MamaBear2

New to this.... ALS Fears

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Hello! I am new to this forum and I’m not even sure where I fit at in the world of anxiety.  I’ve always thought I probably struggled more with anxiety than I ever let on.  From a young age, I was always worried about people close to me dying, worried about silly things, worried about what people were thinking of me, and if someone was upset then I automatically thought it was something I had done and I worried about it constantly.  Since having my own children, I worry about my health.  I don’t want to fail my children by dying of a fatal disease. So, my doctor recently put “general anxiety” on my chart.  I’m not one to go to the doctor often, and I try to not let others know if I’m worried about my health because they don’t understand the fear.  So maybe I really am in the spectrum of “anxiety” and “health anxiety.”

Recently, I noticed I was twitching.  It seemed to start in my eye and then go to other random places.  I didn’t think much of it at first because about a year ago, this happened and I chalked it up to a new prescription and it went away a few weeks after stopping the meds.  It was a script for some meds to help with excess stomach acid.  I instead went to my chiropractor and decided a more natural way was better. 

But, then as the twitching continued, I remembered that last year, when I looked it up, ALS popped up.  I didn’t fear it much at that time because I knew I’d started this new medication and a gluten free diet.  But this year, nothing had changed with diet or meds.  So I started reading.  I realized maybe I had been more clumsy with dropping items and sometimes being off balance.  I made an appointment with my doctor but it was 3 weeks away.  Finally, after a night of now sleep and waking up with my whole body shaking and jerking, I asked if I could be seen sooner. I had to see the nurse practitioner, which was fine with me.  

She said  my reflexes seemed fine and my strength was fine.  She ordered a range of blood tests and they all came back fine, except I was low in vitamins d.  When I met with my actual doctor a few weeks later, she said the low vitamin d could be playing into my anxiety.  She gave me a supplement to take and I started seeing my chiropractor who thought maybe I had something out of place in my back.  My doctor and the chiropractor did a neuro exam (strength, reflexes, following fingers, etc).  My doctor said it all looked fine but she could refer me to a neuro if I wanted.  My chiropractor noted some brisk reflexes but only in my knees.  He said worst case : MS but he thought just a bone out of place. I told him MS would be welcome compared to my fear of ALS.

Last week, I went to the neuro.  I was told I’d be seeing the PA and then the neuro.  PA gave me a neuro exam, and said my strength was fine and didn’t say much about anything else.  She left the room, came back in, and said they’d order an mri and an EMG.  I asked if anything concerned her from exam and she said no.  

I was hoping she would tell me it was anxiety or benign or something and that she didn’t see any need for further evaluation.  So the fact she wanted to test me worried me and the twitching seemed to increase. 

I semt her a message on the patient portal, like she told me I could do, asking again for any concerns.  It’s been a week and I haven’t heard back.

i worry about ALS and my children having to watch that terrible disease progress.  I really hope and pray this is just anxiety, but I can’t shake the feeling that I have it.  I am still having twitching, which it mainly in my thighs, knee area, and shoulder area, and sometimes in my face and eye.  There are days it’s more on one side then the other.  I can still walk on toes, heels, etc but I know my balance is off.  My left side seems to have taken more of a hit. Then I think my hand is getting weaker and my ankle or lower leg hurts and I think it’s from other muscles needing to make up the work from one that has died.  

Sleep has been so hard.  Last night, the twitching increased as I went to bed. I dreamed about twitching all night long.  I woke up to a feeling of an internal vibration and both arms were asleep.  This has happened before.  As soon as I wake up, I feel a twitch and it all goes down from there.

i know the possibility of ALS is low.  I am 38 and female.  But I don’t want to be in the minority’s and actually be the person that everybody thinks has anxiety and it ends up being ALS.  My mri and emg is still 2 weeks away, with results being another week or 2 away.  My neuro is not a neuromuscular specialist, so I hope the testing is accurate and not fear-based.  He was the neuro with the shortest waiting list, which worries me too.  

Does any of this sound like it could be ALS or could it really be “just” anxiety? Anxiety seems like too easy of an answer. Thank you in advance for any advice.  

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Hi. MB2. So sorry about the delay in answering, but we do have this time zone problem. Anyway, welcome to AC. :).

Does any of this sound like it could be ALS or could it really be “just” anxiety? Anxiety seems like too easy of an answer. Thank you in advance for any advice.  

It is 'just' anxiety, but remember, anxiety can mimic any disease that you may have in your mind. Imaginary ALS and MS are the most popular today and they almost become a fashion among anxiety sufferers. It's because we hear so much about them. Now the worse possible thing you can do is to Google symptoms. Self diagnosis in anxiety, especially health anxiety, which you have, is very dangerous and can worsen the fears. You seem to have been checked out enough times and you MUST believe the medics. They know what they are doing and mistakes are very rare. You are focusing all your attention on how you feel. Now I am not minimising how those awful feelings are, I do know, but can you accept them for the moment knowing they will pass? The more you allow them entry into your mind the more they will bother you.

Can you see how worry and fear cause anxiety in the first place, and how worry and fear allow it to continue? It's a self perpetuating cycle. Fear/anxiety/symptoms/fear……..! It can and so often does become a habit which is difficult to break. You can do all sorts of things to help, but in my view, and it is a personal one because it helped me, ACCEPTANCE is the best way. It doesn't work at once but takes time. By accepting and not adding fear to fear the symptoms gradually die down.

It sounds as if your childhood was full of apprehension and the fear of what others might think of you. This self consciousness goes with anxiety. Is there any reason for the this feeling from years ago? If you can find the cause it can help. Good counselling would also help, if you can get it and afford it.  Mild medication and talking out your feelings can help so much. Take care. Good to have you here and come back whenever you want to unload.  We are all here and all know how you feel.

 

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Thank you for the response! I try to tell myself it’s just the anxiety causing my symptoms, but then I don’t want to get my hopes up just to find out I have ALS.  I’m not sure if that makes sense or not! I don’t want to be masking my symptoms if there really is more to it! I wish my neuro would respond back to my message because that would provide me some assurance.

I'm missing out on about 2 hours of sleep every night. I fell asleep without twitching last night and I’m hoping it could be from reading so many of the messages on here. But, of course, I woke up at 4:00 and the first thought I had was “Do I have any twitching?” Any then it all started.  Every time I started to fall asleep, my wrist would jerk or my fingers would move around or I’d feel twitching.  

I have some assurance in knowing I twitch in several places, not just one.  However, the part that my brain gets concerned about is that it’s the same few places that I twitch at plus some random ones thrown in there.

i wish I could have one night/morning of not thinking about ALS. 

Thanks for listening! 

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2 hours ago, MamaBear2 said:

Thank you for the response! I try to tell myself it’s just the anxiety causing my symptoms, but then I don’t want to get my hopes up just to find out I have ALS.  I’m not sure if that makes sense or not! I don’t want to be masking my symptoms if there really is more to it! I wish my neuro would respond back to my message because that would provide me some assurance.

I'm missing out on about 2 hours of sleep every night. I fell asleep without twitching last night and I’m hoping it could be from reading so many of the messages on here. But, of course, I woke up at 4:00 and the first thought I had was “Do I have any twitching?” Any then it all started.  Every time I started to fall asleep, my wrist would jerk or my fingers would move around or I’d feel twitching.  

I have some assurance in knowing I twitch in several places, not just one.  However, the part that my brain gets concerned about is that it’s the same few places that I twitch at plus some random ones thrown in there.

i wish I could have one night/morning of not thinking about ALS. 

Thanks for listening! 

Hi MamaBear. well we are one in the same!! I'm 39, female and I have three children. I started with having a small panic attack during a grief counseling session then getting twitching in both calves later... googled twitching and nearly passed out in my living room.. ALS popped up.. I went to my Dr who also found tests to be normal including blood... but I had already had an appt with a neuro.. and this is where both you and I should have stopped. your Dr. should not have sent you to a neuro and while they did it to make you feel better it's completely unnecessary and they know it. if you passed strength test.. there is no als. twitching in ALS is after muscle death.. you would be failing and would have been a the doctor months and months ago... ALS twitches are entirely different then what you are experiencing. My neuro also said I passed his tests... but wanted to schedule an emg. well I left in a total panic. My husband was furious! He told me no more and not to go back. I carried this worry for two years!!!!!!!!! and it was mostly bec of the stupid neuro and what if's

So follow through and get your emg and when it comes back clean, which it will... drop this worry and never, ever look back.

hug. you don't have als.

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Thanks, Holls.  I was finally able to get my neuro to respond back to my message.  She said that if I didn’t want to do the MRI, that could probably wait but she still recommended the EMG/nerve test due to the twitches.  I asked her to clarify that my exam was normal and she said yes but that the only way to rule out ALS is by doing the EMG. The wait for the test seems so excruciatingly long. I go back and forth between ready for the day so I can be told I'm ok and can finally move on and dreading the day and wondering if I’m doing the right thing by finding out I do in fact have ALS. Is it better to know or better to be oblivious kind of thing?! Ugh! 

We have a family vacation coming up at the end of May.  I keep thinking that if my emg comes out badly, then I have ruined our vacation and I won’t be in any mood to relax and enjoy the precious time I have left.  

I have also read that the twitching is after muscles die but I still find myself wondering if I’ve just lost such small muscles that it isn’t noticeable yet.  I twitch in the same spots, with some random ones thrown in there. That’s my biggest concern.  And my knee has been bothering me, which makes me doubt my strength.  It wasn’t bothering me last week during my exam.  I think I’ll have my chiropractor test my strength tomorrow, just in case! 

 

Did your twitching  ever stop? I guess that’s the one positive to the emg... I’ll have some answers, whether it be good or bad! 

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I see there’s a lot of posts on here regarding ALS.  Even my chiropractor said, “Wow. You really are going for worst case here!”  He knows my fears.

Those of you with twitching... was it ever located in just a few places? I guess mine would be considered body-wise, but I have twitches in the same spots, from my eye down to my arm, shoulder blade area, abdomen, upper thighs, knees, calves, and feet. But it’s in the same spot on each of those body parts.  And in some places more frequently than others.  My only saving grace has been that it’s located bilaterally, and not just on one side of my body.  Not sure if that makes a difference, but I hope so!

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22 hours ago, MamaBear2 said:

Thanks, Holls.  I was finally able to get my neuro to respond back to my message.  She said that if I didn’t want to do the MRI, that could probably wait but she still recommended the EMG/nerve test due to the twitches.  I asked her to clarify that my exam was normal and she said yes but that the only way to rule out ALS is by doing the EMG. The wait for the test seems so excruciatingly long. I go back and forth between ready for the day so I can be told I'm ok and can finally move on and dreading the day and wondering if I’m doing the right thing by finding out I do in fact have ALS. Is it better to know or better to be oblivious kind of thing?! Ugh! 

We have a family vacation coming up at the end of May.  I keep thinking that if my emg comes out badly, then I have ruined our vacation and I won’t be in any mood to relax and enjoy the precious time I have left.  

I have also read that the twitching is after muscles die but I still find myself wondering if I’ve just lost such small muscles that it isn’t noticeable yet.  I twitch in the same spots, with some random ones thrown in there. That’s my biggest concern.  And my knee has been bothering me, which makes me doubt my strength.  It wasn’t bothering me last week during my exam.  I think I’ll have my chiropractor test my strength tomorrow, just in case! 

 

Did your twitching  ever stop? I guess that’s the one positive to the emg... I’ll have some answers, whether it be good or bad! 

Hi... Well my twitches lasted for probably 6months.. and then left for four months then came back when I got anxious again.. then left and never came back. I had mine always in both calves but sometimes would have them in my bicep and even stomach.  I also had buzzing in my left thigh only for about a year as well as feeling weakness in that leg. 

I'm going to be really honest here.. your neuro seems like a jerk. He or she knows damn well you don't have als but an emg and MRI scans are how they make their $$$ my primary Dr told me holls you don't need the emg. Let it go.. strength tests can rule out als as well as reflex tests. And you wouldn't be twitching in more than one spot and yes als twitches are after muscle death and LOSS. Sorry you have to go through this and wait. I know some of us on here get great neuros but it's a 50/50 chance and looks like we both got the ones that love to test :(

Hugs. You don't have als. 

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I saw every person making an appointment to schedule some type of testing while I was there! 

I talked to my chiropractor today and he said he hasn’t noticed anything with my strength.  I have some really tight muscles and he’s stretching those out pretty well.  He said it wouldn’t hurt to have the emg  just because it would give me specifics on if something else was going on. But he didn’t seem to think he was concerned about ALS.  He said I’d have crazy reflexes and he’d be able to tell if I had any muscle weakness. He’s tested my legs strength before. Just not in the past few weeks. 

I keep hoping the twitching would stop before my emg so I could just cancel it! I don’t see that happening though. If it’s from any type of anxiety, it’s not going to go away while I’m waiting for an appointment and results! 

 

 

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3 hours ago, MamaBear2 said:

I saw every person making an appointment to schedule some type of testing while I was there! 

I talked to my chiropractor today and he said he hasn’t noticed anything with my strength.  I have some really tight muscles and he’s stretching those out pretty well.  He said it wouldn’t hurt to have the emg  just because it would give me specifics on if something else was going on. But he didn’t seem to think he was concerned about ALS.  He said I’d have crazy reflexes and he’d be able to tell if I had any muscle weakness. He’s tested my legs strength before. Just not in the past few weeks. 

I keep hoping the twitching would stop before my emg so I could just cancel it! I don’t see that happening though. If it’s from any type of anxiety, it’s not going to go away while I’m waiting for an appointment and results! 

 

 

I like your chiropractor!!! Everything he said is right. Yes you are right.. even after you feel less anxious or have no anxiety at all it takes awhile for the twitches to stop. Sometimes it took mine a week or two to calm after my anxiety would settle down. So don't worry if they don't leave right away. Go about your normal activities.. keep your mind busy busy and your emg will be here before you know it and this will all be behind you. :)

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I sure hope the EMG comes back clean and I can put this past me!

has anyone here ever had the jerking/twitching when waking up and trying to go back to sleep? I think those are the most concerning for me because they are in more common spots for als to begin (toes, fingers) but also all over. But I keep trying to tell myself I wouldn’t have that in more than one location (hopefully), if this was als. 

I just want to get back to living... if that makes sense!

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26 minutes ago, MamaBear2 said:

I sure hope the EMG comes back clean and I can put this past me!

has anyone here ever had the jerking/twitching when waking up and trying to go back to sleep? I think those are the most concerning for me because they are in more common spots for als to begin (toes, fingers) but also all over. But I keep trying to tell myself I wouldn’t have that in more than one location (hopefully), if this was als. 

I just want to get back to living... if that makes sense!

i get jerking in my neck, arms, shoulders, legs when i try to sleep and when i wake up through the night and try to fall back asleep.

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Good to know!

I think one of my worries is that this could be Upper Motor Neuron, which doesn’t always show up as muscle weakness and such (or so I’ve read).  Although, I still don’t think I should be passing a physical neuro exam if it was just upper, either.

 I do have VERY tight muscles, even my chiro comments about how tight my hamstrings and calves are. Nowhere else though and I’ve always had tight hamstrings. I’m assuming that is different than the spasticity that is associated with ALS?

I have had some ankle issues (pain around the bone) off and on for the past week or so.  Of course, I worry it’s because I have lost use of a muscle in that area and it’s putting strain on my ankle.

Ugh! It’s never-ending  thoughts and worries. 

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5 hours ago, MamaBear2 said:

I sure hope the EMG comes back clean and I can put this past me!

has anyone here ever had the jerking/twitching when waking up and trying to go back to sleep? I think those are the most concerning for me because they are in more common spots for als to begin (toes, fingers) but also all over. But I keep trying to tell myself I wouldn’t have that in more than one location (hopefully), if this was als. 

I just want to get back to living... if that makes sense!

MB2, I have a lot of the same symptoms as you. I'm going on 4 months now of twitching/jerking. I actually had an EMG in January on both arms (my twitching started in my left shoulder) and they came back normal. Before that I went through the standard neuro exams, blood work etc.. all have come out normal. Honestly, I'm not too worried about ALS anymore, I'm just hopeful one day I wake up and not think or check to see if I'm twitching. I know it's why my symptoms persist.

I will say now, my left shoulder really doesn't twitch, but both calves twitch and I get a lot of random twitches in random places all over my body. Had a foot muscle twitch last night, that was interesting. I will also randomly have my ankle jerk, or maybe a shoulder, when I'm trying to relax or fall asleep. Those are lovely for your mind...

I've done too much research, but this forum and a Facebook group has really pushed out a lot of my fears. I believe I have BFS, benign fasiculation syndrome, and there are people who literally have the same symptoms as you for years. There are days I don't twitch much, typically when I'm more active, keeping my mind off of things. It's really a crappy situation. The EMG and nerve conduction study, while expensive and unnecessary, really does help with anxiety. As others have said, twitching typically comes second, only time it doesn't, you would have failed the basic neuro exam, which you haven't, and it's extremely rare for the twitches to come "first" (I think there is always muscle failure first, just could be in a muscle that isn't used often).

Good luck with your anxiety issues, don't feel alone either, there are a lot of "twitchers" like you and I out there. 

 

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That’s what I’m hoping! I have noticed that any time I sneeze my eye starts twitching now.  I have had a cough for a few weeks and notice that my back (towards arm pit area) twitches after I cough. 

I don’t notice much twitching during the day, unless I’m sitting down.  I don’t normally sit much at my job! I notice most of them at night and in the mornings. 

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Have any of you ever self-tested your babinski or had someone else (besides doc) test it? My neuro rested it but I was reading that your toes should curl under and I do not remember mine doing that.  I know it’s bad if the big toe points up and the toes fan out. And I have been thinking when she tested my right foot, the toes fanned a bit. But... when I asked if anything was concerning after my exam, she said it was all normal.  Surely she would have caught that? I’m wondering how crazy I would sound if I asked my chiropractor to test it on Monday? He already knows how anxious I am, but I hate to look crazy! Thoughts?

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First thing is to get off Google. Do not research symptoms, do not go to disease forums, do not try to get your MD on the internet. Let the doctors take care of it and trust that they know how and what to test for. 

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My long time clients brother in law had ALS for 3 years before he passed away at age 74. He was a lawyer and just when he decided to retire at age 71, he suddenly began to slur his speech pretty badly. At first they thought he had a stroke, but an MRI of the brain ruled that out. He also developed sudden muscle weakness and had trouble walking and holding on to objects. It took a little while to get the right diagnosis as other conditions had to be ruled out first. Anyway, he had very little to no jerking and twitching. 

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What really gets me is when I open up social media and see a random post from a friend about ALS and dignity in dying and when I turn around at the library and see a book being displayed and it’s a biography of Lou Gherig! Agh!! I automatically start thinking it must be a sign! 😫

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Sorry for the multiple posts today but wanted someone’s opinion... especially those of you who have also done tons of reading on ALS...

Today I had some twitches in my neck area.  Does that sound more concerning or is that still just twitching? 

Also, when cleaning house this morning, I had two fingers lock up on me due to the scrubbing position my hand was in.  This has happened to me in the past and I didn’t think much of it. Now it concerns me.  Does that sound like ALS? Or would it be constantly not able to move my fingers, not just briefly? Or could it start briefly in the beginning and then get to where it’s constant?

Thank you for any insight! I just feel like each day brings more and more symptoms out that worry me!

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As I have said in another post, I have known 4 people who had ALS and they did not have your symptoms. Please also ready my other post about ALS a few posts ago. 

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The fingers locking happens to everyone. I get it when I knit, scrub, doing a repetitive motion where you tighten your muscles can make that happen. It means nothing.

You said each day brings more symptoms that worry you. It sounds like you’ve become overly sensitive to normal sensations and then worry that they mean something. It happens to all of us, especially when our anxiety is already high. We notice everything and over analyze every feeling. But your new symptoms are nothing but normal sensations that happen to normal people. 

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On 4/10/2019 at 9:01 PM, MamaBear2 said:

I see there’s a lot of posts on here regarding ALS.  Even my chiropractor said, “Wow. You really are going for worst case here!”  He knows my fears.

Those of you with twitching... was it ever located in just a few places? I guess mine would be considered body-wise, but I have twitches in the same spots, from my eye down to my arm, shoulder blade area, abdomen, upper thighs, knees, calves, and feet. But it’s in the same spot on each of those body parts.  And in some places more frequently than others.  My only saving grace has been that it’s located bilaterally, and not just on one side of my body.  Not sure if that makes a difference, but I hope so!

Hi, I'm not sure if someone may have answered you here yet about this. But, your symptoms are incredibly identical to mine. Mine started in my face (around eyes etc) then moved down. My left hand felt weak. My twitching was concentrated around my knees, shoulders, a little in the calves, the arches of my feet, and some on my torso. Also, my tongue, which was pretty alarming, in fact my tongue is twitching as I write this.  As well, every time I would squint my eyes or sneeze, the twitching would start on my face around my eyes like crazy. It got pretty annoying and I could make my eyes twitch on demand. So, to sum this up, I waited a month for my EMG and NCS. One of my worst months on record. And it actually brought me here to this forum. Turns out it is benign fasciculation syndrome. My neurologist specifically watched my vastus medialis (muscle that ends near knee inside of thigh) twitch on both legs, and he said "this twitching area here is really common in BFS, but we aren't sure why." He was a neuromuscular specialist. This was during my EMG he said this. SO, I hope you are able to gain even a tiny bit of reassurance from this.

As well, you say your symptoms have been present for about a year? or More? If so, you would, no doubt, have significant weakness by now. And, I totally empathize with you as one mama to another. It's pretty rough thinking the worst and worrying about what your babies would do (I've been there). But I really doubt you have anything to worry about. I had twitching for 6 + months before my EMG. Now I'm 2 weeks past it, with no fear of ALS and I am still twitching.

Another thing, doing self reflex testing is not recommended, as its pretty inaccurate. I feel your pain in the waiting you have to do for this test. I do recommend though, go through with it. Then you will know without a doubt.

I hope this helps.

Regards.

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Thanks! It always helps to hear someone else’s story.  I hope mine ends with a clean emg, just like yours! 

My symptoms have been about 6 weeks, but a year.  I did have some twitching last year but it went away on its own and wasn’t as prevalent. Thinking it was from a medication from the GI doc after I had a scope done. 

 

What did your twitches feel like? Sometimes mine are one little “ding!”, someone’s it’s a fluttery feeling. Sometimes I can see them (esp by knee) and sometimes I can’t bc they are normally over by the time I look! The ones that worry me the most are the ones that feel more quivering.  

 

Thanks for your insight!

5 minutes ago, cate said:

Hi, I'm not sure if someone may have answered you here yet about this. But, your symptoms are incredibly identical to mine. Mine started in my face (around eyes etc) then moved down. My left hand felt weak. My twitching was concentrated around my knees, shoulders, a little in the calves, the arches of my feet, and some on my torso. Also, my tongue, which was pretty alarming, in fact my tongue is twitching as I write this.  As well, every time I would squint my eyes or sneeze, the twitching would start on my face around my eyes like crazy. It got pretty annoying and I could make my eyes twitch on demand. So, to sum this up, I waited a month for my EMG and NCS. One of my worst months on record. And it actually brought me here to this forum. Turns out it is benign fasciculation syndrome. My neurologist specifically watched my vastus medialis (muscle that ends near knee inside of thigh) twitch on both legs, and he said "this twitching area here is really common in BFS, but we aren't sure why." He was a neuromuscular specialist. This was during my EMG he said this. SO, I hope you are able to gain even a tiny bit of reassurance from this.

As well, you say your symptoms have been present for about a year? or More? If so, you would, no doubt, have significant weakness by now. And, I totally empathize with you as one mama to another. It's pretty rough thinking the worst and worrying about what your babies would do (I've been there). But I really doubt you have anything to worry about. I had twitching for 6 + months before my EMG. Now I'm 2 weeks past it, with no fear of ALS and I am still twitching.

Another thing, doing self reflex testing is not recommended, as its pretty inaccurate. I feel your pain in the waiting you have to do for this test. I do recommend though, go through with it. Then you will know without a doubt.

I hope this helps.

Regards.

 

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10 minutes ago, MamaBear2 said:

Thanks! It always helps to hear someone else’s story.  I hope mine ends with a clean emg, just like yours! 

My symptoms have been about 6 weeks, but a year.  I did have some twitching last year but it went away on its own and wasn’t as prevalent. Thinking it was from a medication from the GI doc after I had a scope done. 

 

What did your twitches feel like? Sometimes mine are one little “ding!”, someone’s it’s a fluttery feeling. Sometimes I can see them (esp by knee) and sometimes I can’t bc they are normally over by the time I look! The ones that worry me the most are the ones that feel more quivering.  

 

Thanks for your insight!

 

Yeah, mine range from big huge twitches I can see that last a few "thumps," to almost a buzzing/crawling feeling that I cannot see. I have all kinds in between. I do have to say that none of mine last very long. As in, at the most a couple of seconds and stop with use of the muscle. I don't think there is any identifying a pattern for als twitches vs bfs twitches etc.. At least not that we (not MD's) could see, that is why you have the EMG. It will look for a specific pattern that is found with als. It is pretty characteristic so they will likely know right away whether or not you have it. My neuro told me right there.  

Think back to about 6 weeks ago or so, did something happen in your life? Was there big change? I was already stressed when mine was triggered (I believe) by the death of a friend. It brought on anxiety that I didn't notice, and made itself known physically unfortunately. I too was told "wow, worst case scenario huh?" And its like, how are we not supposed to think this, when its the first thing that comes up?! Good ol' Dr. google. 

When is your EMG scheduled? Soon I hope. 

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