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Found 36 results

  1. vismonkey19

    ALS Fears and Manifestation

    I wanted to share very briefly what I have been going through the last month. Im a 39 year old male and Ive had HA off and on since I was a child. Some months are great and some months are bad. My most recent episode started with me having internal trembling when I was in bed. Whenever I would wake up throughout the night I would have sensations of my limbs trembling (non-visible). I've had this off on through the last year, but it was becoming more persistent. So, I made the mistake of googling what might be the cause. Of course many things can be the cause, but I zeroed in on ALS (which I guess internal vibrations is not a common ALS symptom). This is when all the crazy stuff started to happen. At the time I started to Google ALS the only symptom I had was internal vibrations. The more I read the more I started to manifest symptoms. The first new symptom was that my hands started to feel stiff and I started to have a lot of trouble typing (within one day of googling ALS). I'm graphic designer so I type and use a mouse all day long. Next my legs started to become very weak. Both legs from my thigh to my feet would become very wobbly and felt that I had just worked them out. My legs felt like they were falling asleep and would be tingling, almost ticklish. I then started looking for foot drop and I started walking funny and favoring one leg over the other because one leg was weak and tingling more than the other. Next came twitching and spasms at night mainly, but some during the day as well. Next I started remembering back that there were times when I had thought I was slurring my words. The slurring started to get worse and I was concentrating on my voice and speech constantly. My neck began to hurt and my voice began to be more raspy and hoarse (almost no voice at times). My tongue started feeling awkward in my mouth and I began to inadvertently bite it. Next I started checking reflexes and noticed that I was very jumpy and my fingers would constantly twitch when I would fan them out. This all happened within two weeks from when I first started googling ALS. My inclination is that many of these ailments/symptoms already existed, but I'm just more aware of them because Im looking for them. I still have all the above symptoms and I'm still constantly checking all parts of my body and I find new symptoms that I think point to ALS every day. I'm a little over three weeks into my ALS fears and my mindset and more importantly my body is really feeling the affects of my anxiety. I'm sore all over and I have the urge to cry and my throat feels tight (can't cry though). I'm sharing all of this because there is a big part of me that knows a lot of these symptoms are very likely due to anxiety and my ability to manifest very real symptoms. I also thought it my be therapeutic to express what Im going through and also help anyone else who has had these symptoms and is battling HA. I look forward to the day that some of my symptoms subside so I can get myself out of this viscous ALS fear cycle (ALS symptoms seem to mimic anxiety symptoms almost perfectly at times). Thanks for letting me express myself and feel free to reply if you can relate.
  2. Solafide3

    Rock bottom

    I’ve had the twitching since December. At first I thought my weakness was just perceived. But every day it gets worse. I can’t lift things like I used to. Every thing I do I shake uncontrollably. When I wake up to go the bathroom my legs and arms are quivering and I feel as though I will collapse. The doctor confirmed it’s not just anxiety. I had an emg maybe 20 days after twitches started. I don’t feel like it was long enough to catch anything. Doc wants to do a Repetitive Nerve Stimulation test. Ive read tons of stories where a person loses gradual strength like me. For example: Im about to lose my family over this.
  3. Worried3232

    Twitches all over my body

    Hi guys i am a 20 yr old male and for the past 2 weeks I have had twitching throughout my body first it started in my eyelid and now it happens throughout my body randomly in different places any place in my body such as shoulder back butt forearm practically anywhere . I keep worrying that it is either als or some type of terrible disorder. I defiantly have health anxiety and worry about any little thing. I just am worried about this and I feel that posting on here and hearing others will help me tremendously. My twitches happen at random even at times when my anxiety flares up I do not notice them more than usual. They also can happen at anytime anywhere even if I’m not anxious nor thinking about them. Also when I go to look at them typically they are not there nor twitching only have seen my eye and leg and shoulder do it very few times. That’s how fast they come and go. They are 1-3 second twitches every time and only in my eyelid persist more than that or they’ll twitch for 1-3 seconds on and off for a couple of minutes . I’m very active I ran a mile today and did 100 push-ups and sits up yesterday and the day before that. I just am worried it is something worse and that it is not yet progressed because it’s only been 2 weeks. Please help
  4. Madmax

    New here and freaking out

    Hi everyone, need help!!! 12 years ago(I was 25) I had some small fasiculations and since I suffer fron severe health anxiety, ended up consulting 5 neurologists over 2 years and 2 EMGs. All clean and got the diagnosis of Benign Fasiculations. Tried to keep my anxiety in check over the years but last 6 weeks were very stressful workwise and commitments of a young family. two weeks ago the twitching came back and back with a bang!!! All over the body but more focussed in the arms(biceps,forearms and palm) and legs(calves). With it came a lot of fatigue and perceived weakness. And this put my anxious mind in a tailspin. Was checked by a neuro last week and he did his PHD in MND. He went through my history and did a quick neuro exam including mouth and reflexes. He thinks that I don’t have MND and he talked about his experience diagnosing MND. He said if I still want I can have an EMG in 5 weeks. To be frank I am freaking out right now... Need guidance from you all.. Anxiety is making me feel like I have never felt before. thanks for reading. Felt so good writing this.
  5. Madmax

    Toe Numbness on and off

    Hi, Since Friday, my big toe and 2nd toe is going numb on and off. Has anyone felt the same? Just a bit anxious with my twitching. It is going on continuously and the calves feel weird as if I am having constant goosebumps. And hating the butt twitching which feels like thumping and starts when I lie down. Praying it to go away. I know that’s not gonna happen till I ignore these twitches. thanks for understanding
  6. Hi there, I was wondering how many of you have been dealing with muscle fasciculations? Mine happen all over my body, but primarily in my knees/thighs when I am at rest. I was wondering how many of you also experience perceived weakness in it's company? Lastly, how many of you can pinpoint these to PTSD and/or other traumatic experiences? I have a long history of familial emotional trauma, in addition to having worked in Alternative Educational programs in the inner-city of Chicago, where I have seen and been the victim of various forms of trauma from that role as well... Any and all insight is welcomed.
  7. Before I begin speaking any, I guess I should give a little background on who I am and what I have been going through. My name is Daniel Hall and I am 18 years old. I'm currently a student at Lincoln Memorial University in Harrogate, Tennessee; I am studying conservation biology as I have always had a love for nature. I have always been a hypochondriac. I can remember multiple times throughout my very young life (6-15 years old) where I was having episodes of what I now know to be anxiety. These episodes were mostly due to the usual--cancer worries, tumor worries, etc. In my junior year of high school--to my great dismay--I was in A.P. Biology class and we watched a documentary on Steve Gleason and his journey with ALS. Ever since, it has been my biggest fear; however, it was never affecting my life in any way... until about 2 months, 1 week, and 3 days ago. I began having a twitch in my neck. I honestly don't believe it twitched more than two or three times and then stopped. Anyways, ALS had popped up in my mind a few days prior as I had read about someone famous being diagnosed with it (I believe), so, I immediately Googled "muscle twitching" and found that one of the first things to pop up was amyotrophic lateral sclerosis--ALS, or as it's better known, Lou Gehrig's disease. As many of you can imagine, an immediate panic went through my body and I freaked out internally, but managed to keep my cool as I knew it was super rare and that I most likely didn't have ALS. That didn't matter, though, as within hours I was twitching body-wide, head-to-toe, non-stop. 24/7 fasciculations. Luckily, my school was just about to begin Thanksgiving break and I was able to have a week to research (wish I didn't), mope (still do), and manage to get over my first bout of anxiety. I found that fasciculations are rarely the presenting symptom of ALS, and that body-wide fasciculations are even more rare as a presenting symptom. In fact--I've never read a story of body-wide twitching being the presenting symptom of ALS ever. Queue the happy, fun, and enjoyable Daniel. Back in business! That didn't last long, however, as I began to notice a tingle in my left arm which I knew had nothing to do with ALS. I began wondering if this is maybe MS or neuropathy or whatever other inconvenient but non-life threatening disease I could imagine. Then I began to notice an odd weakness in that arm. It only felt weak; I could still perform any action that I could before the feeling of weakness, but it definitely felt weak. Queue the anxiety! Within a weeks time this went away. I'm going to make the rest of this as short and undetailed as possible as this is beginning to really drag itself out. After the perceived arm weakness came perceived swallowing issues. I was having trouble swallowing, I had choked on my water maybe two or three times, and I was absolutely freaking out. The next symptom was nasal speech that was due to a very small sinus infection that I began dealing with. The perceived swallowing issues went away immediately. Then came perceived slurred speech. My tongue felt huge and was "dragging" in my mouth. It felt heavy. The perceived nasal speech went away as soon as my sinus infection went away. Then I finally accepted that I wasn't slurring and this was all in my head. It worked! I stopped worrying and had no more anxiety--or so I thought--and was out of the rabbit hole. I wasn't slurring, and life was ready to be lived from Mr. Daniel Hall! Until I began working out and noticing that my left arm was sore longer than my right :). I strained it. Very easy to do. I used to work out a lot, but quit after the beginning of my health anxiety over ALS. When I went back to working out, I went full force and full effort. I was sore for nearly a week! Anyways, this soreness led to more perceived weakness and tightness that has now went away as my focus has shifted to a new symptom--speech changes. Last night, my girlfriend and I were laying on her couch watching a movie, and I said something to her. Her reply was "your voice sounds different." I don't believe the panic was as bad as it has been before, but it was awful. She immediately knew what she had done, and she apologized and tried to calm me and reassure me. I was beyond the realm of peace from reassurance. I panicked and was anxious all last night and all today. I have been non-stop honed in and focused on my voice and the way it sounds. The point of all of this is to show the effect that anxiety can have on our lives. I joined this forum only days ago and already have seen countless threads of people worrying about ALS. I am 18, have no family history of ALS (or any neurological diseases in fact), with a family history of severe anxiety. Everyone on my father's side relies on anxiety medicine. I have just started anxiety medication not too long ago, but it is not helping as much as I'd like it to as I am letting this fear take control of my mind. The fear is irrational and is of something that I don't have and couldn't control if I did have it. It's funny, too; I can go on someone else's thread and reassure them and give them all the 1,000+ reasons why they don't have ALS, yet I seem to make the faintest connections from dots of information that aren't even real--dots of information that are just made up in my world of fear. I hope some of those who are having problems with ALS fears, or health anxiety in general, can read this and take a step back and look at their situation from a more mature and less anxiety-ridden view. I also hope that I can get some support from those of you who have been through these fears and understand the struggle. Anxiety is a real illness that can sometimes take a greater toll on an individual and those around them than a very genuine and very serious illness, but unlike those illnesses, anxiety can be conquered if it is recognized, understood, and an attempt is made to get rid of it, and support can make all the difference in the world when trying to accomplish those three things. P.S. Sorry for rambling on. My mind has been in a fog due to all of my anxiety, and thus my writing is very random and uncoordinated.
  8. Jremtx


    Hello everyone, just came back from my pcp appointment and let me tell y’all. Note: IVE BEEN FEELING ALOT BETTER ON MY OWN THINKING RATIONALLY, TRUST ME IVE BEEN THERE WHERE I FELT LIKE I COULDNT USE MY HANDS, LEGS. FELT LIKE I COULDNT WALK OR DRIVE, EVEN TEXT. LOST ALMOST 20 POUNDS DUE TO THIS HA. IVE ONLY GOTTEN 30 HOURS OF SLEEP IN A MONTH, SEEN MULTIPLE DOCTORS. I WAS 140, NOW IM 160 I FEEL LIKE I OVER SLEEP NOW HAHA AND ITS GETTING BETTER EVERYDAY. She was getting mad at me because I wasn’t focusing on the things I need to focus on haha. (I go to a university hospital and If you read my past post I’ve seen a lot of pcp just wasn’t mine cause she was on medical leave but she knows about my information since it was noted” Well to sum it up, she knows that I’ve been going through many ALS fear for some months now and she knows about my fasciculation's in my left calve (my hotspot) and all over. she said, “you don’t have ALS, we don’t look for twitching in ALS, we look for real clinical weakness.” She also said “you’re 25 years old, your muscles are probably telling you... hey I need to move.” I told her I haven’t been exercising or anything at all just labor work. She also explained, if you’re working out and you can barely curl a 5 pound weight come see me. She then asked me if I wanted to see a neurologist and I was kinda caught off guard, I told her “I do but I feel like I’ll be feeding into my anxiety. You don’t think i have ALS right?” She looked at me like I was crazy cause she just explained everything about ALS to me haha she said “NO.” she said “well I’m going to put the referral in and it takes months to see one anyways so if you feel like you don’t need to then don’t.” its funny because the doctor was telling me I should be worried more about diabetes and heart diseases because of my family. My parents also see my pcp so she’s very familiar with my family and she knows that diabetes runs in my family. So now she wants me to eat more healthier and work out more. i actually have an appointment with a neurologist on Monday cause someone canceled, I was kinda happy. so next Monday I have an appointment with a neurologist and I’ll keep y’all updated but just wanted to share my follow up.
  9. Kelsbels

    Scared of multiple sclerosis

    *first post* So in September I was hospitalized for high internal cranial pressure with a diagnosis of p-acne menegitis. I lost my eyesight and had an EVD tube placed in my head for drainage while I waited in the neuroICU for 8 days. my eyesight came back except for blind spots and peripheral damage in my right eye. Keep in mind I had several tests done. Two spinal taps 4 CT scans, 3 MRIs bloodwork done everymorning. The works. Since then I have suffered severely from HA. It’s almost constant. I pray a lot and I give all my thanks to God for me being alive and well enough to be a stay at home mom to my 9, 2 and 4 year old. I’m 23 and I have my two kids to raise and a step daughter. The thought of not being able to care for them is devastating. It all started with being terrified of MS, my hands contract and when this happens my thumb and usually my pointer finger will bend into the palm of my hand while remaining moveable but it’s more labored, also my thumb pad will twitch vigorously. It doesn’t last for more than a couple hours but will happen 3-4 times a week. My eyes twitch almost constantly. I see a neuro ophthalmologist and he said it was stress and that my eyes don’t look like those of someone with MS. HOWEVER, with the muscle aches, muscle twitching and my hands being strange I couldn’t help but worry. I eventually moved on from that and stopped worrying about anything all together. But then I started googling and landed on the ALS speculation. That troubled me for about a week then after reading threads and learning more about it I stopped worrying about that. But while driving and watching tv with subtitles I started noticing “double vision” mildly and now I’m back on the MS kick. I can’t shake this stuff. It’s so hard to move on from fear off illnesses now. Help!!
  10. Where do I start? I was overcome with fear about ALS because I had a sudden onset of twitches and jerks. Then I had pain in my foot and my toes got weak. Went to the neurologist. Found out I have a gluten sensitivity and my twitches could be cause by that. Also found out that I have low vitamin D which could also explain the bone pain. In fact, once I started taking vitamin D my foot feels better but not completely. For the past week, my foot will shake back and forth 3 or 4 times when I am falling asleep. I know about hypnic jerks, but I read that it is only one single muscle contraction. My leg shakes like I trying to shake something off my foot. Anyone else experienced this?
  11. Hello, I wanted to put my situation out there after reading a lot of other's fears and situations and see what other's thoughts were. This will be sort of lengthy. My story seems to be similar to others on here, I'm a 30 yr old male who is very active, running and strength training 6 times a week. I work a pretty demanding job that puts a lot of stress on someone, especially during peak times (I work in ag, so fall season). This past Thanksgiving week, myself, wife and our 1 yr old who is a terrible car traveler ventured off to visit family on an 8 hr drive. I was very stressed about this trip and admit I let some pretty little things get to me. I noticed while driving a muscle in my left arm/shoulder twitching. This persisted to the next day and I showed my wife, she thought it was weird, but I'd gotten random ones before, typically after a heavier training day. The week goes by and I honestly am not sure if the twitching persisted. Going into the week, I had some other stressful stuff come up, top of which a mole that was biopsied because it looked funny. I also had had some sensations of tingling in my feet and hands, prior to this for quite some time, but hadn't thought much of it. For one reason or another, I noticed my left anterior deltoid shoulder muscle had a consistent twitch (still does) and this got me someone concerned. Was it the same muscle from over a week ago? So, I start looking up tingling and twitching, see MS, get pretty upset about that and this runs into the next weekend. That Saturday I am sitting there and my right arm completely siezes up, totally strained, couldn't hardly close my hand, this really freaks me out. So I go to google again and see ALS. This is where my demise really happened. I'm fairly concerned and decide to make an appointment with my doctor that day (we have an online portal thingy, got it scheduled for the next Monday). I am trying to stay busy the rest of the weekend and not think about the twitching that happening in my left shoulder, but the right arm thing is really bothering me. I will say, I knew what ALS was, but didn't realize the severity of the disease if you had it, I search life expectancy and completely drop, like couldn't function. Not sure I have ever felt more broken down in my life. That night I don't sleep a second, constantly clenching my right arm, feeling my strength disappear. My wife basically holds me all night because I am having multiple panic attacks. I'm sure I have ALS and won't get to see my son grow up or our expecting child. We go to the doctors, I explain my situation and my fears. We do the basic neurological exam, check out fine to the doc even with my right arm not feeling right (I also thought my right leg was now hurting). Doc can see I am distraught so she says lets run some labs, look for increased creatine kinase, guess that can be an indicator of ALS, if it comes out clean, your good, it's for my peace of mind. She also prescribes some anxiety meds to help me out. So we do that and labs come back great, I'm so relieved, and I'm feeling pretty good for about 12 hrs. But, I look some more stuff up on ALS, realize that blood test isn't all that conclusive and I'm back down the hole. My wife has me go to a chiropractor, he thinks I'm fine but works on my back and arm just to try and help things feel better. I get a message to try and loosen myself up. Nothing is helping, I'm emailing my doc over and over every day. I'm able to work out, pretty much normally, lifting basically the same weight, but my grip strength is reduced in my right arm. She says, we can do more tests if that would help you, but doesn't think I need to. I tell her I'll let her know the following week (this would be about 3 weeks after original symptoms). That weekend actually goes pretty good, my arm seems to be improving, and I'm like "This wouldn't happen with ALS, it only worsens, right?" So I tell the doc, nope, don't need more tests, I'll see ya at my regular physical. I should have just scheduled the test... I played a game of ping pong and again, my right arm seizes up, I still have twitching in my left shoulder (I check it about 100 times a day) and I have ALS. I can't handle it, emailing my doctor, I start to get body wide twitching, and another hot spot, my right hand (especially when I'm my mouse at work). Doc has me come in again, she does more reflex tests, scrapes my foot all that, seems fine. But I show her the twitch in my left shoulder (it's the only real consistent one), and with that, she says there's enough for her to refer me to the Nuero for an EMG on both arms. But also wants me to start really tackling my anxiety. Puts me on a more long term med and asks me to see a therapist. This was the week before Christmas. I see a therapist, talk to my pastor, all of it, because I have to do something to get back to normal. That all helps, and the week of Christmas doesn't go too bad. Right arm seems to heal up nice, I'm able to work out that week and I start to feel better. But I still have twitching at night, also have tremor like sensations when I wake up from a nap or sleep sometimes, really disturbing stuff. So now we come to tomorrow, when I have my EMG scheduled. I am fairly confident it won't show ALS, but still worried all the same. It's been about 7 weeks since my initial symptoms, wouldn't I be worse if it was ALS? Thanks for anyone's comments.
  12. Solafide3

    Defeated by the fear

    I was feeling happy last night from all my support here. I was finally calm. This morning I woke up and the jerks I had before my twitches are back. It’s like the jerks you get before you fall asleep, but during the daytime. They happen maybe 3 times in 5 min. My leg will jerk, my jaw, my back, my arms. It’s just one quick movement, not a twitch. Is this Hyperreflexia like they talk about in ALS? Every single time I think I’m ok something else comes to haunt me. I haven’t gotten out of bed yet, I’m just crippled with fear. I haven’t found many people who have the jerks and that’s what scares me. I have been testing my reflexes (yes I know I’m not a doc, but my fear does not care) and my legs kick way up in the air. Brisk reflexes! Also read that these jerks are a symptom of Hyperreflexia. I’m drowning and I can’t stop it
  13. Dixon444


    I think I'm having als.. around christmas I noticed my body twitches almost everywhere but later on I convinced myself it is not ALS, it's not a persistent twitching... my pinky went numb for once... but now I don't think those are ALS indicators... just because they're not constant and they aren't getting worse but better instead anyways.. after I convinced myself it is not ALS I thought something like that - "HMMM.. What about Bulbar onset als??" then I focused on my tongue... now my speech seems slurred but no one noticed it besides me... they all say I'm talking just fine... some say I'm actually talking too fast (this I can agree with) but then I read more about bulbar ALS, now I never experienced twitches in my tongue.. just the slurring thing and the feeling as if something's stuck in my throat(occasionaly)... Not actually sure what slurring is supposed to mean but here I'll explain my experience with it... Occasionaly I'd say a word containing S like Sword and (almost never) I'd pronounce it Shword(started when I thought about the bulbar als..) and the R sound, sometimes I miss it completely but again very rarely and after the thought of bulbar als... I usually take naps when I can and I remember taking a short nap for about 10 minutes when I woke up the slurring and the feeling as if something was in my tongue + the feeling of my tongue being heavy went away then it came back once I remembered.. (This makes me think it is not als but then again I became worried.. it still feels like this and my tongue is very tired I thought about it all day long... maybe when you think about an involuntary muscle actions and try to cntrol them you actually do them bad by "blocking" them, so to speak).What do you all think .. Is this somethiing I should worry about??? It make me worry a lot .... even tho I'm pretty sure its not als
  14. Solafide3

    ALS I have hit rock bottom

    Hi everybody, my name is Erica and I’m a 30 year old female. I started having jerks all over my body before Christmas. Enough to move a limb, but not enough for anyone to notice. Well that went away and then came the muscle twitches. Of course I googled. ALS came up. Of course I saw BFS too, but there is so little on the internet about BFS, is it even a real thing? I know the twitches can be from anxiety, but they came at a time where I’ve been pretty calm. I was tested for nutritional deficiencies, all fine. I do strength tests daily, and can’t tell if the weakness is in my head or not. I cry every day because the thought of leaving my 5 year old without a mother kills me. I have a neurologist appointment soon, but in the meantime I can’t function. I know if the doctor gives me the all clear I’m just going to tell myself I went too early during the disease and they couldn’t detect it. Has anybody else had muscle twitches for weeks or months? I pray with all my heart that the fear will just go away. I want to be happy for my family’s sake. I want to do good with my life. I feel like I should be recording stuff I want to tell my family so they can watch it after I die. They look at me like I’m nuts and do not understand how real the ALS fear is to me. I guess I just want to know that I’m not alone. I don’t know. If you have read this, sorry for the rant, but thank you for your time. God bless you all.
  15. Hi everyone, I am having a really rough month. Let me start out by saying that I have a really bad health anxiety/OCD condition that I have been on and off dealing with for the last 3 years. I'm currently in veterinary school and my anxiety levels lately have been going through the roof. This last month in particular has been rough as I have not been sleeping well, I have been dealing with my cat that had a horrible illness and had to get multiple procedures, surgeries, biopsies, a feeding tube placed, etc. It was right in the middle of midterms and it was incredibly stressful running around taking him in and out of the hospital. I was incredibly worried for him and freaking out it was rabies. I went to the hospital to get the rabies shots. After a while I was convinced it was ok and I stopped worrying about it. After all the stress of this, I started to develop a finger twitch in my right index finger. it happens all throughout the day both at rest but also when im using my computer or after I perform an action and then rest. It's been causing me a lot of grief over the last week and I saw 2 primary care doctors about it. Both of which refused to refer me to a neurologist and told me it was most likely from stress or anxiety. right and sometimes left arm. IDK if those are just from being more anxious and hyper-vigilant. Other things have started happening like pin and needle feeligs in my left foot and percieved weakness in my I've been worried sick about ALS, PD or MS. 6 months ago I was taking Accutane and around finals time I had parasthesia in my left arm. It freaked me out so I went to the hospital numerous times to get cervical and brain MRIs...they found nothing. I also got tested for Lymes, had general panels done at the hospital and had my thyroid levels checked (all 6 months ago)...nothing wrong. It was dismissed as anxiety or problems from the Accutane, which I discontinued and started feeling better. Im worried the paresthesia in the left arm and the finger twitching in the right index finger are related and indicitave of a neurodegenerative disease. I used to be treated for anxiety and I was taking meds. I went cold turkey and stopped taking them out of laziness about a month and a half ago. Dumb, dumb decision I know, but my anxiety has gotten out of control since then. I started seeing a new therapist and I am getting back on my medication for good. I don't know what to do. Does this sound like a neuro disorder or just anxiety? I know people here arent doctors, but have people experienced this? Just twitching in ONE finger due to anxiety???? I guess there is the pins and needles feeling in my left foot, but I'm just freaking out and I cannot think about anything else. Is it likely to just be anxiety? Should I just trust my primary care doctors and attribute it to stress??? Any comments, advice or help would be much appreciated. Im having a hard time functioning and I'm so close to going to the ER to just ask for more tests. Thanks so much all, Sorry for the rant.
  16. Jremtx


    Idk why I can’t get this thought out of my head, that I have ALS. I still twitch constantly everywhere especially in my left calve, I get nervous and scared side I noticed that left calv is smaller and has a kinda deep dent. Ive already seen multiple docters and all of them said I don’t have ALS, didn’t even refer to a neurologist. I’ve recently been looking on the ALS forum and everyone does the EMG to know if they have ALS. My docter(s) didn’t even feel like it was necessary and I always have negative thoughts assuming I have it. as long as I ca remember I always had twitching, everyday but ever since I googled “als” my life has been a nightmare for almost 3 months. I’m tired of living like this thinking I can’t enjoy life again. I’m sorry to keep posting about this but it’s so frustrating.
  17. Cloker

    Crippling health anxiety

    I am 22 years old, and the past couple years for me have been some of the most difficult times of my life, from a mental standpoint. Health anxiety is something that has affected my sister, and I never understood her pain, until recently I have realized I am going through the same thing. These past 2 years have been extremely difficult, and it actually caused me to quit a very good job and move back to my hometown, which was something I never thought I would do. The more frequent it is becoming, the worse the incidents are. Lately, the past 3 months to be exact, I have completely convinced myself that I have ALS. I started working 68 hour weeks on nights, and started twitching in my eyes constantly. I tried to ignore it to the best of my ability, but never could completely block it out. Then one night, I started to twitch right above the knee on both legs, along with a feeling that I just ran a mile. Dr. Google had come up with ALS, and of course that is what I set my mind on. The constant twitching and weakness went away, but my worry of ALS just got worse. Now, I have random twitches all over my body, and a perceived weakness in both shoulders and my right hand. I went to the doctor, and he referred me to a nuerologist, but the appointment is 3 months away. When I can keep occupied, the twitching and perceived weakness seems to go away. But once it crosses my mind, it’s there again. I can’t help myself from reading every google article that comes up about ALS, as well as patient stories. It’s getting way out of control, and it is affecting my social, work, and everyday activities. Any help, comments, tips, and just a conversation would be greatly appreciated. Thank you all.
  18. kaosbros

    Als muscle atrophy

    Does muscle atrophy begin before loss of movement. I so far have just twitching.. all over. But noticed I have lost a coupke pounds. Im scared its atrophy. I thought the wasting started when the muscle coukd no longer work. Online it shows it as an early symptom.. is this accurate???
  19. For the past week I have been experiencing a twitch in my left arch of my foot. it is usually a strong twitch that is visible to the eye. Sometimes I just feel the buzz in my foot and see nothing. I noticed that when I flex my toes in a strong downward motion, I also see a finer twitch on the bottom of the sole of my foot, this one really freaks me out. I'm terrified of ALS. I feel like I can see muscle wasting on my left although it would be extremely small difference and perhaps the deviation in my foot always existed. I'm still able to my walk on tippy toes and heels and when I try to push my big toe forward or back, I able to resist pressure with my toes. I feel "funny" when I walk but I know anxiety can do that. I had my annual appointment yesterday, and showed a video of my foot twitching to my doc. He said he did not see muscle wasting. He suggested that I try arch support in my shoes as I have high arches. If the symptom does not go away in a month, he said he'd refer me to a neurologist. I'm starting a new job on Monday and I can't have this being such a distraction on my mind. It's all I can think about. I stare at my foot and test my stength constantly. I am Embarrassed about this however I need to be honest. Any help would be very appreciated. Thank you.
  20. Hello everyone, I am a 19 year old HA sufferer, and this time ALS is "back", but I am pretty afraid. TO be honest, I AM QUITE sure it might be ALS. About a month ago, my shoulder started twitching out of nothing, I immidietely thought of ALS, during the following week, I started getting pop twitches everywhere in my body, and continious twitches (would last a few minutes) in random body parts. However, during the weekend, I got a twich in my tricep, which lasted quite long, and was changing speeds, it was slow for a while and suddenly would become very fast. I got the same thing the next day, and suddenly it became localized. The thing that worries me is, that it was a twtich that would only have 1 continous episode each day, and then would not show up until the next day (even though I was anxous about it) and it was very random, as I said changing speeds, would be slow, there would be maybe half a minute interval between another twitch etc...I was observing it, and at first I thought I got better with movement (which I think still when I go for a walk lets say - must be long) and I come back, I dont feel it then. I also did not feel it for like 3 days and then it came back (we were driving to a football game with a friend, and I got the twtiching in a car, but when we started moving and got the ghe game, it disspeared, so I was like yeah, it was anxiety, but after 3 days, it came back when I sat, and relaxed to watch a football game). This was like 3 weeks ago. Then we went for vacation, did a lot of hiking, I did observer my tricep during the hikes, and it did started twtiching once during a hike. However it was not so constant anymore on the vacation, and after the vacation, my tricep stopped twitching completely. All I was getting very full body little 5 second twiches or pop twiches mainly in my calves, thighs, but also in the tricep though. However yerstrday, I dont know how It occured, but I got really anxious while on the internet (I have been anxious the past month of so becuse of these twiches, but not so much as yersterday) and my tricep started twitching again, it is lasting also now, I went to the gym yersterday and I was still getting it. I walked home from the gym and it did stop for a while, but came about in about half an hour. Stopped before bed time, I woke up today, and in about half an hour, I started getting the twtich. These one are very fast and poweful. I dont feel them when holding my hand tight, which is weird, and also I dont feel them during walking (they might be there, but I just dont feel them because my hand moves during walking) I am afraid this is ALS because how random the localized twitching is there. If it was anxiety, would not it be there 24/7 ?? How come it went away for more then a week and suddenly came back ? Probably stronger and faster, but I dont know. I have been on the BFS forum, and I have not found a similar case to my, most people were twitching localized constatly, not so randomly as me....Also I read that twigching of dominant hand and interminnent twitching (which I have) point towards als. Also it cannot be anything in the tricep such as a pincehd nerve etc.. because as I said at the beginning, in started in the SHOULDER. I have been to the gym, still can lift 20 kg dumbells for my pecs (this excercise also uses triceps), still can do dips, etc. etc...seems like my lifts are still the same if not stronger, but I did read some stories, even studies of ppl who got twitches before weakness. Do you think this type of pattern of twitching can be anxiety induced ? I know I should go to a neuro, but the appointments are far away, and I dont ahve EMG covered insurance, which I would ahve to pay and I dont have much money atm (parents are not willing to pay, becuse they already paid for a bunch of ultrasound, colonoscopy etc..) Any advice ? Anyone with a similar thing ? Thank you so much.
  21. enidoreilley

    Tongue now? Dr update

    I just left my neurologist. He knows me pretty well and knows how anxious I am. I told him about my temporary lip paralysis and my quivering lip and was really upfront about googling too much about ALS. He did the normal neuro screening and strength tests and everything seemed fine, I think. He took the lip thing seriously, though and told me he was going to code the appointment as a "screening" instead of "follow up" which is how it was booked (for an existing condition) and for some reason that really scared me. He told me to keep a journal of my neurologist symptoms "in case". He ordered CK serum levels (which check for evidence of muscle breakdown in the blood). The whole thing freaked me out. Add to that that on my way to and from the appt I was snacking on some pretzels and my tongue felt extremely tired. Like, muscle fatigue. I just want to get through the next few weeks without having anymore emotional breakdowns and everything feels so real to me. If anyone has any words of reassurance, I would appreciate anything.
  22. Hello everyone, I'm 25 years old and have had health anxiety for as long as I can remember. I google my symptoms and I start to think the worst... At one point, my anxiety became so crippling that I was bed bound for a month and lost over 20 pounds. That's really not an option anymore, as I have a 2 year and 8 month old that depend on me. Still, I feel like my fear of ALS is spiraling out of control. I'll start with, I began having tingling and numbness in my hands two years ago. My doctor wrote it of as carpel tunnel... Well, since then it has become much worse. As well as my left arm feels really weird. This may be because I carry my baby's car seat with that arm. I haven't notices any muscle weakness or atrophy, from what I can see or tell. I can still lift things, walk normally, talk/swallow normally, and etc. I want to say that I've always had muscle twitches here and there. For the last two months though, I've noticed that I was having them multiply times a day. The worst being maybe anywhere from 50-100 muscle twitches or spasms a day. The are in my arms, legs, buttocks, and have gotten them a few times in my face. Went to the doctor, and saw a nurse practitioner instead of my normal doctor. She said that with my symptoms, the first thing that comes to mind isn't ALS but a vitamin deficiency or something else. Also, she said that she wanted to do a nerve conduction test for my carpel tunnel. Blood was drew, and I have low vitamin D and borderline low B-12. Was told to take vitamins and that was it... I have been taking left over prenatal vitamins for almost the past week, and I have noticed the muscle spasms have lessoned a bit. I also suffer from stress, depression, and anxiety... And in the past few months, I have been really stressed Still, I can't help but shake the though of ALS and am absolutely petrified. Can anyone offer some advice or reassurance please? Thank you.
  23. AmelOK

    One year ago today...

    One year ago today, I cam home from work and watched some of the Presidential inauguration. I fell asleep watching on of the inaugural balls and woke up, changed out of my clothes and went to bed. I felt my legs twitch and I layed down in bed. I had been feeling down for a while, work things, family things, felt like a failure in life, had gained a lot of weight since my early 20s. I felt my legs twitch again and decided to google muscle twitching, perhaps the worst thing I've done in my life. We all know what the result is when you google muscle twitching so I won't go into details but I immediately felt my heart start to race and my breathing shorten. I knew Immediately I would die a slow death, where I'd worsen little by little. I knew the economic strain I'd cause on my family and how it would likely ruin them. I regretted that I'd never get to "fix" the mistakes I'd made in the past. I started to think of it might be cheaper if I took my life and at least I wouldn't cause a strain on my family. That would be the first of many sleepless nights. I tried to calm myself but nothing happened. It was pointless so I got up and went to the gym as that used to make me feel better. Not having been to the gym in months I could hardly run on the treadmill or lift weights. I knew that lifting weights would slowly not be a reality for me anymore. I didn't last an hour, I would start to run and my hear would just beat faster. I felt like I would faint. I went home and got ready, heart still pounding. I went to do a work presentation at a school, thinking at any moment my legs could give out. I went to my office for a special Saturday event and took the stairs as many times as I could to remember that I could still take the stairs and that soon would also not be a reality. If I got 4 hours of sleep that whole weekend it might overestimated. I got up Monday and went to work, heart pounding, blood pressure really high. Got home and took my blood pressure, again high. Maybe 2 hours of sleep before I'd wake up and feel the collar of my shirt drenched in sweat. Tuesday, heart pounding, high blood pressure. Went to Urgent Care. They wouldn't see me since what I described to them sounded like a heart attack. Had my parents drive me to the ER. Blood pressure was normal, EKG normal, Chest X-Ray fine, blood tests fine, everything was fine. I felt better but that night would prove sleepless as did many other night for the next month or so. If I did sleep, I would wake up, drenched in sweat. If evrything is ok, why do I feel awful? I would think. Followed up with my doctor. He prescribed weight loss and a mild sleep-aid. Good I thought, if I am going to slowly die at least I can sleep at night. The sleep aid helped some but I would wake up in the middle of the night and say ok maybe I'm not sick so let me google a test I can do for neurological diseases. I would fail the standing on one foot with my eyes closed. My knee kicked a little too erratically in my opinion whe I did a self-reflex test, all serving as confirmation that I was extremely ill. I deserve this I thought, I squandered educational opportunities, dishonored my family. Every bad thing I did in my life came back to haunt me and serve as proof why my fate would be so grim. My heart would pound and race almost daily. I learned to live with it.
  24. healthworrier92

    Afraid of **S

    I'm new to the forum, and I'm desperately in need of perspective on the ordeal that I'm facing right now. For the past year I have developed a mounting fear of ALS. I have had HA for most of my life (I just turned 25), but it seems to happen in episodes that last a few months or so, and then disappear. I have only had 2 major ones that I can remember: one when I was 16 and one when I was 18. My most recent one, and the one I'm currently going through, is being afraid of ALS. I feel like my current worries began after my uncle, whom I was very close to, passed away relatively suddenly in July of last year. He had a stroke, and three days later he was gone. It was devastating. Of course he wasn't the healthiest person in the world, and he was in his upper 60's. But after that, I have succumbed to the belief that I am suffering a serious illness and am destined to die young. As far as symptoms go, I felt fine for the first month or so after he died, but about a month after I started experiencing lightheadedness and dizziness that wouldn't go away. I originally thought it was fatigue, dehydration, etc. and would go away in a couple days, but it persisted. I went to the doctor, ER, countless times and was told nothing was wrong. Of course, given what just happened that only make me believe that I must have a fatal condition that can't be detected by normal testing. So the dizziness got worse, resulting in me missing work and essentially putting my life on hold for a brief period of time. Thankfully, after more doctor visits and a brain MRI that showed nothing was wrong, the dizziness subsided and I haven't noticed it since. What replaced that in my mind was a fear of ALS. That was a disease that never even crossed my mind until one day I came across a story on FB about a girl in her mid or late 20's who had been diagnosed. Of course, logically speaking I knew that is extremely rare but now my thoughts turned to "if it can happen to her, it can happen to me!" What I would say has followed that has been what I believe is the progression of symptoms of ALS (in my mind, at least). It started with my hands feeling weak but with no impairment of everyday tasks. After more than a year, I don't know if I would say my hands feel weak or they ARE weak. I can't tell the difference. I'm noticing subtle (major to me, but not sure if they're subtle to anyone else) differences in the way my hands are working. For example, my hands don't seem as dexterious and nimble when typing or writing. I used to be able to type really fast without making too many mistakes, but now I feel like my hands move so slow and stiffly, and I'm always making mistakes. It doesn't look like I can move my fingers from side to side like I used to. My left hand seems like it's slowly weakening, and now I notice it progressing to my right hand (I'm right handed). I have no pain and some twitching (not widespread), but when I do twitch in any muscle the muscle feels weak afterwards, like it can't move like it used to. Also, when I try to extend my fingers, the middle joint just gives out like it doesn't have any strength or force (it seems like it's been spreading to each finger starting in my left hand). As for the throat symptoms, I've noticed changes in my voice. My voice doesn't feel natural, like when I speak it's not the same pitch or tone that I'm used to feeling. When I try to talk or have a normal conversation with a person, it doesn't take long before my voices feels tired and I'm like out of breath. Also, when I speak my tongue doesn't seem to move as quickly or as nimble as it used to. To me, I sound like I'm tripping over words, mispronouncing, slurring, etc. I constantly ask my wife how my speech is (and have been throughout this entire ordeal), and she tells me she doesn't notice any difference. I was referred to an ENT because I told the doctor all that I was feeling, but she said it was more to allay my fears than because something was wrong. He didn't find anything wrong (this was earlier this year) but referred me to a speech therapist when I told him my symptoms. I've been going to the ST on a regular basis since June of this year, and she has been finding little things in my speech/voice that aren't right, but she has told me repeatedly that she is trained to pick up on every little thing, and that what she hears the average person will not notice. I also flat out told her my ALS fears, and she said that nothing about my voice or speech suggested ALS. (Of course this was at the beginning of our sessions, so now I'm wondering if I have progressed to the point when ALS would present more of a difference) Overall, I'm just tired of thinking that I have this terrible disease. I know the odds are greatly against me having it, but why do I have all these symptoms that I believe so clearly point out to ALS? I've also been going to the neurologist every few months or so since last year, originally for the dizziness but now because of my recent fears. The last visit (2 weeks ago) I had scared me more than ever before, because he performed a grip test on my hands that found my left hand was significantly weaker than my right. This seemed to confirm all of my fears an suspicions, and now ALS (and the fear of having it) have been all I can think about ever since. I have an EMG on the 28th, so I know I'll start to get better answers after that. The thing is, I'm afraid of having ALS but some part of me is just resigned to it after everything that I'm experiencing (or seeming to experience). The part that's hardest for me is not knowing how much of these symptoms are my anxiety, if any, and how many actually indicate something really wrong. I just want to be able to be at peace and know for sure what's happening to me. Sorry for the long post guys, but I felt like I had to get everything out there. I've been posting the same story on the ALS forums (yes I know, bad idea) and they have been telling me it does not sound like ALS. Of course, the anxiety part of my brain then starts saying "they haven't seen you in person. if they did maybe they would say something different." I'm so glad I found this forum as I'm hoping it corresponds directly to what's causing me to experience all these things. I would much rather have HA than ALS, obviously. Thank you.
  25. larizza

    I am so afraid of ALS

    Hello, I am a 50 year old woman from Sweden,and I so scared of ALS because my tongue is twitching. I have a lot of shakings and tremor in my body,but most of it can have other causes.Ihave withdrawal symtoms from benzo and zopiclone, and I might have some nutritional deficiences after bariatric surgery. I also have polyneuropathy in my feet probably because of b12 deficiency. But my tongue! Can tongue facics be something other thanALS? I took an EMG in 2005 and it was clean,but I could have developed ALS after that. I am so scared and depressed now. Can anyone help me with this anxiety? Thanks