Cubanborn87

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About Cubanborn87

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  1. Cubanborn87

    ALS muscle spasms

    Do you think it could mimic symtoms that are close to what clonus does? Last few days I have been getting clonus line symtoms. Is really scary. My left foot also feels like it has no support and when I put my shoes on, it feels like I have a lot of wiggle room in that shoe. The other thing that I find concerning is ever since all this started the wide spread twitches are almost gone. It seems that I only get fine little twitches in there problem foot and an occasional one somewhere else here and there.
  2. Cubanborn87

    ALS muscle spasms

    Even if I have only taken it for 3 days?
  3. Cubanborn87

    ALS muscle spasms

    Sorry bro, what else could it be. I researched clonus and that's exactly what has been going on last 2 days.
  4. Cubanborn87

    ALS muscle spasms

    Unfortunately it looks like I have clonus. It has really dehabilitated me these last 2 days, I am having trouble doing the simplest tasks at times it's not because of weakness or anything like that . Instead the muscle contractions my my fingers and limbs non stop.
  5. Cubanborn87

    ALS muscle spasms

    One of the reasons I am so anxious right now, is because whatever these symtoms are , they are moving super fast. I am actually very concerned. I am a total different person than I was 2 weeks ago. I was way more healthier. Does ALS move this fast? Even my hands have slight tremor. Of course left one more than the right one. It's going to take a miracle to have a clean EMG
  6. Cubanborn87

    ALS muscle spasms

    I want to feel OK again, soenthing is going on. Hopefully when I weigh in next Monday , i don't see anymore weight loss. My left hand felt fine, but it was really shaky. Like it almost had a slight tremor. Then I have this jerks non stop throughout the day. It's no longer at night. This past few weeks have been insane. The crazy thing is my anxiety last 2 weeks hasn't been anywhere as bad as it was around the holidays. When I wasn't getting any sleep or rest. Barely eating as well.
  7. Cubanborn87

    ALS muscle spasms

    Thank You, I don't know I just see all these different symtoms and it's really worrying me. I want everything to go back to how it was 2 months ago. It feels like every day there is something else. My legs feel super jittery and I keep getting the jerks everywhere. Now I find out about the weight . I know I have been very stressed and anxious but that seems to be a lot of weight loss. I have only been on Fluoxetine for 3 days
  8. Cubanborn87

    ALS muscle spasms

    If anyone with the knowkedge, please educate me and tell me what the muscle spasms that AlS patients suffer from feel like? I have been suffering from hypnic Jerks for a while now and didn't think much of it. Now I am suffering from it during the day. A few days ago I would feel 1 or 2 during the day but didn't think anything of it. Now I am feeling them everywhere and it's really scaring me. I even took a anti anxiety medicine last night to make sure that I could get some sleep ubkinke the night before. I am getting then all over just like the the twitches, I get then in n hands and makes my fingers move same when it happens in my feet. I also get them in my knee at times which makes my knee buckke and in my hands and arm. I don't know what is going on guys but , every few weeks it feels like there is something really bad going on and there is always a new symtom every week or 2. I am afraid that this is one of the last symtoms before everything starts going bad. Do ALS patients shake with tremor or involuntary movements? I thought the limb just fails , I dont know but this is very scary. It is becoming as constant as.tje twitching used to be. I still get twitching but not as much as before. Ever since these new set of suntkns started. I dont feel weakness , I don't feel clumsy, but all this small contractions were making it very hard for me to type and do stuff with my hands fast yesterday. I am afraid that in a few weeks my symtoms will be slurring or something . When will this nightmare end,? Do ALS patients limbs shake? When they are trying to performed tsks? I keep getting that very annoying slight jerks when I try to perform a task with a certain part of my body. Sometimes it happens at rest. .By the way just like the twitches this is happening everywhere. It almost feels like this has replaced the twitches. I still get the twitches but not as often as I used to. Another thing that has me super worried, I weighed 190 on December 4th. I justed weighed in myself this morning and I weighed at 181. My left shoe also feels really loose compared to the right one This is really starting to frightened me. Is this the so called clonus that ALS patients talk about ? God Help Me
  9. Cubanborn87

    Atrophy?

    I have been though, the weird thing is once the other symtoms started. The twitching little by little has decreased. That is kind of scary to me. Once I start tingling and going numb and all these other symtoms. The jerks are really starting to bother me, before it was hypnic Jerks that just caused my limb to shake while I was talking asleep, which was freaky but it was ok. Now this jerks are everywhere and it's super constant. Last night everytime o woke up or moved a leg or an arm. My limb started shaking as I was doing it. It's happens on my fingers, toes, butt, foot, leg and arms . I guess we will see how it goes During the day. But yesterday it started happening during the day and it was unbearable. The frequency of it really annoyed me as well. It's so frustrating because every few weeks there is a new symtom. This one though is as scary as any of them. I noticed that the sleepier that I am the worse the jerks arez but me being awake doesn't exclude me from it. I am hoping that once I get up and get my day started it will stop. But I am not sure it was happening all night. I even took atarax to help with the sleep , which I think helped.
  10. Cubanborn87

    Atrophy?

    Do you get the ones in your ankle and foot? The ones where just yournfoot moves and you feel it in your toes? I also get them in my hands a lot.
  11. Cubanborn87

    Atrophy?

    Great to hear man, they just started for me. I have been having them for a while at night. But, a few days ago I felt one here and there during the day. Today was non stop during the day, it was pretty intense. Holding the steering wheel, while using my hands etc. It was terrible. With all this new symtoms I am barely getting any twitches , compared to how I used to get them
  12. Interesting, during the day as well?
  13. @mollyfin @Leah1976 I only been on it for 2 days. I wonder if that could be it. It was so bad today that my hands shake non stop when trying to type , grab stuff etc. But it was both hands, both limbs etc. Not my problem side only. Almost like the hypnic Jerks, but very suttle , which you can barely notice.