources that you have been so kind to share!  The wealth of information that you've provided is so valuable!!  Thank you so much!   :)   Have a fantastic day!!  

 

Hi Junie.

 

I'm glad I can share my experiences here.If it helps one person its a bonus.I dont mind helping.Its comforting to know that you are interested in how I deal with my life.Please feel free to compare notes and if you can share the information with others yourself please do.

 

I did naturapathy,homeopathy,hypnosis,pain management,herbal supplements,etc.I dont mind hypnotherapy.I love it.Had a few good therapists over the years.

 

Everyday I do my list of pressure points.Some I do twice daily,others I do once a day or even less.I've gained so much of myself and the healthy aspects and the fact that its free are just brilliant.We can all spare a few minutes a day to feel better,reduce the severity and make progress too.

 

I just bought another book.

 

 

http://www.amazon.com/Acupressure-Atlas-Bernard-Kolster-M-D/dp/159477207X/ref=sr_sp-atf_title_1_1?s=books&ie=UTF8&qid=1409816901&sr=1-1&keywords=acupressure+atlas

 

As I'm homebound I bought some books on social skills/how to have conversations,etc.I needed to start dealing with that.I hate being lost for something to say in a conversation,let alone how to start one.I love readfing.I may as well spend the time reading self help books while I'm home.My life isnt going down the drain.

 

A big thanks to this forum for allowing me to share my experiences and the links that I use.I hope that others will enjoy the benefits like I do.

 

Chris.

 

 

 

 

 

 

 

 

 

 

 

 

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Well, Chris, I must say that you are very well spoken with the written word.  In addition, given the fact that you really enjoying reading, your knowledge on the particular challenges that you've been faced with is most likely a gift to others who may be suffering with similar - if not the same - challenges that you, myself, and many others are faced with.

 

Likewise, I do share some of my experiences as well.  I believe that the many years of feeling so hopeless, miserable, worthless, tired, unmotivated, frustrated, despair...etc...have given me the courage, strength, and desire to freely communicate certain challenges that life has handed to me.  There have been countless occasions in which I just wanted to give up, but in retrospect, I can clearly see that I had a bit more determination to continue seeking for solutions that would help me find my way back to myself; the life that I deserve and belongs to only me.  If I had to relive minute of everyday of the 10+ years that I really, really suffered, I would gladly do it all over again if only to give a single person inspiration, hope, guidance, and/or any suggestions that would give them courage and strength to not give up...to be persistent...to remind them that they are worthy...that they are not alone.    To help even a single person is my idea of true success.  :)

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Well, Chris, I must say that you are very well spoken with the written word.  In addition, given the fact that you really enjoying reading, your knowledge on the particular challenges that you've been faced with is most likely a gift to others who may be suffering with similar - if not the same - challenges that you, myself, and many others are faced with.

 

Likewise, I do share some of my experiences as well.  I believe that the many years of feeling so hopeless, miserable, worthless, tired, unmotivated, frustrated, despair...etc...have given me the courage, strength, and desire to freely communicate certain challenges that life has handed to me.  There have been countless occasions in which I just wanted to give up, but in retrospect, I can clearly see that I had a bit more determination to continue seeking for solutions that would help me find my way back to myself; the life that I deserve and belongs to only me.  If I had to relive minute of everyday of the 10+ years that I really, really suffered, I would gladly do it all over again if only to give a single person inspiration, hope, guidance, and/or any suggestions that would give them courage and strength to not give up...to be persistent...to remind them that they are worthy...that they are not alone.    To help even a single person is my idea of true success.   :)

Thanks Junie.

I had a good upbringing.I didnt finish high school but I used the years following to better educate myself.

 

From the day I first became ill I had no idea what to do.I had to start somewhere.I went through a process of elimination.Trying things hoping to get rid of my problems. I must say that if I had the understanding I have today I would have continued on with reflexology.Its in my acupressure books.

 

I believe we have to own up to our own lives.We have to take responsibilities for ourselves.I didnt have the luxury of time.I had to find answers.I could just sit around and wait.I know a few people who dont do anything to look after themselves at all.I made the effort and it paid off.I won the battle.OCD is mostly gone.It changed the way I looked.It changed so many things about me but I never lost sight of me.I could still see the real me in the mirror.It makes you realise how easily we can change and lose ourselves.I didnt.

 

The version of OCD I had is called "Functional Impairment".Its about lack of self care/hygiene.Think of a disorder as a computer virus that stops you doing things you want to do and have to do.And,it makes things you shouldnt do.That virus has got to go.I won.From 2006 I couldnt do any grooming and many other daily chores.I looked like one of those old homeless looking guys who hadnt shavedk,etc in years.OCD did that to me.I couldnt live like that.It had to go.About 2 years ago I started making a little progress.In October 2012 I made the biggest ongoing progress and my neighbours didnt realise that I was their neighbour.

 

I love knowing that I put that information out there.As the saying goes,"You can lead a horse to water but you cant make them drink it".That information is there.If people want to try it they will gain big time.I would love to know how you get on.You have given me hope.As you are taking an interest in my experiences I feel better that I've done something to help you through a day.I helped one person.I'm in front already.I hope you can share my rewards by helping at least 1 person.

Thanks for sharing.We can do this together.You have my blessings.

 

Chris.

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